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Innovative data use: can we learn more from what is already available?

DANEMAYER, Jamie
September 2023

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A short talk given at the Disability Innovation Summit: Inclusive Interactions conference organised by GDI hub on 13 Sep 2023.

The use of published datasets on the prevalence of disability is reviewed. The numbers of datasets and their harmonisation is described and the advantages, limitations and opportunities for use are outlined. 

What fails: and what's not needed, Disability Dongles

HOLLOWAY, Catherine
LANDRE, Anna
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A discussion concerning disability dongles (expensive technical solutions to disability problems without sufficient design input from disabled people - examples include a stair climbing wheelchair and an exoskeleton). Setting up networks of disabled people to input requirements, contextualisation of issues (for example the lack of repair facilities for wheelchairs especially in the global south), telemedicine, and the difficulties in appropriate funding for appropriate projects are discussed.

  

Accessibility and inclusion for deafblind people living in the Global South

KAMENOPOULOU, Leda
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.
 

A short presentation concerning the challenges surrounding inclusion of and accessibility for deafblind children and adults, particularly in the Global South.

Deafblindness is a spectrum and so a spectrum of approaches and of assistive aids is required. The most common cause of deaf blindness is aging. Most research has been carried out in the Global North. Very little has been carried out in the Global South or into the intersectionality with poverty, race and gender. 

Increasingly consulted, but not yet participating: IDA global survey report on participation of Organisations of Persons with Disabilities

INTERNATIONAL DISABILITY ALLIANCE (IDA)
November 2020

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This new report presents the findings of the first-ever global survey led by OPDs on their participation in decision making processes of governments, the UN system and funding agencies.

The IDA Global Survey is part of a strategy to hold decision-makers accountable for their commitments under Articles 4.3 and 32 of the UN Convention on the Rights of Persons with Disabilities (CRPD). Based on testimonies collected from OPDs in 165 counties, the report assesses the quality, depth, scope and relevance of the OPDs participation in programmes and policies, and offers recommendations for governments, the UN system and funding agencies.

Disability rights during the pandemic. A global report on findings of the COVID-19 Disability Rights Monitor

BRENNAN, Ciara Siobhan
October 2020

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This report presents the findings from a rapid global survey of persons with disabilities and other stakeholders which took place between April and August 2020. The organisations behind the study seek to “catalyse urgent action in the weeks and months to come,” as transmission rates of COVID-19 continue to rise in many countries and persons with disabilities are again subjected to restrictions which have already had severe consequences.

The report analyses over 2,100 responses to the survey from 134 countries around the world. The vast majority of responses were from individuals with disabilities and their family members. Within the questionnaire responses respondents provided more than 3,000 written testimonies documenting the experiences of persons with disabilities and their family members during the pandemic. The qualitative and quantitative data provide in-depth, comprehensive insights into the experiences of persons with disabilities and the consequences of government actions or inactions on the rights of persons with disabilities.

The report is organised around four themes which emerged during the process of analysing responses received to the survey. These themes are:

1. Inadequate measures to protect persons with disabilities in institutions

2. Significant and fatal breakdown of community supports

3. Disproportionate impact on underrepresented groups of persons with disabilities

4. Denial of access to healthcare

 

A webinar was held to mark the launch of the report

Disability, stigma & the role of innovation - Disability innovation live

AUSTIN, Vicki
CAREW, Matthew
MIRZOYANTS, Anastasia
BARBARESCHI, Giulia
August 2020

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This webinar focussed on the role of stigma in preventing disability inclusion, and what enables it to be overcome, focused on innovative and creative methods

The speakers talked about:

  • Culture, Paralympic legacy & how innovation can change mindsets
  • Stigma research incorporating the perspectives of persons with disabilities & disability inclusive research processes
  • Kenyan youth & the perception of people with disabilities
  • Assistive technology, identity & the role of innovation

Recording of the Virtual Event: COVID-19 Crisis and Promoting Rights of Women and Girls with Disabilities

IDA
April 2020

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Recording of the Virtual Event: COVID-19 & Promoting the Rights of Women and Girls with Disabilities

On April 8, 2020, IDA in collaboration with the EDF held the Virtual Event: COVID-19 crisis and Promoting Rights of Women and Girls with Disabilities. The virtual event with 572 registered participants was an effort to provide space and prevent any loss of momentum in promoting the rights of women and girls with disabilities in the global gender equality agenda. 

During the webinar, the panelists have discussed various topics ranging from the inclusion of women and girls with disabilities into mainstream gender mainstreaming strategies, multiple forms of discrimination faced by women and girls with various forms of disability, and the impact of the current pandemic on their well-being.

Labour market date for persons with disabilities (i2i webinar)

EUROPEAN DEVELOPMENT FORUM
April 2020

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On April 22nd 2020, the European Disability Forum organised the fourth of a series of webinars about the Innovation to Inclusion project (also called i2i programme). 

Four speakers were invited to talk about Labour Market Data for persons with disabilities. After their presentation, there was some time for questions and answers.

 

  • Mark Carew (Leonard Cheshire) spoke briefly about i2i’s approach to disability data and how i2i supports a good quality collection of disability data.
  • Valentina Stoevska (Department of Statistics, International Labour Organisation) explained the objectives of the statistical data on the labour market characteristics of persons with disabilities. She talked about the use of Washington Group questions on the disability Labour Force Surveys. To conclude her presentation, Ms Stoevska briefly illustrated with some statistics the employment characteristics of persons with disabilities.
  • Robert Buluma (Governance, Peace and Security statistics of the Kenya National Bureau of Statistics) briefly provided some information on the development of a disability monograph.
  • Anderson Gitonga (United Disabled Persons of Kenya (UDPK)) spoke about the importance of the meaningful participation of persons with disabilities in data gathering and touched upon the technical working group that has been formed in Kenya.

Deaf people in Pacific Island countries. A design for the Pacific deaf strenthening program

JENKIN, Elena
WATERS, Philip
SEN, Krishneer
ADAM, Robert
2019

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Pacific Disability Forum (PDF) is committed to advancing the rights of people with disabilities living in Pacific Island Countries (PICs). Developing an evidence base to understand more about deaf children and adults’ experiences and priorities will better assist communities, DPOs, organisations and governments to plan inclusive communities, policy and programs.

 

The development of the design was deliberately planned to be highly collaborative and the team met with 161 people who shared their views. This provided opportunities for deaf people and DPOs to contribute to the design, along with representatives from government, non-government and regional organisations. This collaboration occurred in three countries in the Pacific, namely Solomon Islands, Samoa and Fiji. Within Fiji, the design team met with deaf and DPO representatives of other PIC’s along with regional multi-lateral organisations such as UNICEF and the Pacific Island Forum Secretariat (PIFS). Consultations also occurred remotely with supporting organisations and development workers that are focused on disability inclusion in the Pacific. The design undertook a desk review to learn what is known about deaf children and adults in the Pacific region. Participatory methods ensured the process was highly respectful of the views of deaf people. DPOs, other organisations and governments will be asked to identify to what extent deaf children, adults and their families are participating in services, programs and establishments, and to identify potential supports required to increase deaf people’s participation.  A capacity building element has been carefully built into the design. The report is divided into three parts. Part A rationalizes the design, with background information and a brief desk review to collect evidence from and about deaf children and adults in the Pacific. Part B describes the design development process and reports findings. Part C details the design for the situation analysis.  

Key To Inclusion: New tool to measure child functioning

UNICEF
March 2016

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A video highlighting the critical importance of collecting data on child functioning, its feasibility and its powerful results. It addresses a new series of questions put together by UNICEF/Washington Group on Disability Statistics that go beyond labels and diagnoses to explore children’s actual experiences and the difficulties that they encounter in performing daily activities.

And every child is entitled to equal opportunity to realize their full potential. So say the Convention on the Rights of the Child and the Convention on the Rights of Persons with Disabilities.

But the hard truth is that millions of children with disabilities are deprived of opportunity.

Access to employment for all in West Africa : let’s make it work I

DIMBARRE KPEHOUNTON, Cathy
et al
June 2013

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This video series is part of the Making It Work initiative, “Access to employment for all in West Africa : let’s make it work”, which sets out good practice for inclusive employment of people with disabilities in West Africa, in line with CPRD Article 27 and makes recommendations for public and private employers, microfinance institutions, governments and their partners so that they become agents of change and commit themselves to inclusive policies promoting access to decent jobs for people with disabilities in West Africa. This part I video examines the “right to set up a micro-enterprise: how can microfinance institutions make it work? How do microfinance institutions give people with disabilities access to financial services to help them start or develop small businesses successfully?”

Access to employment for all in West Africa : let’s make it work II

DIMBARRE KPEHOUNTON, Cathy
et al
June 2013

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This video series is part of the Making It Work initiative, “Access to employment for all in West Africa : let’s make it work”, which sets out good practice for inclusive employment of people with disabilities in West Africa, in line with CPRD Article 27 and makes recommendations for public and private employers, microfinance institutions, governments and their partners so that they become agents of change and commit themselves to inclusive policies promoting access to decent jobs for people with disabilities in West Africa. This part II video examines the “right to employment: how can employers make it work? How and why have public and private employers recruited people with disabilities? and how have they encouraged their integration into the business or service?"

Access to employment for all in West Africa : let’s make it work III

DIMBARRE KPEHOUNTON, Cathy
et al
June 2013

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This video series is part of the Making It Work initiative, “Access to employment for all in West Africa : let’s make it work”, which sets out good practice for inclusive employment of people with disabilities in West Africa, in line with CPRD Article 27 and makes recommendations for public and private employers, microfinance institutions, governments and their partners so that they become agents of change and commit themselves to inclusive policies promoting access to decent jobs for people with disabilities in West Africa. This part III video examines the “right to work: how technical and financial partners can make it work? and how have technical and financial partners or investors contributed to the success of people with disabilities through access to decent jobs?”

Access to employment for all in West Africa : let’s make it work IV

DIMBARRE KPEHOUNTON, Cathy
et al
June 2013

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This video series is part of the Making It Work initiative, “Access to employment for all in West Africa : let’s make it work”, which sets out good practice for inclusive employment of people with disabilities in West Africa, in line with CPRD Article 27 and makes recommendations for public and private employers, microfinance institutions, governments and their partners so that they become agents of change and commit themselves to inclusive policies promoting access to decent jobs for people with disabilities in West Africa.  This part IV video examines the “right to work: how governments can make it work? and how do governments and ministries promote access to employment for people with disabilities through the design and implementation of disability-inclusive public policies and development strategies?”

Who’s on my side?

ALLIANCE FOR INCLUSIVE EDUCATION UK
Parents For Inclusion UK
March 2013

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“"This film features disabled children and young people, their siblings and family members talking about why allies are important. They also talk about the support they get, the support they want and what changes need to be made in education, health and social care services so that they can have real choice and control. It is useful for anyone interested in inclusive education"

World report on disability

WORLD HEALTH ORGANIZATION
WORLD BANK
2011

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This report "reviews evidence about the situation of people with disabilities around the world. Following chapters on understanding disability and measuring disability, the report contains topic-specific chapters on health; rehabilitation; assistance and support; enabling environments; education; and employment. Within each chapter, there is a discussion of the barriers confronted, and case studies showing how countries have succeeded in addressing these by promoting good practice. In its final chapter, the report offers nine concrete recommendations for policy and practice which if put in place could lead to real improvements in the lives of people with disability"

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