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Nonparametric estimation of a compensating variation : the cost of disability

HANCOCK, Ruth
MORCIANO, Marcello
PUDNEY, Stephen
December 2013

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This paper proposes a nonparametric matching approach to estimation of implicit costs based on the compensating variation (CV) principle. The paper aims to introduce the matching approach, compare its properties with those of the conventional indirect parametric approach, and demonstrate its application in an important policy area. The authors apply the method to estimate the additional personal costs experienced by disabled older people in Great Britain, finding that those costs are substantial, averaging in the range £48-61 a week, compared with the mean level of state disability benefit (£28) or total public support (£47) received. Estimated costs rise strongly with the severity of disability. The authors compare the nonparametric approach with the standard parametric method, finding that the latter tends to generate large overestimates unless conditions are ideal, and recommend the nonparametric approach

ISER Working Paper Series, No. 2013-26

Disability and the League of Nations: the Crippled Child’s Bill of Rights and a call for an International Bureau of Information, 1931

GROCE, Nora
December 2013

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In Disability Studies the evolution of conceptual models is often portrayed as linear, with a nineteenth-century charity model shifting to the medical model that dominated disability discourse in the twentieth century. This is then assumed to be largely unchallenged until the 1970s, when an emergent Disability Rights Movement re-framed issues into the social model, from which evolved a rights-based model. This paper documents two early efforts to address disability issues submitted to the League of Nations: the Crippled Child’s Bill of Rights in 1931 and a ‘Memorial’ requesting the establishment of an International Bureau of Information on Crippled Children in 1929. Neither submission achieved its stated goals, yet both reflect early attempts to place disability within wider social contexts.
Disability & Society, Volume 29, Issue 4, 2014, pp. 503-515

Disability and the League of Nations: the Crippled Child’s Bill of Rights and a call for an International Bureau of Information, 1931

GROCE, Nora
2013

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In Disability Studies the evolution of conceptual models is often portrayed as linear, with a nineteenth-century charity model shifting to the medical model that dominated disability discourse in the twentieth century. This is then assumed to be largely unchallenged until the 1970s, when an emergent Disability Rights Movement re-framed issues into the social model, from which evolved a rights-based model. This paper documents two early efforts to address disability issues submitted to the League of Nations: the Crippled Child’s Bill of Rights in 1931 and a ‘Memorial’ requesting the establishment of an International Bureau of Information on Crippled Children in 1929. Neither submission achieved its stated goals, yet both reflect early attempts to place disability within wider social contexts.

Disability studies and ability studies : two lenses to investigate peace

WOLBRING, Gregor
November 2013

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This special edition journal explores the links between peace studies and disability studies. This issue presents four articles that thematised peace and disabled people in different ways. One article looks explicitly at the nexus of the academic fields of disability studies and ability studies, while three articles look at different groups of disabled people without using the frame of disability studies

Peace Studies Journal, Vol 6, Issue 4

Moral wrongs, disadvantages, and disability : a critique of critical disability studies

VEHMAS, Simo
WATSON, Nick
November 2013

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This paper offers a review of Critical disability studies (CDS), an approach which challenges the predominantly materialist outlook of more conventional approaches to the study of disability. The paper “reviews the ideas behind the development of CDS and analyses and critiques some of its key ideas. Starting with a brief overview of the main theorists and approaches contained within CDS, the paper then moves on to normative issues; namely, to the ethical and political applicability of CDS”
Disability & Society, Volume 29, Issue 4

Integrating people’s capacities in disaster risk reduction through participatory mapping

CADAG, Jake Rom D
GAILLARD, JC
November 2013

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This is ebook chapter presents different forms of participatory mapping to facilitate the integration of people’s capacities within disaster risk reduction.   The chapter "presents a particular form of participatory mapping...Participatory 3 Dimensional Mapping (P3DM), as a tool for making people’s capacity, as well as vulnerabilities, tangible, so that these can be considered in DRR [disaster risk reduction].  It draws upon a project led by coastal communities in the Philippines, between 2008 and 2009"

Chapter 17 of LÓPEZ-CARRESI, Alejandro, et. al, Eds, (2013) "Disaster management : International lessons in risk reduction, response and recovery” 

Moral wrongs, disadvantages, and disability: a critique of critical disability studies

VEHMAS, Simo
WATSON, Nick
2013

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Critical disability studies (CDS) has emerged as an approach to the study of disability over the last decade or so and has sought to present a challenge to the predominantly materialist line found in the more conventional disability studies approaches. In much the same way that the original development of the social model resulted in a necessary correction to the overly individualized accounts of disability that prevailed in much of the interpretive accounts which then dominated medical sociology, so too has CDS challenged the materialist line of disability studies. In this paper we review the ideas behind this development and analyse and critique some of its key ideas. The paper starts with a brief overview of the main theorists and approaches contained within CDS and then moves on to normative issues; namely, to the ethical and political applicability of CDS.

Perceptions about Barriers to Sexual and Reproductive Health Information and Services among Deaf People in Ghana

MPRAH, W K
2013

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Purpose: This study aimed to provide insights into factors that influence the acquisition, accessibility, and utilisation of Sexual and Reproductive Health (SRH) information and services by deaf people who communicate using Ghanaian Sign Language (GSL).

 

Method: The study explored deaf people’s perceptions about barriers to SRH information and services in Ghana. There were 26 participants in 3 focus groups: 10 executives of Ghana National Association of the Deaf (GNAD), 7 deaf adult males and 9 deaf adult females. A key informant, who had experience in working with deaf people, was also interviewed. Review of documents and observations helped to clarify data gathered from the focus groups.

 

Results: Study findings indicated that when accessing SRH information and services in Ghana, deaf people encounter numerous barriers such as problems with communication, ignorance about deafness, negative attitudes, and services that are not customised to their needs.

 

Conclusion: If it is to succeed, any SRH programme for the deaf community must make the eradication of communication barriers a priority, since communication is fundamental to all challenges that deaf people encounter.

The Rapid Assessment of Disability – Informing the Development of an Instrument to Measure the Effectiveness of Disability Inclusive Development Through a Qualitative Study in Bangladesh

HUQ, N L
EDMONDS, T J
BAKER, S
BUSJIA, L
DEVINE, A
FOTIS, K
MARELLA, M
GOUJON, N
KEEFFE, J
2013

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Purpose: The Rapid Assessment of Disability (RAD) questionnaire was developed to provide governments and development agencies with an appropriate instrument to determine the prevalence of people with disability within theirtarget populations, and to design and evaluate the effectiveness of disability inclusive activities in addressing their priorities and needs.

 

Method: The RAD questionnaire was developed using two conceptual frameworks: the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), and the International Classification of Functioning, Disability and Health (ICF). Existing instruments were reviewed to inform the structure and content of the RAD questionnaire. The RAD questionnaire that was developed for field testing in Bangladesh comprised both a household questionnaire and a questionnaire for individuals within each household, with 5 sections: 1) Demographic information, 2) Assessment of functioning, 3) Awareness of rights of people with disability, 4) Well-being and quality of life, 5) Participation in the community. Prior to field-testing the RAD questionnaire in Bangladesh, a qualitative study was conducted to ensure the relevance of the questionnaire in the context of a developing country. In-depth interviews with 9 people with disability and a focus group of 8 parents of children with disability were conducted in Dhaka, Bangladesh. 

 

Results:Qualitative findings highlighted factors relevant to the lives of people with disability in Bangladesh, including discrepancies between the awareness and attainment of rights for people with disability, the wellbeing of people withdisability and their families, as well as numerous barriers to full participation in their community. While the findings confirmed that the design and content of the questionnaire reflected all these aspects, some changes were made to the items in the questionnaire to ensure that it reflected the views of people with disability from the context of a developing country.

 

Conclusion and Implications: This qualitative study was an important step in the development of the RAD questionnaire as it helped to achieve its aim - namely, to establish the prevalence of disability and to assist in the design and evaluation of disability inclusive interventions in the setting of a developing country.

Evaluation of Environmental Barriers faced by Wheelchair Users in India

DEVI, S
GOYAL, S
RAVINDRA, S
2013

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Purpose: Environmental factors restrict the extent to which people with disabilities can participate in society. The reduction of environmental barriers will increase their participation in the social, educational and vocational spheres of life. With the use of a valid and reliable tool - the Craig Hospital Inventory of Environmental Factors (CHIEF) questionnaire - this study aimed to evaluate the environmental barriers faced by wheelchair users in Bangalore city, India.

 

Method: A convenience sample of 100 wheelchair users, between 16 and 40 years of age, and working in different institutions in Bangalore, participated in the study. The CHIEF questionnaire was administered to each participant. It consisted of multiple questions pertaining to the 5 components of environmental barriers faced by wheelchair users: Accessibility, Accommodation, Resource availability, Social support and Equality. Percentage values for the responses in each component were calculated.

 

Results: The results showed that 52% of wheelchair users faced problems in Accessibility on a daily basis, and 77% of them felt the problem was big. With respect to Accommodation, 41% faced problems once a month and 50% of them felt that this was a big problem. The maximum percentage of participants did not face problems in Resource availability (43%), Social support (50%) and Equality (59%), and therefore these aspects were not felt to be a big problem.

 

Conclusion: An understanding of the environmental barriers faced by wheelchair users can provide guidance in mapping policies and strengthening laws which would help to improve their quality of life.

Effect of an Experiential Dysphagia Workshop on Caregivers’ Knowledge, Confidence, Anxiety and Behaviour During Mealtimes

HETTIARACHCHI, S
KITNASAMY, G
2013

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Purpose: Children with cerebral palsy who have associated feeding difficulties are at risk of aspiration and poor nutrition. This study aimed to measure the changes in knowledge, confidence, anxiety and behaviour among 25 Sri Lankan mothers with responsibility for feeding children diagnosed with cerebral palsy, after they attended an experiential workshop.

 

Method: Data collection was done through pre- and post-workshop questionnaires, observations and semi-structured interviews.

 

Results: There was a significant improvement in reported levels of knowledge and confidence and a decrease in the caregivers’ level of anxiety during mealtimes. The qualitative data analysis indicated changes in participant knowledge, particularly about the signs of aspiration and positioning during mealtimes. Observations showed better adherence to recommendations on communication, bolus size and utensils.

 

Conclusion: The findings support the utility of experiential training for caregivers, to ensure that children with cerebral palsy are fed safely.

DRR factsheet

UNITED NATIONS OFFICE DISASTER RISK REDUCTION (UNISDR)
UNITED NATIONS ENABLE
October 2013

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This resource presents the highlights from a UN global survey of persons living with disabilities on how they cope with disasters

Disability, CBR and inclusive development (DCID), 2013, Vol. 24 No. 3

2013

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Reviews

  • Organisations of Persons with Disabilities and Community-based Rehabilitation

Original Research Articles

  • Perceptions about Barriers to Sexual and Reproductive Health Information and Services among Deaf People in Ghana
  • The Rapid Assessment of Disability – Informing the Development of an Instrument to Measure the Effectiveness of Disability Inclusive Development Through a Qualitative Study in Bangladesh
  • Evaluation of Environmental Barriers faced by Wheelchair Users in India
  • Effect of an Experiential Dysphagia Workshop on Caregivers’ Knowledge, Confidence, Anxiety and Behaviour During Mealtimes

Brief reports

  • Use of Skype to Educate Underprivileged Blind Children in India: Motivations, Barriers and Teaching Strategies

Experiential Accounts

  • Protecting Children with Disabilities from Violence in CBR Projects: Why we need to work with a different form of child protection policy for children with disabilities
  • CBR for Inclusion of People with Mental Illness

Case Studies

The Role of Resource Information Centres in the Community Based Rehabilitation Framework

Disability, CBR and inclusive development (DCID), 2013, Vol. 24 No. 2

2013

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Original Research Articles

  • Training CBR Personnel in South Africa to contribute to the Empowerment of Persons with Disabilities
  • Exploring Knowledge and Attitudes towards HIV/AIDS among Deaf People in Ghana
  • The Application of ICF-based Functioning Data on Home Environment Adaptation for Persons with Disabilities
  • Social Skills Training of Children with Learning Disability
  • Early Care following Traumatic Spinal Cord Injury (TSCI) in a Rehabilitation Centre in Bangladesh - An Analysis
  • Effects of Multisensory Training on Balance and Gait in Persons with Type 2 Diabetes: A Randomised Controlled Trial

Brief reports

  • Speech and Language Disorders in Children with Intellectual Disability in Bosnia and Herzegovina

Case Studies

  • An Integrated Multimodal Intervention of Remedial and Adaptive Approaches in Secondary Dystonia of Hand: A Case Report

Letters to the Editor

  • Virtual Volunteerism and its Impact on International Community Development

Disability, CBR and inclusive development (DCID), 2013, Vol. 24 No. 1

2013

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Original Research Articles

  • Challenges Faced by Malaysians with Disabilities in the World of Employment
  • Risks to Client Confidentiality when Communicating Health Information to Blind and Partially Sighted Persons
  • Leprosy: Knowledge and Attitudes of Physiotherapists in Nigeria
  • Inclusive Education in Bangladesh: Are Pre-service Teachers Ready to Accept Students with Special Educational Needs in Regular Classes?
  • Factors related to Recovery and Relapse in Persons with Stuttering Following Treatment: A Preliminary Study
  • Problem Behaviour and Academic Grade Level Performance of Adjudicated Children with Juvenile Delinquency

Brief reports

  • Excluded in Inclusive Schools: Experiences of Children with Disabilities, their Families and Teachers in Sri Lanka
  • Perceptions of Primary Caregivers of Children with Disabilities in two Communities from Sindh and Balochistan, Pakistan
  • Accessibility of Students with Physical Disability to Washrooms in Bungoma Bus Terminus, Kenya

Letters to the Editor

  • Disease and Disability in the Elderly: A Call for Research
  • Disability Evaluation Related to Movement Disorders in India: A Need for Policy Revision

Disability, CBR and inclusive development (DCID), 2013, Vol. 24 No. 4

2013

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Original Research Articles

  • Impact of Community-based Rehabilitation on Persons with Different Disabilities
  • Empowerment in Community-based Rehabilitation and Disability-inclusive Development
  • Caregiver's Involvement in Early Intervention for Children with Communication Disorders
  • The Relationship Between Gross Motor Function and Quality of Life Among Children with Cerebral Palsy
  • India’s Disability Policy – Analysis of Core Concepts of Human Rights
  • Presentation and Impact of Pain in Persons with Post-Polio Syndrome: A Cross-sectional Survey Study

Brief reports

  • Barriers and Facilitators to Family-centred Paediatric Physiotherapy Practice in the Home setting: A Pilot Study

Experiential Accounts

  • Total Hip Arthroplasty Rehabilitation in Cambodia

Sustainable development in an ageing world : a call to UN member states on the development agenda beyond 2015

HELPAGE INTERNATIONAL
AARP OFFICE OF INTERNATIONAL AFFAIRS
INTERNATIONAL FEDERATION ON AGING
September 2013

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This paper responds to UN discourse and highlights that the post-2015 development framework should be inclusive of older people along with others and address the rights and needs of people of all ages. It provides recommendations to the UN Member States with regard to ageing and the post 2015 agenda

HIV-related disability in HIV hyper-endemic countries : a scoping review

HANASS-HANCOCK, Jill
et al
September 2013

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This article presents the results of the first scoping review to examine the extent, nature and range of disability among people living with HIV in HIV hyper-endemic countries. The studies indicate that people living with HIV experience a variety of disabilities. Impairments in body structure/function comprise the majority of data, with particular focus on mental function. Data on activity limitations and participation restriction were limited, however, they were recorded. They indicate severe impact on people’s life and possible adherence. The review argues that the time has come to elevate the focus holistically on health and life-related consequences of living with HIV and to integrate disability into the discussions and approaches to HIV care

World Journal of Aids, Vol 3, No 3

Policy implementation in wheelchair service delivery in a rural South African setting

VISAGIE, Surona
SCHEFFLER, Elsje
SCHNEIDER, Marguerite
2013

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Background: Wheelchairs allow users to realise basic human rights and improved quality of life. South African and international documents guide rehabilitation service delivery and thus the provision of wheelchairs. Evidence indicates that rehabilitation policy implementation gaps exist in rural South Africa.

 

Objectives: The aim of this article was to explore the extent to which wheelchair service delivery in a rural, remote area of South Africa was aligned with the South African National Guidelines on Provision of Assistive Devices, The United Nations Convention on the Rights of Persons with Disabilities and The World Health Organization Guidelines on Provision of Wheelchairs in Less-Resourced Settings.

 

Method: Qualitative methods were used. Data were collected through semi-structured interviews with 22 participants who were identified through purposive sampling. Content analysis of data was preformed around the construct of wheelchair service delivery.

 

Results: Study findings identified gaps between the guiding documents and wheelchair service delivery. Areas where gaps were identified included service aspects such as referral, assessment, prescription, user and provider training, follow up, maintenance and repair as well as management aspects such as staff support, budget and monitoring. Positive findings related to individual assessments, enthusiastic and caring staff and the provision of wheelchairs at no cost.

 

Conclusion: The gaps in policy implementation can have a negative impact on users and the service provider. Inappropriate or no wheelchairs limit user function, participation and quality of life. In addition, an inappropriate wheelchair will have a shorter lifespan, requiring frequent repairs and replacements with cost implications for the service provider.

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