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Outcome document of the high-level meeting of the General Assembly on the realization of the millennium development goals and other internationally agreed development goals for persons with disabilities : the way forward, a disability-inclusive developme

UNITED NATIONS GENERAL ASSEMBLY
September 2013

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This document presents the realization of the millennium development goals and other internationally agreed development goals for persons with disabilities through outlining the way forward, a disability-inclusive development agenda towards 2015 and beyond. It highlights related values and principles, recommendations for an ambitious disability-inclusive development strategies and efforts, and follow-up of the outcome document
A/68/L.1

Quality management of global rehabilitation services

PRYOR, Wesley
BOGGS, Dorothy
September 2013

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This seminar report outlines the proceedings and discussions of Handicap International’s seminar “Quality Management of Global Rehabilitation Services: Global Experiences, Innovations and Shaping Future Reform”. The report closely follows the structure of the seminar week, highlighting key information, contributions, discussions and recommendations from the participants.

During the seminar week, the participants from over 12 countries shared positive and challenging rehabilitation responses and analysed the quality of services, focusing upon the management and development of the workforce. Based upon their lessons learned from rehabilitation experiences, the participants then developed short-term and long-term recommendations, to be shared widely with the aim of contributing to the enhancement of global quality rehabilitation

“Quality Management of Global Rehabilitation Services: Global Experiences, Innovations and Shaping Future Reform” Seminar

Ougadougou, Burkina Faso

11–15 June 2012

Mainstreaming disability and ageing in water, sanitation and hygiene sector

JONES, Hazel
September 2013

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This report presents the findings of a desk study that provided an overview of the current state of disability and ageing issues in WASH, from the perspective of the WASH sector. Both disabled and older people were looked at together, because many frail older people, although they may reject the label ‘disabled’, experience impairments that limit their daily activities, which result in them facing similar kinds of barriers to accessing WASH

Analysis : how to make disasters less deadly for the disabled

INTEGRATED REGIONAL INFORMATION NETWORKS (IRIN)
September 2013

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This article highlights research that has shown that in disasters, people with disabilities are among the most vulnerable. If their impairment affects their ability to move or communicate, they are not only at greater risk of death, injury and isolation, but may also struggle to access humanitarian assistance and information about relief services available. In addition, communities and governments lack information about the needs and capacities of persons with disabilities, and therefore frequently exclude them from disaster plans and protocols.  The paper aims to assist initiatives that enable people with disabilities in disaster to understand ways of becoming more “resilient” as well as proposing risk reduction practices and services

Financing disaster risk reduction : a 20 year study of international aid

KELLETT, Jan
CARAVANI, Alice
September 2013

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"The international financing of DRR, representing the international community’s support to national governments in their efforts to protect development gains from disasters, is coming under increasing scrutiny. This report examines the record of the international community to date, investigating the priorities in financing of DRR, and asking questions of both the equity and adequacy of past efforts. Beyond this it points to the future of a more rational, targeted investment in risk reduction"

Policy implementation in wheelchair service delivery in a rural South African setting

VISAGIE, Surona
SCHEFFLER, Elsje
SCHNEIDER, Marguerite
2013

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Background: Wheelchairs allow users to realise basic human rights and improved quality of life. South African and international documents guide rehabilitation service delivery and thus the provision of wheelchairs. Evidence indicates that rehabilitation policy implementation gaps exist in rural South Africa.

 

Objectives: The aim of this article was to explore the extent to which wheelchair service delivery in a rural, remote area of South Africa was aligned with the South African National Guidelines on Provision of Assistive Devices, The United Nations Convention on the Rights of Persons with Disabilities and The World Health Organization Guidelines on Provision of Wheelchairs in Less-Resourced Settings.

 

Method: Qualitative methods were used. Data were collected through semi-structured interviews with 22 participants who were identified through purposive sampling. Content analysis of data was preformed around the construct of wheelchair service delivery.

 

Results: Study findings identified gaps between the guiding documents and wheelchair service delivery. Areas where gaps were identified included service aspects such as referral, assessment, prescription, user and provider training, follow up, maintenance and repair as well as management aspects such as staff support, budget and monitoring. Positive findings related to individual assessments, enthusiastic and caring staff and the provision of wheelchairs at no cost.

 

Conclusion: The gaps in policy implementation can have a negative impact on users and the service provider. Inappropriate or no wheelchairs limit user function, participation and quality of life. In addition, an inappropriate wheelchair will have a shorter lifespan, requiring frequent repairs and replacements with cost implications for the service provider.

Seeking care for epilepsy and its impacts on households in a rural district in southern Malawi

MUNTHALI, Alister
BRAATHEN, Stine H
GRUT, Lisbet
KAMALERI, Yusman
INGSTAD, Benedicte
2013

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Background: Epilepsy is a disability as defined in the 2012 Disability Act of the Government of Malawi.

 

Objectives: This article explores the health-seeking behaviour of people with epilepsy in a rural town in southern Malawi and how having a person with epilepsy impacts on the households’ productivity.

 

Method: A snowball approach was used to identify persons with various forms of disabilities. The article is based on a bigger study carried out in Malawi which explored how persons with disabilities seek health care. In this bigger study, a total of 63 interviews were done with persons with disabilities or their guardians. Eight of the 63 interviews were with persons with epilepsy and this article is based on these interviews.

 

Results: The study found that persons with epilepsy seek both traditional and modern medicines to treat the condition. Informants mentioned that barriers to accessing western treatment include lack of medicines, congestion at health facilities, lack of knowledge about epilepsy, misdiagnosis by health workers and the belief that epilepsy caused by witchcraft cannot be treated by western medicine. The study also highlights the wider impacts of epilepsy on the household such as the failure of children to attend school, children dropping out of school, stigma and discrimination and households being driven deeper into poverty as a result of seeking care for members with epilepsy.

 

Conclusion: The existing barriers to accessing treatment for epilepsy can be addressed by using a combination of public education, simple treatments and regular reviews. Ensuring constant availability of drugs for the treatment of epilepsy is key to effective treatment of the condition. This would contribute to closing the treatment gap for epilepsy as advocated by the Global Campaign against Epilepsy.
 

Spatial variation in the disability-poverty correlation : evidence from Vietnam

MONT, Daniel
NGUYEN, Cuong
August 2013

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"Poverty and disability are interrelated, but data that can disentangle the extent to which one causes the other is not available. However, data from Vietnam allows us to examine this interrelationship in a way not previously done. Using small area estimation techniques, we uncover three findings not yet reported in the literature. First, disability prevalence rates vary significantly within a county even at the district level. Second, the correlation between disability and poverty also varies at the district level. And most importantly, the strength of the correlation lessens based on district characteristics that can be affected by policy. Districts with better health care and infrastructure, such as roads and health services, show less of a link between disability and poverty, supporting the hypothesis that improvements in infrastructure and rehabilitation services can lessen the impact of disability on families with disabled members"
Working Paper Series, No 20

Inclusive disaster and emergency management for persons with disabilities : a review of needs, challenges, effective policies, and practices

RAJA, Deepti Samant
NARASIMHAN, Nirmita
2013

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This report provides an introduction into the needs of persons with disabilities in disasters and emergencies and reviews the challenges, effective policies and practices of inclusive disaster and emergency management.  It compiles international mandates and guidelines, strategies and practices for inclusive disaster management and gives an overview of the disaster and emergency management process and how persons with disabilities can be affected at each stage.  This report highlights the importance of information and communication technologies throughout the process and provides related case studies

Fiji disability inclusive community based disaster risk management toolkit

FIJI DISABLED PEOPLES ASSOCIATION
2013

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The toolkit is part of the pilot project called ‘Disability Inclusiveness in Disaster Risk Reduction Management’ in Fiji in partnership with the Pacific Disability Forum from 2011 – 2013. Fiji regularly experiences natural disasters so the toolkit was developed for the inclusion of disability within disaster management.  The toolkit is divided into three parts: part one presents an introduction to disability; part two provides detailed about disability inclusive community based disaster risk management activities in practice; and part three presents the toolbox. It is adapted from the Disability Inclusive Community Based Disaster Risk Management Toolkit for South Asia developed by Handicap International

Disability inclusion in the Syrian refugee response in Lebanon

PEARCE, Emma
July 2013

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This report presents the key findings and recommendations from a four-week field assessment conducted by the Women's refugee Commission in Spring 2013 in northern and eastern Lebanon. Key findings are shared about the situation of Syrian refugees with disabilities, and recommendations are provided to the United Nations Refugee Agency (UNHCR) and partners.

Improving health at home and abroad : how overseas volunteering from the nhs benefits the uk and the world

ALL PARTY PARLIAMENTARY GROUP ON GLOBAL HEALTH
July 2013

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"This report describes how British health volunteers help to make big improvements in health in other countries whilst at the same time benefiting the UK. It argues that even more could be achieved with better organisation and support and that more people can be involved through virtual communication as well as by actually travelling abroad"

Improving health at home and abroad : how overseas volunteering from the NHS benefits the UK and the world|Executive summary

ALL PARTY PARLIAMENTARY GROUP ON GLOBAL HEALTH
July 2013

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This executive summary presents a summary of the main report which describes how British health volunteers help to make big improvements in health in other countries whilst at the same time benefiting the UK. It argues that even more could be achieved with better organisation and support and that more people can be involved through virtual communication as well as by actually travelling abroad

Occupational therapy synergy between Comprehensive Community Based Rehabilitation Tanzania and Heifer International to reduce poverty

HANSEN, Anne Marie W
CHAKI, Albert P
MLAY, Ruth
2013

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Background: This article describes a partnership between a community-based rehabilitation organisation and a non-governmental organisation (NGO) in Tanzania. The partnership focused on income-generating (IG) activities to tackle the problems of poverty faced by families with a child with a disability (CWD).

 

Objectives: The aim of this case study was to describe the partnership between Comprehensive Community Based Rehabilitation Tanzania in Moshi (CCBRT-Moshi), a non-governmental organisation, and families to create an income-generating business, namely raising goats.

 

Method: This was a team approach between CCBRT-Moshi and Heifer International, an organisation that focuses on IG activities to create a synergy or partnership between community-based rehabilitation and IG activities.

 

Results: This partnership between occupational therapy rehabilitation services at CCBRT-Moshi and the NGO resulted in strengthening the effectiveness of occupational therapy services and leaving a more lasting impact on the people they served within the community by helping to reduce poverty in addition to providing rehabilitation and prevention interventions.

 

Conclusion: This collaboration was successful as it provided a means for families to generate income from raising goats. Although the results have not been empirically verified, observational and anecdotal evidence suggests that families with CWDs have better quality of life and ultimately improved health through this synergistic partnership.

The provision of wheeled mobility and positioning devices

GARTON, Francesca
June 2013

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This policy paper describes Handicap International’s mandate and values in operational terms as applied to the theme of provision of wheeled mobility and positioning devices. It presents the approaches and references for Handicap International’s actions, choices and commitments. It aims to ensure coherence in terms of practices whilst taking into account different contexts. Essentially this is a guidance document for programme staff which defines the topic and outlines the target populations, methods of intervention (expected results, activities) and indicators for monitoring and evaluation. This policy aims to ensure that all projects carried out by Handicap International programmes are consistent with the methods of intervention presented
PP 09

Disability associated with exposure to traumatic events: results from a cross-sectional community survey in South Sudan

AYAZI, Touraj
LIEN, Lars
EIDE, Arne Henning
JENKINS, Rachel
ALBINO, Rita Amok
HAUFF , Edvard
May 2013

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"There is a general lack of knowledge regarding disability and especially factors that are associated with disability in low-income countries. We aimed to study the overall and gender-specific prevalence of disability, and the association between exposure to traumatic events and disability in a post-conflict setting. We conducted a cross-sectional community based study of four Greater Bahr el Ghazal States, South Sudan (n = 1200). The Harvard Trauma Questionnaire (HTQ) was applied to investigate exposure to trauma events. Disability was measured using the Washington Group Short Measurement Set on Disability, which is an activity based scale derived from the WHO’s International Classification of Disability, Functioning and Health. The estimated prevalence of disability (with severe difficulty) was 3.6% and 13.4% for disability with moderate difficulties. No gender differences were found in disability prevalence. Almost all participants reported exposure to at least one war-related traumatic event. The result of a hierarchical regression analysis showed that, for both men and women, exposure to traumatic events, older age and living in a polygamous marriage increased the likelihood of having a disability. The finding of association between traumatic experience and disability underlines the precariousness of the human rights situation for individuals with disability in low-income countries. It also has possible implications for the construction of disability services and for the provision of health services to individuals exposed to traumatic events"

 

BMC Public Health, 13:469

Reflecting on education for sustainable development through two lenses : ability studies and disability studies

WOLBRING, Gregor
BURKE, Brigid
May 2013

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The call for papers asked to cast “a critical eye on the practice and purpose of sustainability-focused education, and its successes and failures, thus far”. We approach this task in this paper through two lenses that have not yet been very visible in the education for sustainable development (ESD) discourse. One is the lens of disability studies which is the inquiry around the lived reality of disabled people; the other is the lens of ability studies which among others investigates (a) which abilities are seen as essential in a given context; (b) the dynamic of how an ability expectation consensus is reached, if it is reached and (c) the impact of ability expectations. We conclude that (a) no consensus has been reached within ESD discourses as to the process of how to identify essential abilities and as to a list of abilities seen as important and (b) that disabled people are invisible in the formal and informal ESD discourse. We expect the paper to be of interest to disabled people, ESD scholars, teachers of ESD in different educational settings, students of ESD training, NGOs involved in ESD as well as policy makers involved in ESD.

Statement of the committee on the rights of persons with disabilities on including the rights of persons with disabilities in the post 2015 agenda on disability and development

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (UNHCHR)
May 2013

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This statement, issued by the Committee on the Rights of Persons with Disabilities, supports the inclusion of the rights of persons with disabilities in the post-2015 agenda on disability and development. The statement calls upon the international community to recognize that development goals in the post-2015 agenda, in order to be sustainable, should be rooted in a human rights-based approach and take into account the enjoyment by all persons with disabilities of their civil, political, economic, social and cultural rights

Disaster risk management for all : for the inclusion of children, elderly people and people with disabilities

FEDERAL MINISTRY FOR ECONOMIC COOPERATION AND DEVELOPMENT (BMZ)
World Food Programme
GIZ sector programmes
Eds
May 2013

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This publication explains the links between disasters, disaster risk management and particularly vulnerable sections of the population including children, elderly people and people with disabilities.  It gives an overview of the experience to date and provides some practical suggestions on how to meet the needs of all people on an equitable basis through disaster risk management.  Specific activities to strengthen inclusive disaster risk management are provided in this guide for all vulnerable groups

BMZ Information Brochure 1, 2013e

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