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Developing the Content of a New Quality of Life Questionnaire for Children with Hearing Loss

RAJ, L J
SWARNAKUMARI, P
MARTINA, T
2014

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Habilitation and rehabilitation call for a paradigm shift from the traditional intervention programmes which focus on physical functioning to programmes that include aspects of physical, psychological and social wellbeing.

 

Purpose: To develop a quality of life instrument, using focus group discussions to assess the outcomes of interventions for school-going children with hearing loss.

 

Methods: Separate focus group discussions were held with children with hearing loss between 8 and 18 years of age, special educators and mothers. Focus group discussions were conducted separately for boys and girls. Each focus group had 8–10 participants. In-depth interviews were conducted with the heads of institutions and rehabilitation professionals. Fathers had to complete self-administered questionnaires. The focus group discussions were guided by topics and probes drawn from literature reviews, and were audio recorded, transcribed and analysed.

 

Results: Around 421 problem statements were classified under 7 themes: Educational implications; Social integration; Psycho-social wellbeing; Family relationships; Speech, language and communication; Leisure and recreation; and General functioning. Education and career aspirations were considered to be most important. The problem statements revealed that the primary focus of training was on improving academics. Integration and feeling comfortable with social situations were cited as limitations; as also, the preference for friendship with people of similar abilities. For the majority of children, leisure and recreation was limited to watching television. Parents and siblings were considered vital to their progress and achievements.

 

Conclusions: Multidimensional and varied perspectives of different stakeholders, especially family members, are necessary for a comprehensive analysis of the impact of hearing loss on the quality of life of school-going children.

 

Conduct an accessibility audit in low and middle income countries

NOUVELLET, Hugues
June 2014

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This guide aims to assist professionals in conducting an accessibility audit, and is aimed at Handicap International professionals who have responsibility for developing, implementing or analysing accessibility activities. Within the framework of inclusive local development, an accessibility audit is a complex, substantial and technical process to implement involving a large number of different stakeholders, increase time preparation and technical specialised skills for making recommendations to remove barriers. An accessibility audit is a participatory democracy exercise which can be used as the basis to form relationships between stakeholders in a municipality accessibility commission or even a municipality commission for inclusive development, who will have responsibility for suggesting, studying, organising and implementing actions to improve accessibility

The psychosocial impact on standing devices

NORDSTRÖM, Birgitta
NYBERG, Lars
EKENBERG, Lilly
NÄSLUND, Annika
2013

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Purpose:

The aim of this study was to explore the psychosocial impact of standing devices as experienced by users. 

 

Method:

This is the second part of a comprehensive survey in five counties in Sweden where all the subjects with standing devices were invited to participate. The impact of standing devices on functional independence, quality of life and wellbeing was assessed using a questionnaire, Psychosocial Impact of Assistive Devices Scale (PIADS).

 

Results:

The psychosocial impact of the standing devices was perceived as positive. The highest PIADS scores in relation to age were found in the oldest group, aged 65 years and older. The ability to walk and independence in ambulation resulted in higher scores than the use of a wheelchair and/or dependence on others. Those who stood often awarded higher scores in the PIADS questionnaire compared to those who used the device less frequently. When standing was integrated in various activities, its psychosocial impact received high scores. 

 

Conclusion:

The psychosocial impact of standing devices was generally experienced positively. The main results indicated that standing in a standing device had a value and we as professionals should ask the users about the intended purpose of their standing in order to prescribe the optimal device.

Quantitative Exploratory Evaluation of the Frequency, Causes and Consequences of Rehabilitation Wheelchair Breakdowns delivered at a Paediatric Clinic in Mexico

TORO, M L
GARCIA, Y
OJEDA, A M
DAUSEY, D J
PEARLMAN, J
2012

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Purpose: The United Nations Convention on the Rights of Persons with Disabilities recognises assistive technology such as wheelchairs (WCs) as a tool for social inclusion for this population. In less resourced settings, organisations lack information about effective models of WC service provision. The goal of this study was to investigate the lifespan of WCs and whether they provided reliable mobility, at one clinic in Mexico.

 

Methods: Caregivers of children, who had requested replacements for their WCs from a clinic in Mexico, were interviewed in Spanish. Among others, the questions pertained to repairs/modifications, adverse events and WC usage characteristics. The owners exchanged their WCs for new ones at the clinic, and the maintenance status of each returned WC was evaluated using the WC Assessment Checklist (WAC).

 

Results: Twenty-three donated WCs, used by children aged 3 to 14 years for an average of 19 months, were evaluated. Brakes (n=18), seat and back-sling upholstery (n=11 and 7 respectively), and armrests (n=14) were the components that failed most frequently. A total of 26 adverse events due to WC failure were reported. Adverse events were significantly associated with poor WAC scores (rs=-0.544, p=0.007).

 

Conclusions: Poor WC reliability, associated with adverse events which could undermine social engagement, indicates the need for a stronger WC and for regular maintenance. For instance, brake failures which were most often associated with adjustment issues, could have been resolved with maintenance, while seat and back-sling upholstery and armrest failures suggest that the WC may not be appropriate for the environment. Future work should investigate the robustness of these WCs using standardised methods (ISO 7176), as well as the impact of maintenance interventions on WC reliability.

"Out of the shadows" : a qualitative study of parents’ and professionals’ attitudes and beliefs about children with communication disability in Uganda and how best to help them

MCGEOWN, Julia
September 2012

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"Communication forms the basis of human life and the complex ways with which humans can communicate and interact with each other sets us apart from all other species. However, not all humans are able to communicate effectively due to a range of communication impairments. The overall aim of this study is to generate solutions and recommendations to remove any barriers preventing these children from communicating effectively and potentially to improve their quality of life"
Dissertation submitted in part fulfilment of the requirements for a Masters degree at the Centre for International Health and Development (CIHD) at University College London (UCL) Institute of Child Health (ICH)
The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

The provision of wheeled mobility and positioning devices

GARTON, Francesca
URSEAU, Isabelle
July 2012

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This policy brief provides an overview of Handicap International’s 2012 policy paper on the provision of wheeled mobility and positioning devices (WP&MD) for people with disabilities
PP Brief No 9
Note: this policy should be read in conjunction with Handicap International’s rehabilitation policy paper which provides a broad framework for understanding the organization’s work on rehabilitation, including WP & MD

Assistive Technologies in a Workplace Environment: Barriers for the Employment of People with Disabilities

JAKOVLJEVIC, M
BUCKLEY, S
2011

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Purpose: The employment equity policies and implementation of technology- specific guidelines within the South African ‘Code of Good Practice on the Employment of People with Disabilities’, was created to encourage employment equity for employees with disabilities, by companies in Johannesburg.

 

This study reports on the results of the investigation in assistive technologies in a workplace environment, and barriers for the employment of persons with disabilities in the South African environment.

 

Method: Qualitative data, collected from two retail and service companies in the form of semi-structured individual and focus group interviews, was analysed using a constant comparative method, identifying major themes and sub-themes.

 

Results: A surprisingly small number of persons with disabilities were found to be employed by participating companies, which tended not to focus on these people when formulating their policies and plans. In addition, technological aspects of the Code were largely unacknowledged, with little effort being made to accommodate the needs of persons with disabilities. An even lower incidence of assistive technology usage was found, along with a large number of conceptual and perceived barriers that hinder the employment of persons with disabilities and the implementation of appropriate technology.

‘Welcome to My Life!’ Photovoice: Needs Assessment of, and by, Persons with Physical Disabilities in the Kumasi Metropolis, Ghana

TIJM, M M
CORNIELJE, H
EDUSEI, A K
2011

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Persons with physical disabilities face many architectural and social barriers to community participation. This research employed the ‘Photovoice’ method. The aim was to gain insight into the daily lives of persons with physical disabilities, and to assess their needs in the Kumasi metropolis. Participants in this study were trained and instructed to photograph their everyday activities, so as to document their struggles and concerns, to promote critical dialogue and to reach policymakers. Results indicated a number of concerns, such as poor accessibility to public toilets, transport and buildings, as well as a need for attitudinal change and equal opportunities. Other needs which were raised by theparticipants included economic empowerment, marketable vocational training, accident prevention, affordable and quality rehabilitation, and the establishment of emergency shelters. It was concluded that the most pressing needs of persons with disabilities were related to overall social, employment and accessibility issues. Finally, the ‘Photovoice’ methodology offered a suitable, structured, and participatory way to assess the needs of persons with disabilities. It gave this marginalised group a voice through photographs, and formed an excellent way of disseminating the findings of this study to the stakeholders involved.

ICTs in education for people with disabilities

WATKINS, Amanda
TOKAREVA, Natalia
TURNER, Marcella
2011

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This is "a report presenting concrete examples of practice of the use of Information and Communication Technology (ICT) with people with disabilities in different educational contexts and settings. In particular, the review was targeted at considering examples of practice that can be considered to be ‘innovative’ within the specific educational setting and wider societal context they were situated within...The aims of this Practice Review are to use the collected examples in order to: highlight a range of different purposes for using ICT in education for people with disabilities, identify possible key messages for policy and practice in this area"

Access to drinking water for people with disabilities in the town of Tenkodogo (Burkina Faso)

DIMBARRE KPEHOUNTON, Cathy
SERGE, Dao Moussa
2011

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“Since 2001, local NGO Dakupa,with the support of WaterAid, began to implement a water, sanitation and hygiene (WASH) project in several urban municipalities in the Central East region of Burkina Faso. In line with the principles of equity and inclusion, the objective of this project was to improve access to WASH services for people with disabilities (PWD) through the construction of accessible water points and latrines. To date, about ten wheelchair accessible standpipes have been constructed in places such as the town of Tenkodogo, the subject of this study”

Case study 11

South African national HIV prevalence, incidence, behavior and communication survey 2008 : turning a tide among teenagers ?

SHISANA, O
et al
2009

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"South Africa has the largest burden of HIV/AIDS and is currently implementing the largest antiretroviral treatment (ART) programme in the world. It is therefore fitting that South Africa is the first in the world to conduct three repeated national HIV population-based surveys to help monitor our response as a nation to the HIV/AIDS epidemic. This report is the third in a time series of population-based HIV seroprevalence surveys which started in 2002 and were repeated in 2005 and again in 2008"

4th all Africa wheelchair congress report|Theme : advancing appropriate wheelchair services for Africa

THE PAN AFRICA WHEELCHAIR BUILDERS ASSOCIATION (PAWBA)
The Tanzanian Training Centre for Orthopaedic Technologists (TATCOT)
2007

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This report summarises the findings of the 4th All Africa Wheelchair Congress the theme of which was to assess how to advance appropriate wheelchair services across the African continent. This report explores a range of key topics including: impact of wheelchairs on quality of life; partnership for appropriate wheelchair services (from a global and African perspective); wheelchair technology training; wheelchair services and poverty reduction strategy; conventions and guidelines; and capacity building
4th All Africa Wheelchair Congress Report
Uhuru Hotel, Moshi
17-21 September 2007

Liverpool school of tropical medicine : Malaria knowledge programme. Annual report 2003-2004 : reduction in the suffering by improving the management of malaria through better intervention and control of malaria.’

LIVERPOOL SCHOOL OF TROPICAL MEDICINE (LSTM)
2004

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The report shows the overall activities of the Malaria Knowledge Programme during 2003-2004. It initially outlines the research activities and the new knowledge outputs. Using a framework developed by Liverpool School of Tropical Medicine's Vulnerability and Health Alliance the report contains an evaluation of the implications and effects of the research findings on those most vulnerable to the effects of malaria

Evaluation and utilization of traditional methods of communication in Cameroon's central, southern, eastern and extreme northern regions : case study 20

FOOD AND AGRICULTURE ORGANIZATION (FAO). Communication for Development Group
August 2003

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This study's main objectives are to evaluate traditional means of communication; to note their constraints; to select the traditional methods which can best be used for the diffusion of information and to devise a strategy for implementing the selected method of traditional communication. The methodology of this survey is based on the Active Method of Participative Research.
The study illustrates that the traditional media for communication in Cameroon are: the gong and songs accompanied by dances (in all of the surveyed provinces); the xylophone (in the center and south); griot [travelling poet] and balafon (in the east); colleagues of the traditional chiefs (Lawanes, Djaoros); and messengers of traditional chiefs or muezzins (extreme north).There are numerous constraints to using individuals in devising communications strategies: a lack of trained musicians, the lack of initiative on the part of the village elders, the disinterest of the youth, conflict among the different generations, the proliferation of modern communications technologies, the complexity of training in various methods, the possible alteration of messages, a lack of motivation and the slow speed of transmission. The study notes that the best methods for the diffusion of information in the regions surveyed in Cameroon are: the gong, the colleagues and messengers of traditional chiefs to organize village meetings in which reproductive health issues could be raised, singing and dancing, travelling poets and xylophones.
In order to devise effective strategies for conveying messages about reproductive health through these traditional methods of communication, traditional authorities must be engaged early on in the process and informed of the importance of these means of communication; qualified individuals must be identified as resources and others trained; and a training of trainers must be conducted

Revisiting the "magic box" : case studies in local appropriation of information and communication technologies (ICTs)

BATCHELOR, Simon
O’FARRELL, Clare
2003

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This book looks at the way communities and groups in developing countries are appropriating information and communication technologies (ICTs) to address their needs. It finds that ICTs are being integrated into wider community-based activities and adapted to fit different contexts. It follows on from the paper "Discovering the Magic Box". It finds that there are still few examples of community-driven and locally appropriated ICT initiatives and an absence of standards or guidelines to evaluate ICT-based projects. The book includes some analytical frameworks and indicators to identify good practice and evidence of impact A significant development has been in the growth of telecommunications, in particular mobile phones, that are relatively cheap and powerful tools for poor communities, even in remote areas. The book concludes that the power of oral communication through telephones and radio cannot be underestimated. The book proposes that the main challenge is to adapt the new, usually computer-based ICTs to the needs of poor, predominantly oral-based communities so that they can be appropriated effectively and quickly

The significance of information and communication technologies for reducing poverty

MARKER, Phil
MCNAMARA, Kerry
WALLACE, Lindsay
January 2002

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A study for DFID staff, and for policy consideration, about the role of ICT in development. Identifies and assess the links between information and poverty, and concludes that although spreading ICT ('bridging the digital divide') should not be an end in itself, there is enormous potential for ICTs to increase information flow and empower poor people. The study then discusses the potential role of the international community, and sets out specific recommendations for DFID. Includes several appendices containing: a bibliography; brief case studies of Chile, Costa Rica and India; and list of related DFID funded projects. The study concludes that ICT should not be viewed as an end itself but has the potential as a tool to increase information flows and empower people. It can play a part in achieving International Development Goals

Information communications technology for development

EVALUATION OFFICE. UNDP
September 2001

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This helpful resource outlines monitoring and evaluation issues in the emerging field of information and communication technology (ICT) for development. It includes three sections: concept, lessons learned, and recommendations. Though written with an eye to the future, it is grounded in evaluative evidence and case-study research. It seeks to provide the development practitioner with evidence-based insights, synthesised from across a wide range of ICT for development initiatives undertaken by UNDP and partners, and presented as a selection of generic challenges and lessons learned

Recording and using indigenous knowledge : a manual

International Institute of Rural Reconstruction (IIRR)
1996

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A practical, user-friendly manual that describes how to record indigenous knowledge together with local people. It includes ten case studies and questions guides on more than 20 development issues - mainly agricultural, but including water and sanitation. Well illustrated, it emphasises working in a participatory mode and adapting techniques to suit local conditions. It is seen as useful for professionals, field staff and students in all fields of development work. The format allows easy copying for use in training

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