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On the outskirts of normality: Young adults with disabilities, their belonging and strategies

OLIN, Elisabeth
JANSSON, Bibbi Ringsby
2009

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During the last decades, the living conditions for young people with disabilities have changed dramatically in Sweden, as well as in other parts of theWestern world.The boundaries between what is considered normal as opposed to different have become less clear as a result of these changes. This has been followed by new problems regarding integration and changing patterns of marginalization. The aim of this study was to gain a deeper understanding of the ways in which young adults’ social identity is shaped by their dual belongings: to the category of individuals with disabilities as well as to mainstream society. In- depth interviews were carried out with 15 young adults with mental disabilities and mild intellectual disabilities occasionally combined with various forms of social problems. The analysis focused on the ways in which the young adults related to what they describe as normal and different as well as their strategies for navigating between them. The data was subsequently divided into three categories: Pragmatic Navigators, Critical Challengers, and Misunderstood Rebels, which reflect the ways in which the respondents describe themselves and the perspective they have developed to manage their existence.

Children with learning disabilities: A phenomenological study of the lived experiences of Iranian mothers

KERMANSHAHI, S M
VANAKI, Z
AHMADI, F
KAZEMNEJAD, A
AZADFALAH, P
2009

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Nursing as a family-oriented profession involves supporting mothers of children with learning disabilities to gain an awareness of their role. However, few studies have explored the whole experience of such mothers. This study embarks on an understanding of lived experiences of Iranian mothers who have children with learning disabilities. A qualitative approach was adopted using the phenomenology of semi-structured interviews carried out with six Iranian mothers whose children attended a special school in Tehran. The data were analysed in line with van Manen’s suggestions. Two main themes were abstracted; being the centre of stress circles and being in the midst of life and death. Themes include care management challenges for self and child, experiencing through helplessness and hopefulness and experiencing self devote and self neglect. Overall, a majority of mothers experienced a stressful life. The study concludes that Iranian mothers’ lived experience of having children with learning disabilities can be likened to the constant swing of a pendulum between two polarities of positive and negative feelings. This knowledge can provide an heuristic to help health staff guide mothers in adjusting to their children who have learning disabilities.

Quantitative and qualitative methods in impact evaluation and measuring results

GARBARINO, Sabine
HOLLAND, Jeremy
March 2009

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“This paper contributes to the ongoing debate on ‘more and better’ impact evaluations by highlighting experience on combining qualitative and quantitative methods for impact evaluation to ensure that we measure the different impact of donor interventions on different groups of people and measure the different dimensions of poverty, particularly those that are not readily quantified but which poor people themselves identity as important, such as dignity, respect, security and power. A third framing question was added during the discussions with UK Department for International Development staff on the use of the research process itself as a way of increasing accountability and empowerment of the poor”

Issues Paper

Handbook on monitoring and evaluation of human resources for health : with special applications for low- and middle-income countries

DAL POZ, Mario R
Ed
2009

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This handbook aims strengthen the technical capacity of health managers, researchers and policy makers, to monitor and evaluate their health workforce accurately . It brings together an analytical framework for strategy options for improving the health workforce information and evidence base, as well as country experiences to highlight approaches that have worked

With education you can do anything : without education there's nothing you can do|Outcomes of schooling for young people with disabilities

SINGAL, N
et al
2009

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"This paper assembles data from a qualitative enquiry into how young people (aged 15-30) with three impairments (in hearing, seeing and walking) understand the role played by education in their lives...Whereas the ‘significant others’ (parents and elder siblings) see schooling as a failure if it does not lead to jobs, these young people with disabilities themselves focus on education’s enabling roles. The paper concludes with policy proposals with respect to the nature and content of schooling and improvements in how government benefits are accessed by these young people"
WP24/09

Physical therapy roles in community-based rehabilitation : a case study in rural areas of north eastern Thailand

NUALNETR, Nomjit
2009

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his action research aimed to explore how physical therapists could enhance the quality of life for persons with disabilities via a community-based rehabilitation (CBR) strategy. The study was conducted in two rural sub-districts in northeastern Thailand. In each sub-district, several group meetings were arranged for persons with disabilities and their families, and various community members. Participants were encouraged to discuss their perception of problems of the current rehabilitation services for persons with disabilities. Strategies to manage all problems were collaboratively identified and were implemented in order of priority according to the importance of the problem. The outputs of CBR were evaluated by interviews and observation. The findings revealed that physical therapists had numerous roles in CBR, depending on the community’s circumstances. They need a high degree of flexibility and a wide range of skills to contribute to CBR. The preparation of such physical therapists requires development of a more client-centered community-oriented education programme.

 

 

Asia Pacific Disability Rehabilitation Journal, Vol 20, No 1

A research study on individuals with disabilities in the Masai tribe of Tanzania

FEINSTEIN, Sheryl
2009

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"The purpose of this qualitative study was to investigate the life of individuals with a disability in the Maasai Tribe in Tanzania. The study consisted of 68 participants. Individuals with a disability did not engage in tribal traditions, go to school or seek modern health care"
Review of Disability Studies : An International Journal, Vol 5, Issue 4

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