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Global Report on Children with Developmental Disabilities: from the margins to the mainstream

WORLD HEALTH ORGANISATION (WHO)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
September 2023

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This WHO-UNICEF Global Report is a call for action to intentionally include children and young people with developmental disabilities in renewed global and country level efforts to enable transformations towards the SDGs.  It proposes priority actions to accelerate individual-, family-, community-, and society-level changes to achieve inclusion and health equity. The report makes the case for greater investment and accountability to build inclusive and responsive multisectoral care systems for children and young people with developmental disabilities. Using findings from research and practice and guided by the tenets of international human rights conventions, the report provides key insights into the state of knowledge, policy, programming, and public monitoring in respect of developmental disabilities.

Combatting the costs of exclusion for children with disabilities and their families

MONT, Daniel
UNICEF
March 2021

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Compared with other children, children with disabilities are less likely to receive an education, less likely to be employed as adults, more likely to be victims of violence, less likely to start their own families and participate in community events, and more likely to live in poverty. 

The exclusion of children with disabilities affects not only them, but imposes costs on the whole community. If these children lack the opportunity to be productive, society loses out on what they could have produced.  The barriers faced by people with disabilities can also create more responsibilities for their family members, which can limit their opportunities to work or get an education.

Moreover, the impact of exclusion extends beyond the economic cost. If people with disabilities are absent from public discourse, the community cannot benefit from their ideas. If they are excluded from political participation, the government cannot truly represent the interests of all citizens. 

A growing body of research suggests that the costs of exclusion are high. Fortunately, evidence also demonstrates that there are effective ways to ameliorate these costs. A strong case can be made for the social and economic benefits of inclusion. This paper is an effort to begin making that case.

 

Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Take us seriously! Engaging children with disabilities in decisions affecting their lives

LANSDOWNE, Gerison
et al
June 2013

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UNICEF’s work on disability is based on a human rights approach, with a focus on equity. It has been developed within the framework of inclusive development, and actively promotes the social model of disability. A central tenet is that legislation, policies and programmes must be informed and shaped by the children they will affect. Participation is a foundational principle of a rights-based approach. These guidelines are meant to strengthen the capacity of UNICEF and partners in creating opportunities for children with disabilities to exercise their right to be heard and taken seriously.

It is important to:

  • clearly identify obstacles impeding the participation of children with disabilities;
  • examine why participation is important for children with disabilities;
  • provide practical guidance on how and where to reach out and engage children with disabilities more effectively and systematically;
  • prioritize ways to measure the effectiveness of participatory initiatives with children with disabilities. 

The state of the world’s children 2013 : children with disabilities

THE UNITED NATIONS CHILDREN’S FUND (UNICEF)
May 2013

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This report examines "the barriers from inaccessible buildings to dismissive attitudes, from invisibility in official statistics to vicious discrimination - that deprive children with disabilities of their rights and keep them from participating fully in society. The report also lays out some of the key elements of inclusive societies that respect and protect the rights of all children, regardless of disability, and progress in helping all children to flourish and make their contribution to the world"

Advocacy toolkit : a guide to influencing decisions that improve children’s lives

COHEN, David
et al
2010

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This toolkit "provides a broadly accepted definition of advocacy and underscores UNICEF’s unique position and experience in advocacy. The heart of the Toolkit provides detailed steps, guidance and tools for developing and implementing an advocacy strategy. The Toolkit also outlines eight foundational areas that can help strengthen an office’s capacity for advocacy, and covers several crosscutting aspects of advocacy including monitoring and evaluating advocacy, managing knowledge in advocacy, managing risks in advocacy, building relationships and securing partnerships for advocacy and working with children and young people in advocacy. Special focuses examine a variety of specific topics, including human rights and equity approaches to advocacy, theories of change, and conducting advocacy in humanitarian situations"

Will you listen? : young voices from confilct zones

OFFICE OF THE SPEICAL REPRESENTATIVE OF HTE SECRETARY-GENERAL FOR CHILDREN AND ARMED CONFLICT
et al
October 2007

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This document compiles the views and recommendations of some 1,700 children and young people in 92 countries. Most (1,385) of them participated through 125 focus groups in countries recently or currently affected by armed conflict; an additional 385 responded to an online survey. Respondents include children who have themselves experienced conflict. First-person accounts in direct quotation (called ‘Our voices’) expound on such themes as ‘We live in violence’, ‘We lose our homes and those we love’, ‘We struggle to survive’ and others. Alongside runs a summary of issues and children’s concerns expressed from their point of view but not in direct quotation. A background note lists the focus groups and online questions. In addition, several tables describe participants in each format by age, gender and region or country

The state of the world's children 2006 : excluded and invisible

UNITED NATIONS CHILDREN'S FUND (UNICEF)
2005

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The 2006 UNICEF report focuses on children who are 'excluded' or 'invisible', and is an assessment of the world's most vulnerable children. These are the children, that even if the Millenium Development Goals are met, will be left out. They are the ones who are currently beyond the reach of laws, programmes, research and budgets. The report states that children in four circumstances are most likely to become invisible and forgotten: children without a formal identity, children without parental care, children in adult roles and children who are exploited. For example, children who are not registered at birth do not appear in official statistics and are not acknowledged as members of their society. Discrimination on the basis of gender, ethnicity and disability are also factors in the exclusion of children. The report outlines concrete actions that can be taken by civil society, the private sector, donors and the media to help prevent children falling between the cracks

We the children : meeting the promises of the World Summit for Children

UNITED NATIONS CHILDREN'S FUND (UNICEF)
September 2001

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The report assesses progress to date in meeting the commitments made to the children around the world at the 1990 World Summit for Children. It also includes best practices and lessons learned, obstacles to progress, and a plan of action for building a world fit for children. It will be particularly useful to policy-makers, researchers, journalists and students as a reference tool and as an example of the progress that can be achieved through goal-oriented development planning

A summary of the rights under the Convention on the Rights of the Child

UNITED NATIONS CHILDREN'S FUND (UNICEF)

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The Convention on the Rights of the Child was the first instrument to incorporate the complete range of international human rights, including civil, cultural, economic, political and social rights as well as aspects of humanitarian law. UNICEF has published this 'plain language' document as a guide to the Convention on the Rights of the Child. The Convention recognises a child as a person below the age of 18. Specific articles relate to early childhood development, such as article 7 on the right to a legally registered name, article 8 on the right to an identity and article 30 on the right of minority or indigenous children to learn about and practice their own culture, language and religion.

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