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Listen Include Respect: International Guidelines for Inclusive Participation

Inclusion International
June 2022

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The Listen Include Respect guidelines help organisations understand what they need to do to make sure people with intellectual disabilities are included in their work.

​They were written by Inclusion International and Down Syndrome International.

Over 1,500 people with intellectual disabilities and their families from almost 100 countries helped write them.

The Convention on the Rights of Persons with Disabilities (CRPD) tells us that all people with disabilities have the right to “meaningful participation.”

“Meaningful participation” is what happens when people with intellectual disabilities get everything they need to be fully included, participate equally, and feel valued.

These guidelines will help organisations to make this happen.

A global agenda for inclusive recovery: Ensuring people with intellectual disabilities and families are Included in a post-COVID world

INCLUSION INTERNATIONAL
May 2021

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This report documents the experiences of people with intellectual disabilities and their families during COVID-19 and proposes a global agenda for inclusive COVID recovery developed by Inclusion International’s membership. The global agenda is a set of imperatives for policy and programming to ensure that “building back better” creates a more inclusive world.

Ensuring the right to quality inclusive education for persons with disabilities: From commitment to action

UNESCO
November 2020

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The international symposium "Ensuring the right to quality inclusive education for persons with disabilities: From commitment to action", co-organized by UNESCO, the Leonard Cheshire, and the Ministry of Education of Portugal brought together a wide range of stakeholders across the globe to discuss progress, successes achieved and challenges to ensure full participation and access to quality learning opportunities for all learners.

The symposium aims were to:

  • review persisting, as well as new challenges, due to the COVID-19 pandemic that are hindering the fulfilment of the right to inclusive education for learners with disabilities.
  • facilitate the exchange of experiences on factors influencing successful inclusive policies and practices for learners with disabilities and strengthen dialogue and cooperation amongst stakeholders at policy and practice levels.
  • explore how the inclusion of learners with disabilities in inclusive settings can be more effectively addressed by governments with regards to the commitments of Article 24 of the Convention on the Rights of Persons with Disabilities (CRPD), the CRPD General Comment 4 on article 24, and Sustainable Development 4 SDG 4, to ‘ensure inclusive and equitable quality education and promote lifelong learning opportunities for all.

The programme included:

Opening session - Accelerating efforts towards inclusive education for learners with disabilities. (Video recording: English - French - Spanish)

Session 1 - From legislation to inclusive practices: Re-designing policy frameworks, funding and monitoring arrangements across sectors for inclusive education for learners with disabilities. (Video recording: English - French - Spanish)

Session 2 - Revisiting the teaching and learning process to ensure access and participation of learners with disabilities.

Session 3 - Moving towards inclusive and safe learning environments, including by addressing violence and bullying against learners with disabilities.
 

Closing session - Rebuilding a Stronger Global Disability Inclusive Education System post COVID-19. (Video recording: English - French - Spanish)

Increasingly consulted, but not yet participating: IDA global survey report on participation of Organisations of Persons with Disabilities

INTERNATIONAL DISABILITY ALLIANCE (IDA)
November 2020

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This new report presents the findings of the first-ever global survey led by OPDs on their participation in decision making processes of governments, the UN system and funding agencies.

The IDA Global Survey is part of a strategy to hold decision-makers accountable for their commitments under Articles 4.3 and 32 of the UN Convention on the Rights of Persons with Disabilities (CRPD). Based on testimonies collected from OPDs in 165 counties, the report assesses the quality, depth, scope and relevance of the OPDs participation in programmes and policies, and offers recommendations for governments, the UN system and funding agencies.

Informe regional America Latina Bajo El enfoque de la convencion sobre los derechos de las personas con discapicidad

March 2019

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Este primer informe regional de la situación de las personas con discapacidad en América Latina ha sido elaborado por RIADIS con la finalidad de realizar un primer acercamiento al estado de la implementación de los ODS bajo el enfoque de la CDPD y la reformulación del Programa de Acción del Decenio de la Organización de los Estados Americanos (OEA). En este sentido, el informe pretende identificar los avances y buenas prácticas que se encuentran realizando los gobiernos de la región en materia de la aplicación de la CDPD a través de la implementación de los ODS en la región, así como establecer las oportunidades y los desafíos que se presentan para que las organizaciones de personas con discapacidad puedan seguir conquistando nuevos espacios y haciendo efectivo el ejercicio pleno de sus derechos. El presente informe se enfoca en diez principales áreas temáticas, identificadas como prioritarias por las personas con discapacidad de la región, quienes aportaron al abordaje de las mismas, tanto a través de las respuestas que se recopilaron de la encuesta inicial, como a través de las contribuciones grupales e individuales obtenidas en el taller de revisión del borrador del informe regional.

 

Las diez áreas temáticas que se abordan en el presente informe son las siguientes: 1. Educación inclusiva 2. Mujeres con discapacidad 3. Personas indígenas con discapacidad 4. Inclusión laboral de las personas con discapacidad 5. Reducción de riesgos de desastres y acción humanitaria 6. Accesibilidad 7. Acceso a la justicia 8. Derecho a vivir de forma independiente y ser incluido en la comunidad 9. Recopilación de datos 10. Participación de las personas con discapacidad

Working with persons with disabilities in forced displacement

UN HIGH COMMISSIONER FOR REFUGEES (UNHCR)
2019

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This note has been updated from its 2011 release and provides UNHCR and partners with specific guidance on meeting the protection needs of a diversity of persons with disabilities. While the document refers mainly to refugees, it applies to all of UNHCR’s persons of concern, including refugees, asylum seekers, internally displaced persons, returnees, and stateless persons.

This note provides guidance on: who persons with disabilities are; key principles (rights based approach, inclusion, participation and non-discrimination) and cross-cutting actions. 

Minimum standards for protection, gender and inclusion in emergencies

INTERNATIONAL FEDERATION OF RED CROSS AND RED CRESCENT SOCIETIES (IFRC)
November 2018

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The International Federation of Red Cross and Red Crescent Societies (IFRC) Minimum standards for protection, gender and inclusion in emergencies (2018) is in its second edition. The first pilot version of the IFRC Minimum standard commitments to gender and diversity in emergency programming was published in 2015. The pilot version has been tested globally by Red Cross and Red Crescent staff, volunteers and management in low-, medium- and high-scale disasters and humanitarian crises. This edition is the result of three years of testing, revision and feedback from protection, gender and inclusion (PGI) and sectoral specialists. New chapters, such as cash-based interventions, have been added as well as a stronger focus on sexual and gender-based violence and disability inclusion to align with the commitments of the IFRC and its member National Societies. This edition is accompanied by the IFRC Protection, gender and inclusion in emergencies toolkit (2018–2019).

This guidance presents Red Cross and Red Crescent staff, members and volunteers with a set of minimum standards for protection, gender and inclusion (PGI) in emergencies. It aims to ensure that the emergency programming of the International Federation of Red Cross and Red Crescent Societies (IFRC) and National Societies provides dignity, access, participation and safety for all people affected by disasters and crises.

It provides practical guidance on how to mainstream these four principles in all sectors, based on a consideration of gender, age, disability and other diversity factors. This includes limiting people’s exposure to the risks of violence and abuse and ensuring that emergency programmes “do no harm”.

The standards address protection, gender and inclusion concerns by providing practical ways to engage with all members of the community, respond to their differing needs and draw on their capacities in the most non-discriminatory and effective way. This helps to ensure that local perspectives guide assistance delivery. The standards also support incorporation of the seven Fundamental Principles of the International Red Cross and Red Crescent Movement.

Report of the Special Rapporteur on the rights of persons with disabilities (theme: the right of persons with disabilities to participate in decision-making)

DEVANDAS-AGUILAR, Catalina
January 2016

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In the preparation of this study, a questionnaire was sent to Member States, national human rights institutions, agencies of the United Nations system, civil society organizations, and persons with disabilities and their representative organisations. As at 22 December 2015, 144 responses were received. The report covers the participation of persons with disabilities in political and public life (right to vote and be elected, right to access public service and right to participate in the conduct of public affairs). The report also covers participation of persons with disabilities in public decision making (importance of effective and meaningful participation, ensuring the participation of representative organisations of persons with disabilities, promoting consultation and the active involvement of persons with disabilities, and key areas for participation). Recommendations are presented.

The inclusion of persons with disabilities in financing for development

INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
INTERNATIONAL DISABILITY ALLIANCE (IDA)
December 2014

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This policy paper concerns the inclusion of persons with disabilities in financing for development. The paper presents a number of recommendations aimed at increasing inclusion in this area and provides detailed information on background information that leads to these recommendations

Independent by not alone. Global report on the right to decide

LAURIN-BOWIE, Connie
Ed
June 2014

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Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD) reflects a fundamental shift in thinking: it asserts that with support all people with intellectual disabilities are able to make decisions and have control in their lives. This Global Report presents the perspective of people with intellectual disabilities and our families on the right to decide. Over two years, over 600 self-advocates, family members, disability advocates, and professionals participated in discussions motivated by Inclusion International's Global Campaign on the Right to Decide. Additionally, more than 80 organizations from more than 40 countries worldwide contributed.

Equal access : how to include persons with disabilities in elections and political processes

ATKINSON, Virginia
AZELTON, Aaron
FOGG, Ken
April 2014

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This publication provides governments, civil society and the donor community the requisite tools and knowledge to promote the participation of persons with disabilities in elections and political processes.

It draws on international standards, such as the United Nations Convention on the Rights of Persons with Disabilities, and presents four mutually reinforcing strategies to increase the political participation of persons with disabilities: Empower persons with disabilities and disabled persons' organizations (DPOs) through trainings on technical elections issues as well as organizational and advocacy skills; Support government institutions such as election management bodies and legislatures to create inclusive and accessible legal and regulatory frameworks; Include DPOs in broad-based civil society coalitions, such as election monitoring groups; Assist political parties to conduct meaningful outreach and encourage inclusion of persons with disabilities in leadership positions and as candidates. Good practices from around the world are highlighted throughout the manual.

The executive summary is presented in easy to read format, and the publication is available in plain text for those who use screen readers

Nairobi declaration : inclusive post-2015 development agenda for persons with disabilities in Africa

INTERNATIONAL DISABILITY ALLIANCE (IDA)
et al
March 2014

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The Nairobi declaration calls for a more inclusive post-2015 agenda with a specific demand that development agenda targets and indicators explicitly include persons with disabilities. This document succinctly summarises the issues faced by persons with disabilities in Africa and their specific demands to enable greater inclusion in the post-2015 development agenda. It was adopted by persons with disabilities from Africa, representatives of national, sub-regional and Pan-African disabled people’s organisations, on the 8th of March during the Nairobi conference “Inclusive post 2015 development agenda and UN CRPD in Africa”, organised by the International Disability Alliance in partnership with the International Disability and Development Consortium, UNICEF and the UN Partnership to promote the Rights of Persons with Disabilities

“Inclusive post 2015 development agenda and UN CRPD in Africa”

8 March 2014

Nairobi, Kenya

Take us seriously! Engaging children with disabilities in decisions affecting their lives

LANSDOWNE, Gerison
et al
June 2013

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UNICEF’s work on disability is based on a human rights approach, with a focus on equity. It has been developed within the framework of inclusive development, and actively promotes the social model of disability. A central tenet is that legislation, policies and programmes must be informed and shaped by the children they will affect. Participation is a foundational principle of a rights-based approach. These guidelines are meant to strengthen the capacity of UNICEF and partners in creating opportunities for children with disabilities to exercise their right to be heard and taken seriously.

It is important to:

  • clearly identify obstacles impeding the participation of children with disabilities;
  • examine why participation is important for children with disabilities;
  • provide practical guidance on how and where to reach out and engage children with disabilities more effectively and systematically;
  • prioritize ways to measure the effectiveness of participatory initiatives with children with disabilities. 

The state of the world’s children 2013 : children with disabilities

THE UNITED NATIONS CHILDREN’S FUND (UNICEF)
May 2013

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This report examines "the barriers from inaccessible buildings to dismissive attitudes, from invisibility in official statistics to vicious discrimination - that deprive children with disabilities of their rights and keep them from participating fully in society. The report also lays out some of the key elements of inclusive societies that respect and protect the rights of all children, regardless of disability, and progress in helping all children to flourish and make their contribution to the world"

Project : ¨Right to Choose¨|Manual for best practices and lessons learned|Inclusion of people with disabilities in the electoral and political processes of the Dominican Republic, 2012-2013

IBERO-AMERICAN NETWORK OF ORGANIZATIONS OF PEOPLE WITH DISABILITIES IN THE DOMINICAN REPUBLIC (LA RED)
INTERNATIONAL FOUNDATIOIN FOR ELECTORAL SYSTEMS (IFES)
Eds
2013

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This manual presents the best practices and lessons learned from the "Right to Choose: Inclusion of People with Disabilities in the Electoral and Political Processes of the Dominican Republic" project. The project sought to motivate key public officials to create and strengthen conditions for political participation of people with disabilities in the Dominican Republic

Mapping exclusion

KOZMA, Agnes
PETRI, Gabor
November 2012

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This is a comprehensive report on the state of deinstitutionalization from institution-based services towards community-based services in the mental health field in Europe. The report consists of a comparative analysis of trends and policy changes in Europe based on a survey, and 32 country reports are presented in the annex covering issues crucial in the context of community care, such as data about institutional and community-based services, national mental health and deinstitutionalization strategies, information on guardianship and involuntary admission policies
Note: The report is in English, summaries are available in Dutch, French, Hungarian, Polish, Spanish, Romanian and Swedish

Working with persons with disabilities in forced displacement

UNITED NATIONS HIGH COMMISSIONER FOR REFUGEES (UNHCR)
2011

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"Refugees with disabilities have specific needs and face particular forms of discrimination. As highlighted in the Executive Committee Conclusion No. 110 (LXI)-2010, it is important for UNHCR to ensure that the rights of persons with disabilities who are of concern to the Office are met without discrimination. This places an onus on offices to develop a thorough understanding of the circumstances of persons with disabilities under their care. This note provides staff with guidance on a range of issues to consider in meeting these responsibilities"

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