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Experiences of lower limb prosthesis users in Kenya: a qualitative study to understand motivation to use and satisfaction with prosthetic outcomes

MATTICK, Kate
OLDFREY, Ben
DONOVAN-HALL, Maggie
MAGOMERE, Grace
GAKUNGA, Joseph
HOLLOWAY, Catherine
December 2022

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An estimated 1.5 million people undergo limb amputation each year [1]. Low- and middle-income countries (LMICs) are projected to have a rapid increase in people living with an amputation in the coming years due to prevalence of non-communicable disease, trauma and conflict. This paper explores the personal and system factors that motivate and enhance outcomes for patients accessing a prosthetic service and using a lower-limb prosthesis within a low resource setting.

This study employed a qualitative approach to explore the motivations and satisfaction of individuals with lower limb loss engaging with a prosthetic service in Mombasa, Kenya. In-depth interviews were conducted over Microsoft Teams with 10 lower limb prosthesis users and thematic analysis was applied.

 

Disability and Rehabilitation Volume 45, 2023 - Issue 26

https://doi.org/10.1080/09638288.2022.2152875

The community-based actions that removed barriers to inclusive education in Kenya

ELDER, Brent C
PAYNE, Mbuh
OSWAGO, Benson
2021

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This article represents a culmination of inclusive education projects implemented in western Kenya since 2010. In this article, we discuss the 2018 iteration of this on-going community-based participatory research (CBPR)-informed project in which we utilised multiple theoretical frameworks to inform our methods in this project, including decolonising methodologies and Critical Disability Studies (CDS). We conducted qualitative interviews as a way to learn about the ways in which inclusion committees facilitated the partial removal of barriers to the development of an inclusive education system in the region over the last decade. In this article, we provide an overview of the barriers to inclusive education in the global South and sub-Saharan Africa, with a particular focus on western Kenya. We present findings that highlight the various inclusion committee actions that contributed to the partial removal of barriers which included: sensitising communities about inclusive education; promoting access to inclusive education; and implementing inclusive strategies like income generating activities (IGAs) and co-teaching. We conclude the article by suggesting potential ways forward for inclusive education in Kenya including: a multi-sector approach for family supports; providing government incentives to inclusive schools; and promoting IGAs and co-teaching practices in teacher education programs and in schools.

Disability, stigma & the role of innovation - Disability innovation live

AUSTIN, Vicki
CAREW, Matthew
MIRZOYANTS, Anastasia
BARBARESCHI, Giulia
August 2020

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This webinar focussed on the role of stigma in preventing disability inclusion, and what enables it to be overcome, focused on innovative and creative methods

The speakers talked about:

  • Culture, Paralympic legacy & how innovation can change mindsets
  • Stigma research incorporating the perspectives of persons with disabilities & disability inclusive research processes
  • Kenyan youth & the perception of people with disabilities
  • Assistive technology, identity & the role of innovation

Human-centred design in humanitarian settings: Methodologies for inclusivity

HAMILTON, Zoe
CASSWELL, Jenny
ALONSO, Aline
July 2020

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This report documents the human-centred design process used in a project conducted in 2020 in Nairobi, Kenya. It includes research tools that can be used in other contexts, as well as the adaptations that were made to research tools to ensure they were inclusive. These tools are followed by the main lessons learned, and recommendations for others who want to implement a similar process.

The goal of this project was to better understand how people living with disabilities in humanitarian contexts use mobile technology, the barriers they face in accessing mobile services, and the opportunities that mobile might present to increase access to basic services in their daily lives. The target population for this project was urban refugees living with visual or hearing impairments in Nairobi, Kenya. 

The human-centred design tools used included: Location Mapping, User Journeys, Communication Mapping, Future Me and Daily Diaries. 

Impact of Covid-19 on the lives of people with disabilities. Insight and stories from Bangladesh and Kenya

i2i INNOVATION TO INCLUSION
January 2020

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In April and May 2020 the Innovation to Inclusion (i2i) programme, supported disabled persons organisations (DPOs) to complete a qualitative survey of 312 people with disabilities (including 147 women) in Bangladesh and Kenya to understand the impact of COVID-19 and measures to prevent its spread. The survey - a descriptive survey with a representative sample of people with physical, intellectual and multiple disabilities, visual and hearing impairments and mental health issues in the Nairobi, Mombasa and Kasumu areas of Kenya and in the Dhaka, Sylet and Chattogram districts of Bangladesh - has been part of wider efforts by DPOs in the two countries to test and embed data driven advocacy processes towards realising CRPD.   

 

Topics covered included: employment and job insecurity; access to general pulic information; PPE; access to support; assistive tecnology and discrimination

Making it count: The power of youth advocates in the disability movement

WILM, Suzanne
LEONARD CHESHIRE
HANKS, Phil
May 2019

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The 2030 and Counting pilot project sought to give youth with disabilities a seat at the table on the SDGs – providing them with the tools and confidence they need to become their own agents of change. This report provides an overview of the project, together with learnings and recommendations for the future.

In its pilot year, 2030 and Counting brought together young women and men with disabilities and DPOs from Kenya, the Philippines and Zambia to report on and advocate for their rights through the framework of the SDGs

The project had three consecutive phases: Training, Story gathering (data collection) and Influencing. 

In total, 332 reports were collected between June and September 2018. The highest number of reports were submitted under the theme of Education (44%), followed by Work (33%), and Health (14%). The category of Other, which almost entirely focused on discrimination in daily life, accounted for 8%. 80% of reporters had smartphones, offering the potential to increase the use of this feature in future.
 

Innovate for Inclusion. Four cases of application of the social innovation lab methodology to enhance disability inclusion in mainstream settings

MAARSKE, Anneke
NEDERVEEN, Matthijs
BAART, Judith
2019

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This publication reflects back on four co-design processes undertaken by Light for the World’s Disability Inclusion Lab during the past few years. These different journeys in solution development have demonstrated the power of this methodology to create genuine inclusion in livelihood programming while striving to empower persons with disabilities to achieve economic success. In this publication the social innovation lab methodology is described as a unique approach to inclusive programming, highlighting four cases: The Livelihood Improvement Challenge in Uganda, the lab in the EmployAble programme in Ethiopia, the AgriLab in Cambodia, and the InBusiness pilot in Kenya. Lessons learnt are described.

Tangible First Steps: Inclusion Committees as a Strategy to Create Inclusive Schools in Western Kenya

DAMIANI, Michelle L
ELDER, Brent C
OKONGO, Theophilus O
2016

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This paper provides one example of forming an inclusion committee in Kenya toward the vision of creating inclusive primary school campuses. We suggest the development of inclusion committees as a potential innovative strategy and a critical element of community reform toward disability awareness, and to increase access to primary school education for students with disabilities. The formation of the inclusion committee followed a member-driven process for identifying barriers to educational access for students with disabilities, prioritizing the needs within their local context, determining a plan of action to address these needs within existing community resources, and gaining access to new resources. Recognizing access to equitable education as a universal human right supported by local and international legislation, this paper works within the tensions that exist between Western constructs of education and how they are applied in post-colonial countries in the global South. Our findings suggest that establishing diverse participation among stakeholders led to even more inclusive representation; that inclusion committee actions led to local and national level involvement with the initiative; and that community-driven progress toward inclusive education presented both strengths and challenges in terms of sustainability. Finally, we discuss implications for under-resourced schools, including those in the global North.

 

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

Working within the tensions of disability and education in post-colonial Kenya: Toward a praxis of critical disability studies

ELDER, Brent C
FOLEY, Alan
2015

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This paper explores emerging and evolving critical approaches to inclusive education development work in the postcolonial, global South context of Kenya. Taking an ontoformative (Connell, 2011) perspective of disability, we view disability as a dynamic process inherently tied to social contexts and their fluid effects on disabled bodies. Thus, not all impairments are a natural form of human diversity, and many are imposed on bodies in underdeveloped countries through oppressive imported Western practices. In this paper we present our work not as models of ‘what to do’ or ‘what not to do’ in development work. Rather we offer a reflection on the evolution of our understanding and approach to this work from being merely ‘progressive’ (while further exporting Northern theory), toward a more critical and self-reflexive approach. We hope this is a starting point in a dialogical process of mutual knowledge production between the global North and South that leads to better ways of conceptualizing and supporting people with disabilities in the global South.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 3

Through our eyes

HANDICAP INTERNATIONAL
November 2014

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This video was made with children from Rwanda, Burundi and Kenya in 2014, in the context of a child participation activity within the “Ubuntu Care project: confronting sexual violence against children with disabilities in Rwanda, Burundi and Kenya”, implemented by the NGO Handicap International and its partners. The initiative brought disabled children together to start discussing their experiences and the cameras became an outlet for the children and members of the community to share their stories and raise awareness about important issues about confronting sexual violence against children with disabilities

Note: dialogue is in French with an option for English subtitles

Making Kenya ODF

MUSYOKI, Samuel
March 2012

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This community-led total sanitation (CLTS) blog outlines progress on CLTS in Kenya, noting the difference in approach in Ghana and Ethiopia, and highlights the new approaches taken by some disabled people, working towards the goal of making Kenya open defecation free (ODF)

Going to scale with community-led total sanitation : reflections on experience, issues and ways forward

CHAMBERS, Robert
2009

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Community-Led Total Sanitation (CLTS) is a revolutionary approach in which communities are facilitated to conduct their own appraisal and analysis of open defecation and take their own action to become open defecation-free. This report presents CLTS approaches in six countries which differ organisationally with contrasting combinations of NGOs, projects and governments. Practical elements in strategies for going to scale have included: training and facilitating; starting in favourable conditions; conducting campaigns and encouraging competition; recruiting and committing teams and full-time facilitators and trainers; organising workshops and cross-visits; supporting and sponsoring Natural Leaders and community consultants and inspiring and empowering children

 

Practice Paper, Vol 2009, No 1

Mobilising the community : a PILLARS guide

CARTER, Isabel
2003

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This guide looks at an example of community mobilisation that is based on using outside facilitators and workshops. However, recognising that resources to employ external facilitators and run such workshops may not be available, it takes the basis of the mobilisation process and shares it in a way that will help a well-organised and motivated group to use the process without outside help. It looks at participatory methodologies that can be used to focus on key community issues, how to gather information, presenting information and planning the action. It will be helpful to small groups or NGOs seeking to bring changes that benefit local people

Participatory hygiene and sanitation transformation : a new approach to working with communities

SIMPSON-HERBERT, Mayling
et al
1996

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Participatory Hygiene and Sanitation Transformation (PHAST) is designed to promote hygiene behaviours, sanitation improvements and community management of water and sanitation facilities using specifically developed participatory techniques. This document describes the underlying principles of the approach, the development of the specific participatory tools, and the results of field tests in four African countries. It documents: the principles which underlie the approach; how the methodology was developed at workshops in the African region; the impact that PHAST made on communities and extension workers that were part of the field test; the lessons learned during the field test; and how the approach can be adopted more widely

Participatory monitoring and evaluation

February 1988

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One of the PLA Notes special editions, includes articles on: tracking change together; monitoring and evaluating in the Nepal-UK Community Forest Project; particpatory self-evaluation of World Neighbors, Burkino Faso; institutional issues for monitoring local development in Ecuador; growing from the grassroots: building participatory planning, monitoring and evaluation methods in PARC; ELF - 3 year impact evaluation: experiences and insights; Participatory monitoring and evaluation in flood proofing pilot project, CARE-Bangladesh

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