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Are persons with disabilities included in the effort to leave no-one behind? Mapping disability data in development in Asia and the Pacific

CBM GLOBAL’S INCLUSION ADVISORY GROUP
February 2022

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In the Asia Pacific region, UNFPA and partners work together to implement the Incheon Strategy to “Make the Right Real” for Persons with Disabilities. The Incheon Strategy is the region’s first set of disability-specific development goals to track progress towards the fulfilment of rights of persons with disabilities.

In the region, it is estimated that there are over 650 million persons with disabilities. However, without accurate, timely and disaggregated data, countries are unable to develop effective policies and programmes, monitor the wellbeing of persons with disabilities and evaluate the equity and impact of development efforts. This endangers country commitments to ‘leave no one behind’ and undermines their obligations to the Convention on the Rights of Persons with Disabilities.

This groundbreaking report demonstrates the importance of ensuring data is inclusive and provides recommendations for immediate action in order to improve the collection, analysis and reporting of disability data

Mixed-Methods Programme Evaluation of Disability Equality Training (DET) in Mongolia

Higashida, Masateru
Gereltuya, Ganbayar
Altanzul, Gantaikhuu
2020

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Purpose: An evaluation of a disability equality training (DET) programme, based on the social model of disability, was conducted to explore the changes in the participants’ attitudes and behaviours in Ulaanbaatar, Mongolia.

 

Methods: This study is composed of two parts. First, the participants’ attitude changes during DET sessions were examined through a descriptive quantitative and qualitative analysis of questionnaires and related documents. Second, thebehavioural changes at the organisational and individual levels, the impact on society, and related factors were explored by quantitative and qualitative analysis of good practice cases: 39 participants were selected through purposive sampling and semi-structured interviews were conducted.

 

Results: It was found that most participants adopted the social model perspective within these sessions. A qualitative content analysis of the good practice cases also found that the majority of participants attempted to change their social environments after the sessions. Thematic analysis identified promotional factors, such as within-organisation dynamics and compatibility and barriers at the individual and organisational levels, which were associated with participants’ behaviours after DET sessions.

 

Conclusion: The implications of these findings are discussed in connection with the strategic implementation of DET to promote disability-inclusive development. Future studies should examine the effectiveness of a strategy by considering the factors identified in this study and by using a reliable sample in various settings where DET sessions are conducted.

Promoting Inclusive Education in Mongolia

SHELZIG, Karin
NEWMAN, Kirsty
November 2020

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This paper explores inclusive education for children with disabilities in Mongolia in line with the global commitment captured in SDG 4, based on data from a 2019 survey of more than 5,000 households in Ulaanbaatar, and 4 provinces.

 

ADB EAST ASIA WORKING PAPER SERIES No.28

Assistive Technology Capacity Assessment (ATA-C) Survey Mongolia

Sunil Deepak
April 2020

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An Assistive Technology Capacity Assessment (ATA-C) survey in Mongolia in 2019. This survey was the first step in the effort to improve and strengthen the Assistive Technology (AT) services in the country, as part of the action following the resolution 71.8 of the World Health Assembly (WHA) in May 2018. WHO’s ATA-C survey has 4 questionnaires, these were translated and field tested in Mongolia. In collaboration with Tegsh Niigem, a Mongolian NGO, the major stakeholders involved in policy, acquisition, procurement, production and distribution of assistive products in the country were interviewed and compiled the WHO questionnaires. All together 47 persons were interviewed. This report presents the key findings from this survey.

Barriers Faced by Young Adults with Disabilities in Ulaanbaatar, Mongolia Report of a Community-Based Emancipatory Disability Research (CB-EDR)

Sunil Deepak
February 2020

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An Emancipatory Disability Research in Mongolia was carried out as part of a project aimed at promoting independent living among young adults with disabilities living in the national capital Ulaanbaatar (UB). It was focused on young adults with disabilities living in the 9 districts of UB and was seen as a part of the process which provides information and skills to persons for independent living. It was based on the social model of disability - it looked at the different ways in which the society creates disabling barriers which block or make difficult the participation of persons with disabilities in the different domains of life. The idea of conducting the emancipatory research came from an interaction between some Mongolian DPOs and Tegsh Niigem, a Mongolian NGO active in the areas of rehabilitation, who then asked AIFO-Italy for technical support to conduct it. EDR in Mongolia was implemented through a new approach called a “Community-Based Emancipatory Disability Research” (CB-EDR). A group of young persons with different disabilities were identified as volunteer-researchers by their DPOs, trained and then supported to carry out research in 12 broad areas which they had identified, over a period of 18 months. The researchers, individually or in small groups, carried out research on one theme at a time by collecting information about it from the field. They met periodically to share and discuss the findings of their research and to build a common understanding about the key issues related to the selected theme, and what could they do to overcome the barriers they had identified.

Environmental Accessibility Assessment for People with Vision, Hearing and Speech Disabilities in Mongolia

BATDULAM, Tumenbayar
CHIMEDSUREN, Оchir
URANCHIMEG, Davaatseren
ENKHTSETSEG, Byambaa
2019

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Purpose: The main objective of this paper was to assess environmental accessibility for people with vision, hearing and speech disabilities in Mongolia, with particular focus on public buildings and public transportation.

 

Methods: A standardised internationally-used questionnaire, consisting of 29 questions, was used for the accessibility of public buildings assessment.  The questionnaire results were grouped into categories and descriptive statistics were obtained. To determine quality and accessibility to public transportation a standardised sheet, consisting of 51 questions from the internationally accepted SERVQUAL, was used. This model is commonly used for measurement of the discrepancies between actual performance and customer expectations.

 

Result: Assessment of public buildings in Mongolia revealed that they were moderately accessible for people with vision, hearing and speech disabilities. The assessment of public transportation found that the discrepancy between actual performance and customer expectation is the highest across all indicators for people with hearing and speech impairments.

 

Conclusion: The research findings indicated a strong need to pay closer attention to the current environmental unfriendliness and inaccessibility faced by people with vision, hearing and speech disabilities.

Disability, CBR and inclusive development (DCID), Vol 30, No 3 (2019)

2019

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Original Research Articles

  • Quality of Life of Persons with Disabilities in Southern Nations, Nationalities, and Peoples’ Region, Ethiopia
  • Health-Related Quality of Life of Wheelchair Fencers, Sedentary People with Disability and Conventional Fencers in Brazil, Assessed by Short Form 36 (SF-36)
  • Environmental Accessibility Assessment for People with Vision, Hearing and Speech Disabilities in Mongolia
  • Impact of Exercise Training on Depression among People with Type 2 Diabetes Mellitus: A Narrative Review
  • Intersections of Disability and Gender in Sports: Experiences of Indian Female Athletes
  • ‘Enabling Access’: A Pilot Study on Access and Use of Assistive Products in the Northern Province, Sri Lanka

 

Brief reports

  • Happiness and Resilience among Young Physically Disadvantaged Employees in India: A Pilot Study
  • Barriers Faced by Persons with Disabilities in Formal Employment in India

World Health Organization global disability action plan: The Mongolian perspective

KHAN, Fary
et al
April 2018

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The aim of this literature review and research was to provide an update on disability and rehabilitation in Mongolia, and to identify potential barriers and facilitators for implementation of the World Health Organization (WHO) Global Disability Action Plan (GDAP). A 4-member rehabilitation team from the Royal Melbourne Hospital conducted an intensive 6-day workshop at the Mongolian National University of Medical Sciences, for local healthcare professionals (n=77) from medical rehabilitation facilities (urban/rural, public/private) and non-governmental organizations. A modified Delphi method (interactive sessions, consensus agreement) identified challenges for rehabilitation service provision and disability education and attitudes, using GDAP objectives

 

Journal of Rehabilitation Medicine, Volume 50, Number 4, April 2018, pp. 358-366(9)

https://doi.org/10.2340/16501977-2207
 

The Role of Community Health Workers in the Mongolian CBR Programme

COMO, E
BATDULAM, T
2012

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Purpose: This article aims to present the role of community health workers in the implementation of a comprehensive CBR Programme in rural Mongolia, and to explore the main challenges that arise in this specific geographical and socio-economic context.

 

Methods: Qualitative data were collected through semi-structured interviews with CBR workers from three selected provinces; short meetings and interviews with respective provincial level CBR coordinators complemented the information acquired. Additionally, a workshop with national level CBR stakeholders was carried out in order to review and discuss the findings.

 

Results: The study highlighted a number of practical barriers (including long distances and lack of transportation, low population density, and harsh climate conditions) which constrain the work of community health workers in the areas studied. In relation to disability, the study shed light on the difficulties found by community workers in shifting from a medical approach to disability to a new approach that emphasizes prevention and rehabilitation. Exploring interviewees’ experience in the five areas of CBR (health, education, livelihood, social, empowerment) the authors found that working in the areas other than health is perceived as difficult due to insufficient training as well as objective contextual barriers.

 

Conclusions: Despite many challenges, CBR represents a significant improvement for disability action in rural Mongolia. In this context, the local community health workers are well suited and willing to act as CBR workers; nonetheless, more training and some tailoring work to adapt the Programme to the context is needed if all potential results are to be achieved.

 

Limitations: This study did not include direct observation of CBR activities or consultation of beneficiaries and other stakeholders. Their involvement and consultation would certainly improve the understanding of all the issues raised.

Disability, CBR and inclusive development (DCID), 2011, Vol. 22 No. 1

2011

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Original Research Articles

  • Quality of life, perceived stigma, activity and participation of people with leprosy-related disabilities in south-east Nepal
  • The face of disability in Nigeria: a disability survey in Kogi and Niger states
  • The communication deall developmental checklist - inter rater reliability
  • ‘Welcome to my life!’ photovoice: needs assessment of, and by, persons with physical disabilities in the Kumasi metropolis, Ghana
  • Rehabilitation services for persons affected by stroke in Jordan
  • CBR matrix and perceived training needs of CBR workers: a multi-country study

 

Brief reports

  • impact of micro credit scheme for persons with physical disabilities in Herat, Afghanistan.
  • impact of physical therapy on burden of caregivers of individuals with functional disability
  • perceptions of parents of typical children towards inclusive education

 

CBR matrix and perceived training needs of CBR workers: a multi-country study

DEEPAK, Sunil
2011

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CBR Matrix, proposed in the CBR Guidelines, provides a systematic framework for organising and analysing CBR activities. A sample of experienced CBR workers, active at community level in 7 countries , were asked for information about different activities they actually carry out, so as to understand the applicability of CBR Matrix framework in the field. The CBR workers were also asked to identify their most pressing learning needs in different areas of CBR Matrix.

This study shows that CBR Matrix can be a useful framework to understand field-level activities in CBR projects. The study has identified a number of priority learning needs, in terms of different domains of CBR Matrix, and in terms of different disabilities. It also shows that globally, areas related to advocacy, lobbying, legal protection and rights-based approach, are the most important learning needs identified by CBR workers.

Training manual on disability statistics

UNITED ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP)
WORLD HEALTH ORGANISATION (WHO)
2008

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This training manual enhances "the understanding of the International Classification of Functioning, Disability and Health (ICF) based approach to disability measurement. It provides an overview of the ICF framework as well as guidelines on how to operationalise the underlying concepts of functioning and disability into data collection, dissemination and analysis." This manual is useful for anyone who is interested in disability data collection and dissemination for both national and international disability policy analysis, formulation and evaluation

Comparing disability questions for censuses and surveys in Asia and the Pacific

SMIT, Jan
LIU, Wei
February 2007

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“"This paper compares the construct and predictive validity of a set of disability questions tested on a sample of respondents in five Asia-Pacific countries. It finds that the construct validity of the Washington Group questions for the seeing, hearing, mobility and self care domains is good when WHO questions for the corresponding domains are used as a benchmark; this does not, however, apply to the questions for the cognition and communication domains. The Washington Group questions perform similar to corresponding WHO questions in terms of predictive validity. For the four models examined - explaining difficulty with household responsibilities, work and school, and joining community activities, as well as employment status - the different question sets perform similar in terms of significance and magnitude of the odds ratios"

Disability at a glance : a profile of 28 countries and areas in Asia and the Pacific

UNITED NATIONAL ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP)
2006

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This publication provides "...disability-related data and policy-related information so that readers are able to see in detail how a particular country or area defines disability and collects related statistics, and implements the Biwako Millennium Framework, in particular, with regard to the establishment of a relevant institutional framework and policies." It is intended "...that this publication will serve as a basis for continuing dialogue amongst the stakeholders on reviewing current status of Government commitments on disability and serve as an impetus for further actions"

Disability, poverty, and schooling in developing countries : results from 14 household surveys

FILMER, Deon
November 2005

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This paper analyses the correlations between a young person’s disability, the economic status of their household, and their school participation. The survey was conducted using 11 household surveys in nine developing countries. The results show that some youth with disabilities live in poorer households, but the extent is not statistically significant. However, young people with disabilities are often less likely to start school and show lower transition rates. This finding suggests that, in developing countries, disability may lead to long-run poverty since youth with disabilities are less likely to achieve qualifications which would allow them to earn higher incomes in their later life
The paper is useful for policy makers and professionals working in development
SP Discussion Paper No 0539

Disability issues in East Asia : review and ways forward

TAKAMINE, Yutaka
May 2004

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This paper provides "the World Bank’s East Asia and Pacific region with information and insights necessary for improving a focus on disability in its activities. There are two major parts to this paper. The first part reviews disability related issues in the region by describing (1) the prevalence of disability and related issues; (2) major issues and challenges confronting persons with disabilities; and (3) good practices, innovative approaches, and effective organizations in the region working to meet the needs of persons with disabilities. The second part reviews the Bank’s regional level activities through examining project portfolios and AAA products, as well as through interviews with Sector managers and staff members. Based on this review, the paper recommends ways to include disability issues at the regional and sector levels"

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