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Disability, CBR and inclusive development (DCID)

2016

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"Disability, CBR and Inclusive Development aim to enhance knowledge in the field of disability, addressing the needs of practitioners in the field (particularly those from developing countries), policy makers, disabled persons’ organizations and the scientific community. The journal encourages publication of information that is evidence-based, to improve current knowledge and programmes implementation, and will be openly and freely accessible to all readers" ”Published four times a year, previously published two times per year
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Association between Zika virus infection and microcephaly in Brazil, January to May, 2016: preliminary report of a case-control study

DE ARAUJO, Thalia Velho Barreto
et al
December 2016

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The microcephaly epidemic, which started in Brazil in 2015, was declared a Public Health Emergency of International Concern by WHO in 2016. Preliminary results of a case-control study investigating the association between microcephaly and Zika virus infection during pregnancy are reported. A case-control study was carried out in eight public hospitals in Recife, Brazil. Cases were neonates with microcephaly. Two controls (neonates without microcephaly), matched by expected date of delivery and area of residence, were selected for each case.

The Lancet Infectious Diseases,  Vol. 16, No. 12, pp. 1356–1363, Dec 2016

DOI: http://dx.doi.org/10.1016/S1473-3099(16)30318-8

The Functions of Disabled People’s Organisations (DPOs) in Low and Middle-income Countries: a Literature Review

YOUNG, Rebekah
REEVE, Mathew
GRILLS, Nathan
2016

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Purpose: The aim of this study was to review peer-reviewed literature on the roles and functions of Disabled Peoples’ Organisations (DPOs) in low and middle-income countries, and their outputs and outcomes for people with disabilities.

 

Method: Online databases were searched without date or language limiters (Medline, CINAHL, Scopus, Embase and Cochrane), using a combination of two key word search strategies. Eleven studies were selected for inclusion in this review on the basis of predetermined inclusion and exclusion criteria. Included studies underwent quality assessment using the Critical Appraisal Skills Programme (CASP) and Downs and Black’s criteria for quality assessment. Data for thematic analysis was then grouped under the broad themes of: participation and factors that facilitate participation; development of partnerships and connections; and self-development and self-help.

 

Results: There was some evidence within the included studies to suggest that DPOs can produce significant, positive outcomes for persons with disability in terms of factors such as employment rates, access to microfinance and bank loans, accessibility of housing, acquisition of orthopaedic devices, involvement in civil society, development of friendships and networks, and participation in training programmes. Although the studies under review largely did not investigate the long-term impact of the reported DPO functions and outputs, some of the short-term outputs may be considered proximal indicators of outcomes such as increased empowerment and wellbeing.

 

Conclusion: The 11 studies in this review suggested that DPOs can be effective in achieving their stated aims of promoting wellbeing, participation and rights of people with disabilities in low and middle- income countries.

 

Minimum technical standards and recommendations for rehabilitation

NORTON Ian
December 2016

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This document is the result of collaboration between a working group of rehabilitation experts convened by WHO and external consultations. It is thus based on collective experience in rehabilitation during responses to recent large-scale emergencies and also on published data. In time, the minimum standards for rehabilitation in emergencies will be part of a broader series of publications based on the Classification and minimum standards for foreign medical teams in sudden onset disaster.

 

The purpose of this document is to extend these standards for physical rehabilitation and provide guidance to emergency medical teams (EMTs, formerly known as “foreign medical teams”) on building or strengthening their capacity for and work in rehabilitation within defined coordination mechanisms.The standards and recommendations given in this document will ensure that EMTs, both national and international, will better prevent patient complications and ensuing impairment and ensure a continuum of care beyond their departure from the affected area. This document gives the minimum standards for EMTs in regard to the workforce, the field hospital environment, rehabilitation equipment and consumables and information management. Notably, the standards call for:

 

• at least one rehabilitation professional per 20 beds at the time of initial deployment, with further recruitment depending on case-load and local rehabilitation capacity;

• allocation of a purpose-specific rehabilitation space of at least 12 m2 for all type 3 EMTs; and

• deployment of EMTs with at least the essential rehabilitation equipment and consumables according to type.

 

EMTs are encouraged to exceed the minimum standards outlined in this document; supplementary recommendations are included. All teams on the Global Classification List of quality assured teams are required to use the minimum technical standards for rehabilitation, and demonstration of adherence to the standards will be necessary for verification. Support in achieving the minimum standards will be available through EMT mentoring, if necessary

European Human Rights report, issue 1 – 2016 Marking 10 years of the United Nations Convention on the Rights of Persons with Disabilities in Europe

LEENKNECHT An-Sofie
CONTE Carmine
December 2016

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Here is the first issue of a series of European Human Rights Reports launched by European Disability Forum. This first issue focuses on the 10th anniversary of the CRPD giving an overview of the state of play and progress made with regards to the CRPD in Europe.

It was launched on the occasion of a 2-day conference organised by the European Commission and EDF on 29-30 November 2016, as 2016’s European Day of Persons with Disabilities marked the 10th anniversary of the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD), . The conference gathered together around 400 participants including people with disabilities and their representative organisations, associations and companies working to improve the life of people with disabilities, government representatives, EU institutions representatives, academics and many others. Together they have been discussing and ethe progress made in the European Union (EU) to promote the rights of persons with disabilities in line with the CRPD: each panel gave an overview of the legal and policy framework, and how it had changed, followed by personal testimonies and examples.
 
 

Guidelines for Consulting with Children & Young People with Disabilities

PLAN INTERNATIONAL
December 2016

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What is this document?

This document provides a guidance on the importance of consulting with children with disabilities. It provides practical suggestions for consulting with children and young people with disabilities in a variety of situations. It aims to equip individuals working on child rights with the knowledge and skills necessary to communicate with children with a variety of disabilities.

This document sets out tips and suggestions for the entire consultation process including: planning for the consultation, general considerations for consulting with children with disabilities, specific tips for communicating with children with different types of impairments, and some case study examples. 

Who is this document for?

This document is a guide for Plan and partner staff on how to work with children to ensure that children with disabilities are consulted with and heard in Plan programmes. This could include:

• Field staff

• Researchers and consultants

• Community leaders and members

• Government officials

• Facilitators and trainers

• School teachers

• Plan National Office and Country Office staff

These guidelines can be used in all contexts including at a national policy level, in communities, during development projects and in humanitarian settings.

The wellbeing of children with developmental delay in Bangladesh, Bhutan, Laos, Nepal, Pakistan and Vietnam: An analysis of data from UNICEF’s Multiple Indicator Cluster Surveys

EMERSON, Eric
SAVAGE, Amber
LLEWELLYN, Gwynnyth
December 2016

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This report, produced by the University of Sydney’s Centre for Disability Research and Policy (CDRP),
uses data collected in rounds four and five of UNICEF’s Multiple Indicator Cluster Surveys programme (MICS) to describe the wellbeing of young children with and without developmental delay in six Asian countries. The United Nations Sustainable Development Goals (SDG) were used as a framework for identifying indicators of child wellbeing.

The report, authored by CDRP Disability and Inequity Stream Leader Professor Eric Emerson with Dr Amber Savage of the Family and Disability Studies Initiative, University of Alberta, Canada and CDRP Director Professor Gwynnyth Llewellyn, found that children with Developmental Delay in Bangladesh, Bhutan, Laos, Nepal, Pakistan and Vietnam are more likely than their peers to:
• Be living in poverty (SDG1). In five out the six countries children with developmental delay were more likely to be living in poverty than their peers
• Experience hunger (SDG2). In all six countries children with developmental delay were more likely to have experienced persistent severe hunger than their peers
• Suffer poor health (SDG3). On three indicators (poor peer relationships, diarrhoea and fever) children with developmental delay were more likely to have poor health than their peers. On three indicators (obesity, aggression and acute respiratory infections) there was no systematic difference between children with and without developmental delay.
• Experience barriers to quality education (SDG4). On all four indicators (attendance at early childhood education centre, family support for learning, access to learning materials in the home, maternal level of education) children with developmental delay were more disadvantaged than their peers.
• Experience barriers to clean water and sanitation (SDG6). On two indicators (improved sanitation, place to wash hands) children with developmental delay were more disadvantaged than their peers. On one indicator (improved drinking water) there was no systematic difference between children with and without developmental delay.

The authors noted that “Since the development of the United Nations Convention on the Rights of the Child (UNCRC) in 1998, increased attention has been paid to monitoring the well-being of children. The UN Convention on the Rights of Persons with Disabilities (UNCRPD) and UNCRC both contain explicit provisions regarding the rights of children with disabilities. These impose obligations on governments to act to ensure that children with disabilities enjoy the same rights and opportunities as other children. In order to promote the visibility of children with disabilities, enable better policy, and monitor progress, disaggregation of data related to children’s well-being on the basis of disability is needed."

Users’ satisfaction with prosthetic and orthotic assistive devices in the Lao People’s Democratic Republic: A cross-sectional study

DURHAM, Jo
SYCHAREUN, Vanphanom
SANTISOUK, Phonevilay
CHALEUNVONG, Kongmany
2016

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Purpose: User satisfaction with assistive devices is a predictor of use and an important outcome measure. This study evaluated client satisfaction with prosthetic and orthotic assistive devices and services in three provinces in the Lao People’s Democratic Republic.

 

Method: A cross-sectional study was done, using the Quebec User Evaluation of Satisfaction with Assistive Technology questionnaire. The sample was drawn from the client register of three of the five Rehabilitation Centres in the country which are under the Ministry of Health’s Centre for Medical Rehabilitation. Clients were eligible if they had received their device in the 12 months prior to the study. Based on the number of registered clients, the sample size was calculated as 274 with a 95% confidence interval, with the final sample N = 266. Qualitative semi-structured interviews were also conducted (N = 34).

 

Results: Most of the assistive devices were in use at the time of the survey and were reported to be in good condition (n = 177, 66.5%). The total mean score for satisfaction (services and device combined) was 3.80 (SD 0.55). Statistically significant differences were observed in satisfaction between gender and location of residence. Effectiveness and comfort were rated as the two most important factors when using a device; at the same time, these were the most common reasons for dissatisfaction and sub-optimal use.

 

Conclusion and Implications: Clients were quite satisfied with the assistive device and services provided, yet many reported barriers to optimal device use and difficulties in accessing follow-up services. There is a need to examine how prosthetic and orthotic devices can be improved further for better comfort and ambulation on uneven ground in low-resource contexts and to address access barriers.

Situation of wage employment of people with disabilities (Ten developing countries in focus)

HANDICAP INTERNATIONAL
December 2016

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One of the fundamental rights that is often denied to persons with disabilities is the right to employment. Based on 35 years of work with persons with disabilities in more than 60 developing countries, Handicap International has decided to study this issue of employment and disability. It challenges ten developing country teams to reach out to their local partners to capture the reality of employment today. This qualitative study gives very useful information about country teams’ vision of decent work for persons with disabilities in those environments where specialized resources are rare and inclusive policies remain in their infancy. Despite many obstacles, it identifies some positive promises and future tracks for better practices and efficient services. Many stakeholders, like local business and employment bureaus, are piloting innovative ways to get people to work, and to retain their skills as this positive dynamic evolves. Bringing these experiences to different audiences is the main goal of this document. Hopefully it will be the first piece of a more comprehensive data set and bank of best practices that reinforce access to decent jobs for people with disabilities wherever they happen to live in our global world.

Promoting diversity and inclusion through workplace adjustments: a practical guide

WONG Lisa
December 2016

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The purpose of a reasonable accommodation at work is not to unduly burden an employer, nor is it to grant one employee an unfair benefit or advantage over another. Reasonable accommodation in the workplace means providing one or more modifications or adjustments that are appropriate and necessary to accommodate a worker or job candidate’s individual characteristics or differences so that he or she may enjoy the same rights as others. Often, a reasonable accommodation may be made at little or no cost to an employer, and results in concrete benefits to both the employer and the worker.

When and how should a workplace accommodation be provided? When should a requested accommodation be considered both necessary and reasonable? This guide aims to assist employers of all sizes and in all economic sectors, to provide reasonable accommodation at all stages of the employment relationship, including in designing and advertising a vacancy, during selection and recruitment phase as well as during employment and in the context of return to work. This guide is a joint product of the Conditions of Work and Equality Department, the Governance and Tripartism Department and the International Labour Standards Department and is the third module in the ILO’s Promoting Equity series.

Disability, CBR and inclusive development (DCID), 2016, Vol. 27 No. 3

2016

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Titles of research articles in this issue of the journal are:

  • Exploring the Complexities of Leprosy-related Stigma and the Potential of a Socio-economic Intervention in a Public Health Context in Indonesia
  • Users’ Satisfaction with Prosthetic and Orthotic Assistive Devices in the Lao People’s Democratic Republic: A Cross-sectional Study
  • The Functions of Disabled People’s Organisations (DPOs) in Low and Middle-income Countries: A Literature Review
  • Physiotherapy Care for Adults with Paraplegia due to Traumatic Cause: A Review
  • Supporting Parents in Caring for Children with Disability in Ghana
  • Quality of Life among Persons with Paraplegic Spinal Cord Injury

Brief reports

  • Impact of Long-term Use of Adaptive Seating Device among Children with Cerebral Palsy and their Families in Mumbai, India: A feasibility study

Experiential Accounts

  • Community-Based Rehabilitation for Children with Intellectual Disability: A Case Study of Endosulfan Affected Areas in India

Rights to water and sanitation for people with disabilities in Madagascar

VEROMAMINIAINA, Edith
RANDRIANARISOA, Ridjanirainy
December 2016

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"This paper illustrates the experiences of the Platform For People with Disabilities (PFPH), working with the support of WaterAid, to highlight and address the gaps in the realisation of the rights of people with disabilities in Madagascar. The focus has been on engaging the government on the National Inclusion Plan for people with disabilities, which includes water, sanitation and hygiene (WASH). This pilot project was designed to increase access to safe WASH for people with disabilities through a human rights based approach. It focuses on strengthening the capacities of rights holders, as well as the capacity and the political will of duty bearers to fulfil their obligations towards the progressive realisation of rights. The project has strengthened the capacity of the PFPH to advocate for their rights and engage with government on all areas of their rights, although an increase in actual WASH provision is limited by the government’s lack of capacity and resources". 

7th RWSN Forum “Water for Everyone”, 7 ème Forum RWSN « L’eau pour tous » 29 Nov - 02 Dec 2016, Abidjan, Côte d’Ivoire

As the movement for cash transfer programming advances, how can we ensure that people with disabilities are not left behind in cash transfer programming for emergencies?

REDUC, Marie
PLA CORDERO, Ricardo
et al
December 2016

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A short review of the literature was carried out which derived some specific recommendations with regards to the needs of people with disabilities in cash transfer programming in the braod categories of: appropriate beneficiary targeting and assessment; accessibility of training and sensitisation materials; physical and sensorial access to markets, vendors and distributions points (including ATM); access to activities in cash for work; accessibility of technology; access to lost goods and services

Mad studies: Intersections with disability studies, social work, and mental health

INTERSECTIONALITIES, A GLOBAL JOURNAL OF SOCIAL WORK, ANALYSIS,RESEARCH, POLITY AND PRACTICE
December 2016

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A special issue of the online journal "Intersectionalities - A Global Journal of Social Work Analysis, Research, Polity, and Practice", Vol 5, No.3 (2016) providing 10 articles on the theme of Mad studies. Titles of papers included are: 

Doing Mad Studies: Making (Non)sense Together; 

An Introduction to Anti-Black Sanism; 

Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies; 

Recovery-as-Policy as a Form of Neoliberal State Making; 

“About Nothing Without Us”: A Comparative Analysis of Autonomous Organizing Among People Who Use Drugs and Psychiatrized Groups in Canada; 

Too Young to Be Mad: Disabling Encounters with 'Normal' from the Perspectives of Psychiatrized Youth; 

Relocating Mad_Trans Re_presentations Within an Intersectional Framework; 

A Desire to be ‘Normal’? A Discursive and Intersectional Analysis of ‘Penetration Disorder’; 

Racialized Communities, Producing Madness and Dangerousness; 

Psy-Times: The Psycho-Politics of Resilience in University Student Life

New 'Accessibility Guide' on the needs of persons with disabilities using public transport

EUROPEAN DISABILTY FORUM
December 2016

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"To mark the International Day of Persons with Disabilities (3 December), the International Association of Public Transport (UITP), IRU (World's Road Transport organisation) and EDF jointly publish an 'Accessibility Guide' to improve customer service for persons with disabilities and persons with reduced mobility.

 

The publication aims to show that service quality and inclusiveness are of paramount importance for the public transport sector.

The guide is one of the initiatives that we are undertaking to raise awareness amongst staff about the barriers still existing to a fully inclusive public transport system and how to best overcome them. It is targeted at public transport staff regularly interacting with passengers and can be used in the context of disability awareness trainings.

Gunta Anca, EDF Vice-President: “With this accessibility guide we want to give simple tips and advice on how to improve service for persons with disabilities. There is really nothing to be afraid of – we are passengers like everyone else, just sometimes we need a little bit more of your support and understanding.”

Thomas Avanzata, Director of the European Department at UITP: “An average person does not know much about persons with disabilities. With this guide, we hope to close the knowledge gap for our bus drivers and be able to offer an improved service to persons with disabilities. We are very happy about the cooperation with EDF and IRU and optimistic that such small initiatives can make a difference on the ground, especially at times where financial resources for costly infrastructure works are scarce.”

Rémi Lebeda, who leads IRU’s work on passenger transport in Europe: “This accessibility guide is an excellent tool to improve the quality of service offered to people with disabilities by drivers and operators. We thank EDF and UITP for their excellent cooperation in working on this important issue. In further recognition of the International Day of Persons with Disabilities the guide will also be available in accessible format.”

Birth prevalence of Congenital Talipes Equinovarus in Low and Middle Income Countries: A Systematic Review and Meta-analysis

Tropical medicine and International Health
December 2016

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"Congenital talipes equinovarus (CTEV), or clubfoot, is a structural malformation that develops early in gestation. Birth prevalence of clubfoot is reported to vary both between and within low- and middle-income countries (LMICs), and this information is needed to plan treatment services. This systematic review aimed to understand the birth prevalence of clubfoot in LMIC settings." 

Statement to mark the 10th anniversary of the UN Convention on the Rights of Persons with Disabilities

DEVANDAS-AGUILAR, Catalina
December 2016

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"It is time to move from law to practice in the implementation of the rights of persons with disabilities

GENEVA (13 December 2016) – A United Nations human rights expert has urged States to redouble their efforts to end the marginalization of persons with disabilities, in a statement marking the anniversary of the UN Convention on the Rights of Persons with Disabilities.

Catalina Devandas Aguilar, the UN Special Rapporteur on the rights of persons with disabilities, said much work remained to be tackled, 10 years after the Convention was adopted by the UN General Assembly on 13 December 2006"

Estimation of Zika virus prevalence by appearance of microcephaly

SAAD-ROY, C M
van den DRIESSCHE, P
MA, J L
December 2016

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There currently is a severe Zika Virus (ZIKV) epidemic in Brazil and other South American countries. Due to international travel, this poses severe public health risk of ZIKV importation to other countries. We estimate the prevalence of ZIKV in an import region by the time a microcephaly case is detected, since microcephaly is presently the most significant indication of ZIKV presence. A mathematical model to describe ZIKV spread from a source region to an import region was established. This model incorporates both vector transmission (between humans and mosquitoes) and sexual transmission (from males to females). Account was taken of population structure through a contact network for sexually active individuals. Parameter values of the model are either taken from the literature or estimated from travel data

BMC Infectious Diseases (2016) 16:754 DOI 10.1186/s12879-016-2076-z

Accessibility for All: Good practices of accessibility in Asia and the Pacific to promote disability-inclusive development

AKIYAMA, Aiko
HOLLIS, Jake
KRETZSCHMAR, Tyler
December 2016

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"This publication seeks to support policymakers in promoting accessibility at a policy and practical level. It contains information on relevant global and regional mandates that support and promote disability-inclusive development and accessibility, with a view to demonstrate the multi-faceted value of focusing on disability and accessibility policies to achieve broader development goals. Readers will learn about the core concepts of disability and accessibility, and be empowered with knowledge on standards, tools and means of promoting accessibility. Furthermore, this publication will outline and analyse examples of good practices of accessibility identified in Asia and the Pacific. The majority of the good practices featured in this publication were initially discussed at two international and multi-stakeholder workshops that took place in 2014 and 2015, with a few additional examples drawn from Pacific island member States. The selection of practices for this publication is based on their embodiment of the principles of accessibility, demonstrated success, measurable impact on the community, and their adaptable and replicable nature"

Report of the Special Rapporteur on the rights of persons with disabilities (theme: access to rights-based support for persons with disabilities)

DEVANDAS, Catalina
December 2016

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In her report, the Special Rapporteur provides an overview of the activities undertaken in 2016, as well as a thematic study on access to support by persons with disabilities. The study includes guidance for States on how to ensure the provision of different forms of rights-based support and assistance for persons with disabilities, in consultation with them. In preparing the study, the Special Rapporteur convened a regional expert consultation in Addis Ababa in September 2016 and analysed the responses to a questionnaire sent to Member States, national human rights institutions, agencies of the United Nations system, civil society organisations and persons with disabilities and their representative organisations. As at 5 December 2016, she had received 114 responses. 

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