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HIV & disability in West Africa: A combined analysis of 4 studies conducted in Burkina Faso, Niger, Guinea Bissau and Cape Verde (2019) - VIH & Handicap en Afrique de l’Ouest : Une analyse combinée de 4 études conduites au Burkina Faso, Niger, Guinée Bis

DE BEAUDRAP, Pierre
2019

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This paper includes four studies which seek to better understand the situation by HIV-related situation of disabled men and women living in West Africa. 
Using epidemiological investigation, qualitative interviews and collections of testimonies, these studies offer insight into the vulnerability of people with disabilities in the area of ​​sexual health
 

Including children with disabilities in humanitarian action: Health and HIV/AIDS

DINSMORE, Christine
October 2017

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This guidance is designed for UNICEF field staff – including humanitarian field officers, coordinators, specialist and advisors – as well as UNICEF’s partners and others involved in humanitarian work. It provides practical tips and offers entry points for making sure that humanitarian action takes children with disabilities into account. There are 5 other associated guidelines. 

Chapters include: 

impact of emergiencies on health of children and adolescents with disabilities
why children and adolescents with disabilities are excluded health and HIV/AIDS interventions
frameworks and approaches
programmatic actions
preparedness
response and early recovery
recovery and reconstruction
practical tips

Disabling sexualities: Exploring the impact of the intersection of HIV, disability and gender on the sexualities of women in Zambia

WICKENDEN, Anna
NIXON, Stephanie
YOSHIDA, Karen K
2013

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Background: Women with a disability are often characterised as a homogenous social group consigned to a cultural stereotype with assumptions of dependence, asexuality and gender neutrality. Furthermore, there is a void of research about the experience of people with disabilities following diagnosis with HIV. Little is known about how HIV diagnosis intersects with disability and gender and how it shapes the experiences of intimacy and gender roles of those negotiating this intersection.

 

Objective: The objective of this study was to explore how HIV, disability and gender shape the perspectives of HIV-positive women with disabilities regarding intimacy and gender roles.

 

Methods: Twelve women in Lusaka, Zambia were recruited for in-depth semi-structured interviews to explore their experiences of having a disability and living with HIV. Interviews were conducted in English, Bemba, Nyanja and Zambian sign language. Descriptive and thematic analyses were conducted, followed by in-depth gender analyses of data relating to intimacy and gender roles.

 

Results: Data analysis led to the identification of two main themes: the impact of HIV diagnosis on intimate relationships amongst the participants; and the disruption and renegotiation of gender roles. These findings demonstrate the loss of intimacy (often decided by the participants) and changes in women’s gender roles (infrequently decided by them).

 

Conclusions: The narrow approaches to sexuality and HIV that reinforce misconceptions and stereotypes need to change. In their place should be inclusive and disability and sex-positive approaches that are informed by the diverse realities of women’s lives. Further research is needed to develop stronger evidence of the impact of HIV and disability on gender roles and sexuality.

Exploring Knowledge and Attitudes towards HIV/AIDS among Deaf People in Ghana

MPRAH, W K
2013

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Purpose: By exploring the level of knowledge about HIV/AIDS and attitudes towards persons with HIV/AIDS among deaf people in Ghana, this article aims to identify and correct possible gaps in awareness.

 

Method: A participatory sexual and reproductive health (SRH) needs assessment was conducted, targetting deaf people who were fluent in the Ghanaian Sign Language (GSL). The study design was a two-phase, sequential, mixed methods approach. Three focus groups assisted in the development of a survey, which was then implemented for needs assessment data collection. The 179 study participants consisted of 26 focus group participants, 152 survey respondents and 1 key informant. Of the focus group participants, 7 were executives of Ghana National Association of the Deaf (GNAD), 10 were adult males, and nine were adult females. Apart from the key informant, all the participants were deaf persons.

 

Results: The study indicated that many respondents still had misconceptions about HIV/AIDS and had difficulty identifying preventive methods, but their attitudes towards persons with HIV/AIDS was generally positive.

 

Conclusion: More attention needs to be paid to the requirements of the deaf community and to designing HIV/AIDS programmes and services that are deaf-friendly and accessible.

The challenge of HIV : social stigma or disability?

MCTIGUE, Peter
November 2010

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"The nature of discrimination against people living with HIV and with AIDS ('PLHA') is rooted in deeper stigmatisation than discrimination against other groups. Reasons for this include the association of HIV/AIDS with behaviours that may be considered socially unacceptable by many people. To combat such discrimination, HIV is deemed to be a 'disability' under the Equality Act 2010. Whilst this protection has been welcomed by various activists and policy groups within the field, it will be argued that the decision to classify HIV as a disability is an inadequate response to the unique and multi-faceted discrimination faced by PLHA. To achieve this this article will examine the history of the virus; current epidemiology within the UK; the extent to which HIV accords with traditional models of disability and the definition employed by the Equality Act 2010; and finally, the manner in which HIV is socially constructed and how this has compounded discrimination against PLHA"
5 Web JCLI

"I washed and fed my mother before going to school" : understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya

SKOVDAL, Morten
OGUTU, Vincent O
August 2009

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This paper presents three case studies of young people each of whom is a primary caregiver for a relative living with HIV. They are drawn from a study in Western Kenya of how well children cope with the challenges of chronic care and the psycho-social impact it has on them

A handbook for network support agents and other community workers supporting HIV prevention, care, support and treatment

March 2009

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This manual is intended to help network support agents and other community workers be more effective in disseminating standardised information about HIV and AIDS. It "...emphasises the importance of the acquisition of knowledge, skills and the right attitude needed to identify the psychosocial needs of people of people infected and affected by HIV/AIDS and address these needs by giving information, counselling and appropriate referrals. Knowledge of counselling and psychosocial care, is combined as much as possible with prevention activities such as adopting HIV basic care positive prevention and adherence to treatment"

Understanding and challenging HIV stigma : toolkit for action. Module H : MSM and stigma

KIDD, Ross
CLAY, Sue
CHIIYA, Chipo
June 2007

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This is the fifth booklet in this revised toolkit to raise awareness and promote practical action to challenge HIV stigma and discrimination. Module H focuses on men who have sex with men (MSM) and stigma. The toolkit was written by and for HIV trainers in Africa and changes and additions were made with the help of a regional trainers network workshop in Zambia in August 2005

The essentials of antiretroviral therapy for health care and program managers

HOPE, Ruth
ISRAEL, Ellen
April 2007

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This book provides health care workers and mangers with information and practical guidance relating to antiretroviral therapies (ART). It also considers wider care and treatment issues such as; opportunistic infections, the integration of ART with antenatal and midwifery services, the particular needs of children and young people, support relating to nutrition, spiritual needs, psycho-social and economic issues. In addition, the need for community level support to help with adherence to treatment and address stigma and discrimination are also considered, as is end-of-life care for people whose disease does not respond to treatment

UNAIDS practical guidelines for intensifying HIV prevention : towards universal access

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2007

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These practical guidelines are designed to help policy makers and planners to create an effective national response to HIV prevention, by ensuring that their response matches the epidemic dynamics and social context within their country and the populations who remain most vulnerable to and at risk of HIV infection. The guidelines encourage countries to know the national and local epidemiological scenarios and their current response; to match and prioritise their response; to set ambitious, realistic and measurable prevention targets; to tailor prevention plans to local epidemic scenarios and to use and analyse strategic information

Inclusion of AIDS educational messages in rites of passage ceremonies: Reaching young people in tribal communities

Nora Groce
2006

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The impact of HIV on tribal populations has received little attention. Often living in remote areas, further isolated by language, tradition and endogamous marriage patters, members of such communities have been assumed to be at lower risk for HIV. However, there is growing awareness that tribal peoples are sometimes at considerable risk for HIV, as well as other sexually transmitted infections. Young people in such communities may be particularly vulnerable. Traditional practices may forbid discussion of sex at the same time as increasing exposure to outside influences bring new attitudes and expectations about sex and sexuality. Concerned about the implications of the HIV epidemic on tribal populations, a review was conducted of available data on the HIV epidemic within tribal groups. Based on findings from this review, we propose a largely unexplored avenue for reaching tribal populations: namely, the incorporation of the HIV and AIDS related messages into traditional coming of age ceremonies. Such an intervention however can be one component of a comprehensive approach to reaching these often hard-to-reach populations but it may be an especially effective way to reach young people within these communities.

Civil society perspectives on TB/AIDS : highlights from a joint initiative to promote community-led advocacy

OPEN SOCIETY INSTITUTE
TREATMENT ACTION GROUP
2006

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This publication presents six case studies of community-led advocacy activities, aimed at enhancing the capacity of the community to participate in the design, implementation and evaluation of TB/HIV programmes. The HIV epidemic has significantly contributed to the rise of TB incidence, but disease control programmes and policies are generally designed to be implemented independently, with limited resources often allocated to TB projects. The case studies outline some success stories of an integrated approach to TB and HIV, the TB/HIV Advocacy Grants Project, and highlight examples of effective community mobilisation and inclusion of people with HIV. This is a valuable resource for policy makers, organisations and practitioners working in HIV and tuberculosis

Sexual and reproductive health for HIV-positive women and adolescent girls : mannual for trainers and programme managers

BELL, Emma
PERCHAL, Paul
2006

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This manual is designed to provide information and structure for a four-day training and a two-day planning workshop that will enable programme managers and health workers in resource-constrained settings to offer comprehensive, non-judgemental, and quality care and support to HIV-positive women and adolescent girls in the local context. The manual also encourages male involvement and promotes a holistic approach to integrated sexual and reproductive health (SRH) counselling and programme planning that links SRH and HIV and AIDS services

Living proof : community action on AIDS

LAWSON, Lesley
MENDEL, Gideon
July 2004

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This publication, produced to celebrate the Alliance's 10th anniversary, tells the stories of people in Zambia, India, Ecuador, Ukraine and Burkina Faso carrying out extraordinary work to contain the HIV epidemic, often overcoming stigma and organising themselves to find strength in numbers. It highlights the importance of strengthening community responses. The stories are relatively brief and are illustrated with many full-colour photos by Gideon Mendel

Guidelines for counselling men who have sex with men

SOUTHERN AFRICAN AIDS TRAINING PROGRAMME (SAT)
January 2004

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This booklet advises counsellors on how to work with men who have sex with men. It addresses the terminology and attitudes around men who have sex with men in many African cultures and dispells some myths. It advises counsellors on the skills and attitudes that are appropriate when counselling men who have sex with men. It describes what sexual activities these men might engage in and why, and the levels of STI risk associated with them. Finally, it addresses how counsellors can help men who have sex with men cope with emotions and challenges they face; help them avoid HIV infection or re-infection; and live positive and healthy lives with HIV

Involvement of people living with HIV/AIDS in treatment preparedness in Thailand : case study

KUMPHITAK, Aree
KASI-SEDAPAN, Siriras
WILSON, David
et al
2004

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People living with HIV/AIDS (PLHA) in Thailand are increasingly encouraged to work in partnership with NGOs to improve access to disease prevention and treatment provision. This case study outlines the impact of this collaboration over a period of four years. PLHA have been directly involved in lobbying and advocacy, helping make ART more widely available, but also promoting prevention and treatment of opportunistic infections, focusing on the use of co-trimoxazole. Their involvement as co-providers in care has positively changed the attitude of health care staff towards HIV/AIDS patients. The study concludes that a coordinated collaboration between the public health system, NGOs and PLHA would have important spin-offs for both health care providers and PLHA themselves

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. This guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy and a list of useful reference documents

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. In a series of documents in both PDF and MSWord formats, this guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy

Policies for orphans and vulnerable children : a framework for moving forward

SMART, Rose
July 2003

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This paper presents a summary of the global orphans and vulnerable children (OVC) situation, and current policy responses. It is meant for individuals with strategic decision making responsibilties for HIV/AIDS programmes. It firstly defines what is meant by OVC and points out that sub-Saharan Africa has the most OVCs in the world and is therefore the focus of the paper. It outlines existing policy frameworks in responding to OVC including international and national instruments. It identifies policy gaps in national responses to the OVC crisis, and proposes a country-level OVC policy package based on current thinking. The focus is on children under 18 in general, and there is no response to specific age groups

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