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Accessibility and inclusion for deafblind people living in the Global South

KAMENOPOULOU, Leda
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.
 

A short presentation concerning the challenges surrounding inclusion of and accessibility for deafblind children and adults, particularly in the Global South.

Deafblindness is a spectrum and so a spectrum of approaches and of assistive aids is required. The most common cause of deaf blindness is aging. Most research has been carried out in the Global North. Very little has been carried out in the Global South or into the intersectionality with poverty, race and gender. 

Guidelines on best practice for persons living with deafblindness

ZWANENBURG, Aline
TESNI, Sian
June 2019

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These guidelines were developed to advance understanding of the needs and challenges of persons living with deafblindness and to promote their inclusion in society. The target audience are members of the CBM Federation with particular interest to, among others staff at Regional and Country Offices, Member Associations, co-workers, partners (including governments, education agencies, public and private service providers, and professionals), as well as persons living with deafblindness and their families.

 

Part One gives an overview of the impact deafblindness can have on an individual’s development and learning. It emphasises the need for a continuum of services and programmes, including early detection, referral, educational input, and family support.

 

Part Two outlines components of education and rehabilitation programmes. It provides guidelines on communication, holistic assessment procedures, assistive devices, advocacy and self-determination, transition planning, and discusses the importance of on-going regular access to health and therapeutic services.

 

Part Three considers how to improve and expand existing services through the provision of on-going personnel capacity building, and through networking with key stakeholders, to consider intersecting issues and service expansion. Each section includes an overview of the topic explored, some case studies and considerations for service implementation.

At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

Disability and the Global South (DGS), 2015, Vol. 2, No. 2 Special issue: Disabled children and disabling childhoods in the global South

2015

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Articles include:

  • EDITORIAL Frames and debates for disability, childhood and the global South: Introducing the Special Issue
  • Using Postcolonial Perspectives to Consider Rehabilitation with Children with Disabilities: The Bamenda-Toronto Dialogue
  • Vietnam’s children’s experiences of being visually or hearing impaired
  • Disabling streets or disabling education? Challenging a deficit model of street-connectedness
  • Revolutionary entanglements: Transversal mappings of disability in the favela
  • For Michael Charlie: Including girls and boys with disabilities in the global South/North
  • Childhood Sexual Abuse and Disability: A critical study of an invisibilized constituency in India
  • Interrogating the impact of scientific and technological development on disabled children in India and beyond

Introduction to sexuality education for individuals who are deaf-blind and significantly developmentally delayed

MOSS, Kate
BLAHA, Robbie
September 2001

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"This book is designed for parents, professionals, and other caregivers working with school-aged children who have combined vision and hearing loss or deaf-blindness coupled with significant developmental delays. It aims to provide them with special methods to familiarize children with sexual aspects of their daily life...Each chapter takes an in-depth look at a particular aspect of developing sexuality for these children: (a) developing sexuality education programs in a school system; (b) teaching appropriate touch and modesty; and (c) instruction about menstruation, masturbation, coupling, sexual health, and sexual abuse. The last chapter includes readings and resources"

Deprivation of information

O'MALLEY, Drena

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This resource discusses access to information for deafblind people who rely on interpreters. The author investigates issues like conscious/subconscious censorship and incidental information

Interpreting the physical environment for deafblind people

KIRK, Tony

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This article focuses on adaptations to the environment that can enable a deafblind person to function more effectively. The aim is to offer guidelines which will enable the person to be more self sufficient. The author also describes how to make the environment supportive of disabilities rather than providing barriers

Deafblind International

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Deafblind International is a world association promoting services for deafblind people. This website describes the aim of the association, as well as providing information about the causes and impact of deafblindness. It contains informative publications and research related to deafblindness, including guidelines for best practice for service provision to deafblind people in both English and Spanish. Links to member organisations are also provided

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