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‘Teachers Did Not Let Me Do It.’: Disabled Children’s Experiences of Marginalisation in Regular Primary Schools in China

WANG, Yuchen
2021

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The large-scale mainstreaming of disabled children in education in China was initiated with the launching of a national policy called ‘Learning in Regular Classrooms’ in the late 1980s. More than thirty years on, and little is known about disabled children’s daily experiences in regular schools due to a lack of research that foregrounds their voices. This paper reports the main findings from an ethnographic study conducted in 4 state- funded primary schools in Shanghai involving 11 children labelled as having ‘intellectual disabilities’, 10 class teachers and 3 resource teachers. Data were collected through participant observation, semi-structured interviews, and child-friendly participatory activities, and thematically analysed to identify patterns in practices and beliefs that underpin the processes of inclusion and exclusion. The research found that the child participants were facing marginalisation in many aspects of school life with rather limited participation in decision-making. The exclusionary processes were reinforced by a prevailing special educational thinking and practice, a charitable approach to the disadvantaged in a Confucian society, and an extremely competitive and performative schooling culture. The findings address the need to hear disabled children’s voices to initiate a paradigm shift in understanding and practice to counterbalance deep-rooted barriers. The paper concludes with suggestions for future research.

‘Power-Hurt’: The Pains of Kindness Among Disabled Karen Refugees in Thailand

COLE, Tomas
2019

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In this paper I show how, for many Karen living as refugees in ‘temporary-shelter-areas’ in Thailand, acts of care and kindness often slipped into something painful and controlling. Drawing on fieldwork among Karen refugees disabled by landmines I show how asking for and receiving help was almost always accompanied by the visceral sensation of ana, literally, ‘power hurt’. On the one hand, ana was the force driving the circulation of care and kindness, provoking people to help others. On the other hand this circulation also carried with it the constant potential to compromise not only the recipient’s but also the donor’s ‘power’, which was understood as their capacity to have an effect on the world. In this manner ana may offer us with a way to grasp the ethical-affective basis of a social arrangement that slips smoothly between lateral solidarities and vertical hierarchical relations allowing egalitarianism and hierarchy to co-exist.

Pastoral ministry and persons with disabilities: The case of the Apostolic Faith Mission in Zimbabwe

SANDE, Nomatter
2019

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Background: The Persons with Disability (PWD) are the minority group dehumanized in the church. The subject of disability is complicated because of the impact of the Judeo-Christian teachings. The Apostolic Faith Mission (AFM) in Zimbabwe is a leading Pentecostal church with a pastoral ministry theology which emphasises divine healing, miracles, signs and wonders. Thus, the space of PWD and how the PWD either connects or benefits from this Pentecostal heritage is a critical gap in this study.

 

Objectives: The objective of this study was to explore the construction of disability through the practices and processes of the pastoral ministry in the AFM.

 

Method: This study followed qualitative research and used the social model of disability as theoretical framework. The data were collected from 26 participants who are PWD and pastors using in-depth interviews, focus groups and participant observations.

 

Results: The results showed the AFM pastoral practices created invisible barriers that militate against PWD. Thus, the pastoral ‘divine solutions’ and ‘triumphalist messages and teachings’ are ‘prescriptive’ and ineffective in reducing ‘the plight of PWD in Zimbabwe’.

 

Conclusion: The study concludes that the pastoral ministry should be ‘one efficient vehicle’ with which the church can care for and ‘transform persons with disabilities’. Pastors should break the glass ceiling by expecting pastors to minister better and more effectively creating a safe space for persons with disabilities. A caring community should be the nature of both the AFM and the pastoral ministry responsible for meeting the needs of the persons with disabilities.

 

African Journal of Disability, Vol 8, 2019

Ubuntu considered in light of exclusion of people with disabilities

NGUBANE-MOKIWA, Sindile A.
2018

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Background: This article emanates from a study funded by the KwaZulu-Natal chapter of South Africa’s National Research Foundation on the ‘Archaeology of Ubuntu’. It explores the notion of ubuntu and disability in a group of Zulu people from four communities within KwaZulu-Natal. The study is based on the notion that ubuntu is humaneness. Being human is linked to notions of care, respect and compassion.

 

Objectives: The article explores the treatment of people with disabilities from the elders’ perspectives in this community.

 

Method: This article is based on qualitative data resulting from structured interviews conducted in the KwaZulu-Natal Province between February and March 2015.

 

Results: The results reveal that society considered the birth of a disabled child as a curse from God and punishment from the ancestors. The results also indicate that people with disabilities were excluded from community activities; marrying a disabled person was unthinkable because they were stigmatised and dehumanised. The work of Hannah Arendt is used to interrogate people’s perceptions of others with disabilities in their communities.

 

Conclusion: The article posits that treatment of people with disabilities is not cast in stone but can be renegotiated and restructured through community engagement to represent genuine inclusion.

An Opportunity for Charity? A Catholic Tradition in Understanding Disability and Its Impact on Ministry

MASTERS, Anne
2016

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David Perry, the father of a boy with Down Syndrome, wrote an angry reaction to Pope Francis’ references to individuals and families living with disabilities in Amoris Laetitia. Perry is con- cerned about the limited perspective of persons with disabilities that is portrayed in the texts, which show families commended for their love and tolerance, with a lack of appreciation for the person with a disability as a person of interest, rather than an object of pity. He offers further reflections of caution and hope in response to words and actions of Pope Francis during a Mass celebrating disability awareness. Perry’s comments provide the starting point for reflecting on the image of persons with disabilities presented in Amoris Laetitia and a discussion of possibilities for charity to serve as a corrective for this and pastoral practice.

Nigerian Realities: Can we ignore Traditional Leadership in developing successful CBR?

VERMEER, Bertine
CORNIELJE, Marije T
CORNIELJE, Huib
POST, Erik B
IDAH, Mike A
2015

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Purpose: To study the role of traditional leaders (Sarakuna) who provide a form of social welfare for persons with disabilities in the Hausa society of Northern Nigeria. From the results of this study, lessons are derived for cooperation with Sarakuna in (emerging) Community Based Rehabilitation programmes.

 

Methods: A literature study was done using different (non-)electronic sources. In addition, 26 semi-structured interviews were conducted with different stakeholders (e.g., non-governmental organisations, disabled people’s organisations), and 8 focus group discussions were held with (leaders of) persons with a disability. Question-led analysis was utilised by considering 4 dimensions: rehabilitation outcomes, rehabilitation services, involvement of beneficiaries, and social acceptability.

 

Results: Not much literature is available on the role of traditional leadership in rehabilitation programmes and social welfare. Nevertheless, this study found indications that traditional leadership is still present in contemporary NorthernNigeria. Some Sarakuna improve the socio-economic position of persons with disabilities by functioning as mediators and by their ability to provide social insurance. Their cooperation with multiple stakeholders enables them to distribute food and clothes. Also, since they possess essential information, NGOs are helped to access the community of persons with disabilities. Sarakuna are in a position to promote the inclusion and rehabilitation of persons with disabilities, but often lack necessary skills and training; yet, Community Based Rehabilitation programmes often ignore them.

 

Conclusions and Implications: Community Based Rehabilitation programmes should take better note of social contexts and therefore should also work in the specific context of traditional leadership. In this way, rehabilitation programmes are more likely to meet the expectations of persons with disability.

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Oscar Pistorius and the melancholy of intersectionality

SWARTZ, Leslie
2013

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The alleged shooting by Paralympian and Olympian athlete Oscar Pistorius of his girlfriend Reeva Steenkamp has led to strong reactions worldwide. Scholars in the field of disability studies have expressed shock and disappointment in response both to the death itself and to its implications for the representation of disability. In South Africa in the wake of the death of Ms Steenkamp, much has been made both by critics of Pistorius and by his defenders about his status as a white South African man, but little has been said about disability issues. This silence in South Africa about disability as a possible identity factor in this case draws attention to the extent to which disability questions remain profoundly raced and gendered, and influenced by the colonial and apartheid past. The tragic alleged shooting by Oscar Pistorius draws attention back to how important intersectionality is to understanding disability in South Africa and other unequal societies.

Human development report 2013|The rise of the south : human progress in a diverse world

MALIK, Khalid
et al
2013

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This report "examines the profound shift in global dynamics driven by the fast-rising new powers of the developing world and its long-term implications for human development....The report identifies four specific areas of focus for sustaining development momentum: enhancing equity, including on the gender dimension; enabling greater voice and participation of citizens, including youth; confronting environmental pressures; and managing demographic change

The barefoot guide 3 : mobilizing religious health assets for transformation

COCHRANE, James R
GUNDERSON, Gary R
November 2012

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This Barefoot Guide 3 presents the connection between religion and public health. It focuses on understanding and working with that reality highlighting that “religious assets for health are everywhere, they matter to a lot of people, and they can be mobilized for the health of all.” The guide contains the following chapters on: thinking differently about the health of the public; revisiting the history of the link between religion and public health; working with and mobilizing religious health assets; supporting the ‘leading causes of life’; understanding ‘healthworlds’ and the strengths of ‘people who come together’; boundary leadership; thinking about systems; and ‘deep accountability

Culture and mental health in Haiti : a literature review

WORLD HEALTH ORGANIZATION (WHO)
2010

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"This paper reviews and summarizes the available literature on Haitian mental health and Mental health services. This review was conducted in light of the Haitian earthquake in January 2010. The first part of the review describes historical, economic, sociological and anthropological factors essential to basic understanding of Haiti and its people. This includes discussion of demography, family structure, Haitian economics and religion. The second part of the review focuses on mental health and mental health services. This includes a review of factors such as basic epidemiology of mental illness, common beliefs about mental illness, explanatory models, idioms of distress, help-seeking behavior, configuration of mental health services and the relationship between religion and mental health"

Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers

KERMANSHAHI, S M
VANAKI, Z
AHMADI, F
KAZEMNEJAD, A
AZADFALAH, P
2009

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Nursing as a family-oriented profession involves supporting mothers of children with learning disabilities to gain an awareness of their role. However, few studies have explored the whole experience of such mothers. This study embarks on an understanding of lived experiences of Iranian mothers who have children with learning disabilities. A qualitative approach was adopted using the phenomenology of semi-structured interviews carried out with six Iranian mothers whose children attended a special school in Tehran. The data were analysed in line with van Manen’s suggestions. Two main themes were abstracted; being the centre of stress circles and being in the midst of life and death. Themes include care management challenges for self and child, experiencing through helplessness and hopefulness and experiencing self devote and self neglect. Overall, a majority of mothers experienced a stressful life. The study concludes that Iranian mothers’ lived experience of having children with learning disabilities can be likened to the constant swing of a pendulum between two polarities of positive and negative feelings. This knowledge can provide an heuristic to help health staff guide mothers in adjusting to their children who have learning disabilities.

Participatory monitoring and evaluation of community- and faith-based programs : a step-by-step guide for people who want to make HIV and AIDS services and activities more effective in their community

September 2006

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This guide adopts a learning approach to participatory monitoring and evaluation of HIV and AIDS programmes, and sees programme achievements and problems as a means to better decison-making. It provides a comprehensive overview of monitoring and evaluation processes, from planning to indicators selection, baselines definition and report writing. The process is outlined in simple and practical steps. Includes a chapter on participatory methods and tools and a list of useful HIV and AIDS programmes indicators. This publication is primarily intended for community- and faith-based programme managers and group facilitators

Reflecting on social roles : identifying opportunities to support personal freedom and social integration

O’BRIEN, John
June 2006

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The purpose of this resource is to "to encourage thoughtful discussion of the meaning of ‘least restrictive and most integrated’ as criteria for service adequacy. With this tool, multiple dimensions of a person's life can be examined, including: home and neighbourhood, family and friends, work, learning, spiritual and religious, community association, sports and fitness, and creative expression"
Version 1

HIV/AIDS, stigma, denial, fear and discrimination: experiences and responses from African and Caribbean communities in Toronto

The African and Caribbean Council on HIV/AIDS in Ontario (ACCHO)
HIV Social, Behavioural and Epidemiological Studies Unit, University of Toronto
2006

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This is the report of a study which explores the experiences of HIV positive people from Africa and the Caribbean who are living in Toronto; and the experiences and perspectives of people from these communities at large, through interviews and focus groups. The study seeks to understand HIV-related stigma, discrimination, denial and fear, and how these impact on responses to HIV, including testing, treatment and support. Recommendations from participants include, the need for greater sensitivity and knowledge among health care providers, more ethnoculturally-appropriate services, education campaigns and community development measures. The report would be of interest to people living with HIV and AIDS, physicians, policy makers, service providers, family members, friends and the general public

Scaling up access to HIV prevention, treatment, care and support: the next steps

Joint United Nations Programme on HIV/AIDS (UNAIDS)
2006

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This is a review of country and regional consultations undertaken by UNAIDS, following the United Nations' Political Declaration on HIV and AIDS in June 2006. It explores barriers to UNAIDS' commitment to ensure universal access to comprehensive HIV prevention programmes, treatment, care and support by 2010; and it identifies the next steps that need to be taken for this to become a reality. The key messages are the need for: supportive and protective legislation and programmes to ensure the rights of people living with HIV, women and most-at-risk populations; predictable and sustainable funding for all credible AIDS plans; more trained health care professionals and improved health care systems; and affordable medication, testing and prevention programmes. The review also examines the role of civil society and of faith-based organisations in supporting people with HIV through treatment compliance, prevention, support, care and reducing stigma. It recommends that the high level of response should continue, that targets need to be set and accountability mechanisms improved

HIV and AIDS : taking action

BLACKMAN, Rachel
2005

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The aim of this book is to help Christian development organisations to consider their response to the challenges brought by HIV and AIDS. This often involves mobilising and working with local churches. This book is not just for organisations that carry out specific projects linked to HIV and AIDS. The book looks at what HIV and AIDS are and how HIV spreads. It then looks at different types of responses to the AIDS epidemic, both preventing the spread of HIV and reducing the impact of HIV and AIDS. Bible studies, case studies about work carried out by Tearfund partners and reflection questions are used to help organisations think through what their response might be

Guidelines for reducing stigma and discrimination and enhanacing care and support for people living with HIV and AIDS

KHAN, Naira
LOEWENSON, Rene
2005

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In many communities, stigma and fear of discrimination often exacerbate the impact of the AIDS epidemic and prevent people living with HIV (PLWH) from accessing support services. This document, commissioned by SANASO, and incorporating inputs from faith-based organisations, union representatives, people living with HIV and the media, examines how to address stigma and discrimination in key settings of social life, such as the family, the workplace, faith-based organisations, and the media. It suggests good practices, policies or behavioural changes which should foster a supportive environment for PLWH and improve the general response to HIV and AIDS

HIV-related stigma, discrimination and human rights violations: case studies of successful programmes

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2005

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This report is a collection of case studies of projects, programmes and activities around the world that have used innovative methods to challenge HIV-related stigma, discrimination and human rights violations. The case studies are grouped under stigma-reduction approaches; anti-discrimination measures; and human rights and legal approaches. They are followed by some cross-project/activity analysis that identifies common elements and a number of key principles of success, each of which offers an entry point for innovative and potentially effective work

Improving support for black disabled people : lessons from community organisations on making change happen

SINGH, Becca
2005

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“This study reviews the JRF’s Making Change Happen programme, which provided a year’s funding to four grassroots development organisations with a track record in providing support to black disabled people. The report sets out the learning that emerged from the four development projects. It includes: overviews of the four development projects; learning and common themes, with boxed illustrations from the projects; detailed case studies from two of the projects; practical pointers and suggestions for voluntary and community organisations wishing to improve support to black and minority ethnic disabled people; and some questions for funders and service providers to consider”

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