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Addressing the disability data gap in humanitarian action

COLLINSON, Sarah
October 2020

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This Humanitarian Practice Network Paper (Number 83) explores the challenge of improving the collection, analysis and use of disability data to support more inclusive, impartial and accountable humanitarian action. It considers both the obstacles in this area and the potential opportunities for improving practice going forward. The paper draws directly on the experience and outcomes of a recent UK Aid-funded multi-partner action research project led by Humanity & Inclusion which explored how the use of the internationally validated Washington Group Questions on Disability can support the collection of more reliable and comparable quantitative data on persons with disabilities in humanitarian settings.

Based on a broader desk review of practice-based reports and case studies, this paper also draws on a further range of methods and approaches that have been taken to collect, analyse and use data and information to support inclusion of people with disabilities across different stages of the humanitarian programming cycle, focusing particularly on instances where qualitative information is used in combination with quantitative data. The paper looks at the collection and use of data on the accessibility and inclusiveness of humanitarian programmes, as well as data on the number, needs and capacities of persons with disabilities

Disability data collection: A summary review of the use of the Washington Group Questions by development and humanitarian actors

QUIGLEY, Nolan
et al
October 2018

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The Washington Group Questions on Disability are rapidly emerging as the preferred data collection methodology by the global community for national data collection efforts on disability. However, more and more development and humanitarian actors are now using the methodology in their own data collection efforts. This is beyond the original purpose of the questions, which was to generate usable data for governments. Leonard Cheshire and Humanity & Inclusion, two international charities focussed on disability and inclusion, have worked together to share learnings of recent research studies. These studies aim to understand how the Washington Group Questions (WGQ) have been used by development and humanitarian actors and the impact of using the methodology. This summary report outlines the key findings, analysis and conclusions about the application of the Washington Group Questions in a range of contexts. The report concludes with a number of recommendations for different stakeholders.

Defying the barriers

KHONDKAR, Laila
HAQUE, Reazul Md
January 2018

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Research summaries, case studies and process documentation from “Inclusive Protection and Empowerment Project for Children with Disabilities (IPEP)” are presented.  The aim of the project was to build resilience and capacity among children with disabilities and to create a violence-free community for them. The project ran in five districts of Bangladesh i.e. Sylhet, Dhaka, Barishal, Rangpur and Gaibandha from 2014- 2017. 

 

The research topics were:

  • Understanding the Vulnerabilities of Children with Disabilities Living in both Government-run and Private Residential Institutions
  • The Vulnerabilities of Children with Disabilities from Low-income Households
  • Social Protection Schemes Relevant to Children with Disabilities and their Families 

 

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

Equal measures 2030: Policymakers survey

EQUAL MEASURES 2030
2017

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This report gives interim findings from results of a survey of 109 policymakers in five countries (Indonesia, India, Kenya, Senegal and Colombia), and seeks to shed light on:

  • How do policymakers perceive progress on gender equality in their countries?
  • What most needs to change in order to improve gender equality?
  • What data and evidence do they rely on to make their decisions?
  • How confident are they in their understanding of the major challenges affecting girls and women in their countries?

 

These findings will contribute to debates about data-driven decision making on gender equality, and raise attention to the gaps in accessible, reliable and relevant data and evidence needed to reach the SDGs by 2030.

Violence against children with disabilities : legislation, policies and programmes in the EU

EQUALITY AND DIVERSITY FORUM (EDF)
December 2015

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This report "outlines relevant international and European standards and reviews national legislation and policies addressing violence against children with disabilities. The report also explores the extent and different causes, settings and forms of such violence, and presents measures and initiatives to prevent it”

Available in easy-read version from the web link provided

Practice note : collecting and using data on disability to inform inclusive development

BUSH, Asahel
CARROLL, Aleisha
JAMES, Kathryn
July 2015

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This Practice Note provides guidance and tools for the collection and use of data and evidence on disability at a program level, to inform inclusive development practice and outcomes. It includes sections on why to collect information about disability; how to make mainstream data collection processes disability inclusive; planning for data collection throughout the project cycle; and methods and tools for collection of data to support disability inclusion

The document is the result of a collaboration between Plan International and the CBM Australia-Nossal Institute Partnership for Disability Inclusive Development. It was prepared in the context of growing interest among international development agencies in the disability inclusive practice, and the collection of evidence to underpin this. It draws on some of the experiences and learning arising from Plan’s work to strengthen disability inclusion within its development programs and the CBM-Nossal Partnership’s work to strengthen disability inclusion within the Australian development sector

Capturing the difference we make : community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION (WHO)
2015

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This manual presents indicators that "capture the difference (Community-Based Rehabilitation) CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities...this manual serves to standardize the monitoring of differences made by in the lives of people with disabilities and their families, making it possible to compare the difference CBR makes across areas and countries. This manual aligns with the WHO Global Disability Action Plan 2014–2021, and may also be used to monitor other development plans in an easy and efficient way”

Disability disaggregation of data : baseline report

JOLLEY, Emma
THIVILLIER, Pauline
SMITH, Fred
December 2014

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“This baseline report contains information on the initial steps (prior to the start of data collection) undertaken to include disaggregation of data by disability in two projects in Tanzania and India. The report includes information on project selection, development of an Monitoring and Evaluation (M&E) plan, adaptation of data collection tools and training of Country Office staff, partners and data collectors. This baseline also captures the knowledge, attitudes and practices of programme managers, decision makers and data collectors around disability, the availability of data, and the experiences of Sightsavers’ implementing staff”

Note: The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

Learning lessons from experience

GUY, Michael
DE LAMARZELLE, Julie
May 2014

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This practical guide on learning lessons from experience is for all Handicap International staff (individuals and teams) who intend to conduct or support lesson learning from a project or programme experience. The guide is organised into the following three main sections:

  • Principles and Benchmarks: this section provides important definitions and a framework for understanding how lesson learning occurs within Handicap International programmes
  • Planning: this section offers practical advice for planning a lesson learning process and explains how to formulate clear Terms of Reference; how to select a methodology; and how to prepare a detailed Action Plan
  • Implementation tools: this section offers practical tools to help implement an effective lesson learning process, including: how to capture, formalise and publish lessons learned; how to disseminate your publication: and how to influence change

PG 12

Linking CBR, disability and rehabilitation

MUSOKE, Grace
GEISER, Priscille
Eds
2013

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This 4th book in the series can be used as a basis for future action throughout the African continent. The content provides an overview of present day CBR knowledge, and also details how this information has been interpreted and implemented in the African context. The writers are predominantly of African origin and provide insightful views of the dynamic nature of CBR and its capacity to respond to contextually different challenges. Examples are provided from their own CBR experiences and case studies of their programmes, highlighting the problems they face and how they were overcome

The content of this book has been developed from conference presentations and discussions, and some chapters have been reinforced with additional information from discussions or relevant literature. The end of each chapter provides references to the academic literature used by the authors

4th CBR Africa Conference

Abuja, Nigeria

26th-29th October 2010

Inclusive project cycle management training

CHRISTOFFEL BLINDENMISSION (CBM)
December 2012

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"Inclusive Project Cycle Management (IPCM) training package has been developed for CBM staff and Partner Organisations worldwide

 

The Trainers’ Manual will guide CBM trainers. It contains the curriculum for the course and training resources for trainers to help them deliver the course. The training will be successful if the trainers make sufficient planning time to prepare in advance and to respond to partners training needs. Different contexts and different partners may require different emphasis on areas that may be a challenge. This training material is not suggested as a prescriptive manual but as a suggested framework that can be added to and deepened as required. This means adapting the course to the local context and training needs and competencies of partners. In particular, it would be good to supplement or replace case studies included in the course with local case studies (refer Handout 8) and to have participants draw on their own examples

 

In addition to the Trainers’ Manual, there are also Participant Folders. There is a small amount of information to be included in the folders at the beginning. Participants will receive extra course materials during the three days to complete their folders (Handouts)


The objective of the training is to promote inclusion in CBM’s work and the work of CBM’s partners. It focuses on two particular aspects of inclusion – how to ensure people with disabilities and both women and men participate in and benefit from development activities"

Processes and approaches to enable sustainable access to quality rehabilitation services : comparative study of Handicap International programmes in Albania, Kosovo and Mozambique

HAZARD, Damien
AXELSSON ETEO, Charlotte
2012

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This comparative study of Handicap International programmes in Albania, Kosovo and Mozam-bique analyses processes and approaches that have been used by Handicap International to enable access to quality rehabilitation services for people with disabilities, and specifically to look at their impact in terms of Sustainability
SD/RS 07

Strengthening livelihood capacities to disaster risk reduction : compilation of change studies Kathmandu Nepal

BHANDARI, Dinanath
MALAKAR, Yuwan
2011

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This collection of articles documents the lessons learned during the project implementation in Nepal. It describes the prevailing physical, institutional and socio economic context, and details the activities and its interventions. The collection presents a compilation of initiatives and their evaluated outcomes on improved and diversified livelihood strategies, including the adoption of new income earning opportunities with increased resilience and food security, and improved health and resilience of targeted communities while reducing their exposure to prevailing and future hazards

CBR stories from Africa : what can they teach us?

COLERIDGE, Angela
HARTLEY, Sally
Eds
2010

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"Community Based Rehabilitation (CBR) is an evolving concept. Its effectiveness depends on continuous reflection, debate and learning. This book aims to facilitate this process through the stories of five CBR programmes in Africa, told by those involved with the programmes and reflected on with honesty...Each of the five programmes has been invited to document their work, describing how its programme started and assessing the effectiveness of the approach it has chosen. They were asked to identify their successes and challenges, and to reflect on how difficulties are being overcome. Life stories illustrate the impact each approach can have on individual lives. The book offers itself as a reflective tool, to be used by practitioners. Each chapter asks specific questions of its readers, inviting them to draw comparisons with their own programme. The concluding section of the book outlines ideas for evaluating and developing their CBR programmes"

Monitorings and evaluation manual : handbook on monitoring and evaluation of development projects

DISABLED PEOPLE’S ORGANISATIONS DENMARK (DPOD)
2009

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“The manual provides answers to what monitoring and evaluation are about, and what it takes to perform them. Numerous specific examples are presented, and annexes at the end serve practical purposes in day-to-day work, including a list to inspire the programming of monitoring and evaluation visits, and a catalogue of ideas for the formulation of indicators”

UN development account project on improvement of disability statistics

LIU, Wei
September 2007

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This presentation presents background information about ESCAP and disability and statistics. It highlights the UN development account project, featuring the expected outcomes and activities. This resource is useful to anyone interested in projects focusing on the improvement of disability statistics
Seventh Meeting of the Washington Group on Disability Statistics
19-21 September 2007
Dublin, Ireland

Minimum standards for civil society participation in the universal access initiative

THE COALITION OF ASIA PACIFIC REGIONAL NETWORKS ON HIV/AIDS (SEVEN SISTERS)
August 2007

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This document, developed with input from civil society participants and organisations from the Asia-Pacific region, proposes a process and framework to encourage minimum standards for civil society participation in universal access processes. It is for use by both civil society representatives as a tool to assess and promote their greater involvement in national universal access processes, and by national government representatives as a guide for ensuring civil society participation in national scaling up to reach universal access targets. The main body of the document is divided into three parts: a description of the preparation needed to implement a set of minimum standards for participation; a proposed matrix that uses a scoring system based on definitions of levels of participation and sets of indicators which are used to examine the different aspects and stages of universal access; and monitoring and evaluation methods for assessing civil society participation. It also considers how the proposal can be developed and disseminated

HIV prevention with especially vulnerable young people : case studies of success and innovation

WOOD, Kate
et al
May 2006

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This follow-up publication is intended to be read in conjunction with 'HIV/AIDS prevention and care for especially vulnerable young people: a framework for action', which set out five core principles underpinning effective HIV/AIDS prevention programming with young people: putting the young person first; promoting meaningful participation; a commitment to rights; promoting gender equity; and tackling risk and vulnerability. It outlines five case studies. Each case study describes how these principles have been put into action, through innovative approaches to working with young people who are homeless, using drugs, selling sex or living in deprived communities. Case studies come from Argentina, India, Iran, Kenya and Nigeria. This is a useful resource for policy-makers, practitioners and researchers working to promote young people's sexual health in resource-constrained settings

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