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The experiences of parents of children living with disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province

TIGERE, Brian
MAKHUBELE, Jabulani C.
September 2019

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Background: Parents of children with disabilities have faced difficulties in looking after their children, be it socially, economically and financially. Parents in rural areas are mainly left with a huge burden, as there is a lack of services and support from both the state and non-governmental organisations. Parents in Sekhukhune district, a rural area in Limpopo province of South Africa, face challenges in raising their disabled children related to lack of resources and lack of services at their disposal.

 

Objectives: This study focuses on the experiences and life circumstances faced by parents of children living with different types of disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province, South Africa.

 

Method: The study consisted of 14 participants who are parents of children living with disabilities. An interview guide with a set of questions was utilised to gather data. Thematic analysis was used to analyse the data and themes that emerged were grouped together.

 

Results: Themes that emerged from the data showed that most of the participants had varying understandings on the causes of disabilities to their children. The participants also were of the view that a ‘cure’ for disability was available medically, spiritually or through traditional African medicine. The study also brought the notion of absent fathers, as most men do not want to be associated with children who are disabled. Stigmatisation of the parents was also a theme that the study revealed. The parents are subjected to name labelling as they are viewed to be practising witchcraft or to be paying for their sins they committed.

 

Conclusion: Parents of children with disabilities are in their own battle in raising their children. There is a lack of support structures available for parents of children living with disabilities. There is a lack of legislation available for protecting and promoting the rights of children with disabilities. The researchers concluded that raising a child with a disability is expensive, time-consuming and straining.

 

 

African Journal of Disability, Vol 8, 2019

Innovate for Inclusion. Four cases of application of the social innovation lab methodology to enhance disability inclusion in mainstream settings

MAARSKE, Anneke
NEDERVEEN, Matthijs
BAART, Judith
2019

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This publication reflects back on four co-design processes undertaken by Light for the World’s Disability Inclusion Lab during the past few years. These different journeys in solution development have demonstrated the power of this methodology to create genuine inclusion in livelihood programming while striving to empower persons with disabilities to achieve economic success. In this publication the social innovation lab methodology is described as a unique approach to inclusive programming, highlighting four cases: The Livelihood Improvement Challenge in Uganda, the lab in the EmployAble programme in Ethiopia, the AgriLab in Cambodia, and the InBusiness pilot in Kenya. Lessons learnt are described.

Partnerships in mental healthcare service delivery in low-resource settings: developing an innovative network in rural Nepal

BIBHAV Acharya
et al
January 2017

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Abstract

Background

Mental illnesses are the largest contributors to the global burden of non-communicable diseases. However, there is extremely limited access to high quality, culturally-sensitive, and contextually-appropriate mental healthcare services. This situation persists despite the availability of interventions with proven efficacy to improve patient outcomes. A partnerships network is necessary for successful program adaptation and implementation.

Partnerships network

We describe our partnerships network as a case example that addresses challenges in delivering mental healthcare and which can serve as a model for similar settings. Our perspectives are informed from integrating mental healthcare services within a rural public hospital in Nepal. Our approach includes training and supervising generalist health workers by off-site psychiatrists. This is made possible by complementing the strengths and weaknesses of the various groups involved: the public sector, a non-profit organization that provides general healthcare services and one that specializes in mental health, a community advisory board, academic centers in high- and low-income countries, and bicultural professionals from the diaspora community.

Conclusions

We propose a partnerships model to assist implementation of promising programs to expand access to mental healthcare in low- resource settings. We describe the success and limitations of our current partners in a mental health program in rural Nepal.

The promise and the reality: a mental health workforce perspective on technology-enhanced youth mental health service delivery

ORLOWSKI, Simone
LAWN, Sharon
MATTHEWS, Ben
et al
October 2016

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Digital technologies show promise for reversing poor engagement of youth (16–24 years) with mental health services. In particular, mobile and internet based applications with communication capabilities can augment face-to-face mental health service provision. Results of in-depth qualitative data drawn from various stakeholders involved in provision of youth mental health services in one Australian rural region are described. Data were obtained using focus groups and semi-structured interviews with regional youth mental health clinicians, youth workers and support/management staff and analysed via inductive thematic analysis. Six main themes were identified: young people in a digital age, personal connection, power and vulnerability, professional identity, individual factors and organisational legitimacy. 

 

DOI: 10.1186/s12913-016-1790-y

Labeling albinism: language and discourse surrounding people with albinism in Tanzania

BROCCO, Giorgio
2015

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This article is based on a qualitative study that set out to analyze the labels and terms attached to 28 people affected by albinism in villages in Kilolo district, Tanzania. Even though national and international attention to killings of people with albinism has attempted to improve general knowledge of albinism and reduce discrimination, most of the community members within the study had lit- tle knowledge of the (bio)medical explanations for albinism and tended to marginalize people with albinism. Framed within a wider moral discourse on ill- ness, disability and socially appropriate behavior, albinism is mostly considered to be God’s will or the consequence of past misdeeds within the family, and many of the existing labels for people with albinism express such ideas.

Knowledge and Beliefs about Ear and Hearing Health among Mothers of Young Children in a Rural Community in South India

NARAYANSAMY, M
RAMKUMA, V
NAGARAJAN, R
2014

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Purpose: To study the knowledge and beliefs about ear and hearing healthcare among mothers from a rural community.

 

Method: In 1 week, 6 focus group discussions were conducted across 6 villages of a district in Tamil Nadu in southern India. The participants were 60 mothers who had children below 5 years of age.

 

Results: Mothers in this rural community had information about some aspects of ear and hearing healthcare. They were aware that use of hairpins and safety- pins to clean ears was harmful; they were knowledgeable about ways to identify hearing ability (child responds to name call, verbal instructions, and startles at loud sounds); and, conditions like consanguinity and malnutrition of expectant mothers were recognised as risk factors for hearing loss. However, misconceptions also existed. The practice of pouring herbal juices to remove insects in the ear continued; there was the perception that all children with a hearing problem were “deaf”, and a lack of awareness about the possibility of partial/unilateral hearing loss. Regarding the age of identification, mothers believed that a child’s ability to speak and the ability to hear was pertinent to assess hearing. None of the mothers related normal speech development to normal hearing.

 

Conclusion: For the success of a community-based hearing screening programme, it is important to utilise the existing knowledge of the mothers, and simultaneously attempt to fill in gaps in knowledge and clarify misconceptions. These measures will facilitate greater compliance from the community in achieving the goals of early identification and early intervention for problems of hearing loss.

Knowledge Management-based Classification Method for Disability-Inclusive Business

SANO, R
CHANDARASUPSANG, T
2014

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Purpose: This study provides evidence to clarify disability inclusiveness in activities of rural business. As an alternative to the analysis method that deals with disability-inclusiveness as a vague concept, knowledge management principles were applied to propose a classification method for disability-inclusive business as an emerging concept at the community level.

 

Methods: The analysis focuses on: 1) productivity of entrepreneurs with disabilities; 2) knowledge of entrepreneurs with disabilities; and 3) understanding of customers. A total of 50 entrepreneurs with disabilities in micro and small businesses in Southeast Asia were identified in this context. Data were collected and analysed according to a story-based knowledge management approach and value chain analysis. Fuzzy logic analysis which exploited domain ontology was utilised to convert knowledge from tacit to explicit, in line with knowledge management principles. A numeric weight based on linguistic variables became available to describe each disability-inclusive business case, as well as the arrangements of fuzzy sets.

 

Results: Out of 50 cases, 7 were classified as fully disability-inclusive while 14 were classified as not disability-inclusive. Productivity of entrepreneurs with disabilities in 3 elements of the value chain, namely procurement, product/service development and distribution, was observed to be significant. The Study showed that disability-related knowledge of entrepreneurs with disabilities could contribute to business performance according to the key success factors to enhance added value. Two elements of the value chain, namely sales/marketing and customer service, are not the decisive factors to define and clarify disability-inclusiveness. 

 

Conclusion: Settings in Southeast Asia are diverse and at varying stages of economic and social development; hence the environment which promotes the disability-inclusive business concept may be inconsistent. Micro and small- scale rural businesses were tackled as a first step to evaluate comparative efforts of each case of disability-inclusive business from the viewpoint of entrepreneurs with disabilities. Therefore, in highlighting the differences, it is recommended that further research should seek to apply weighting factors depending on the individual size, contents and scale of major business areas.

A community-based health education programme for bio-environmental control of malaria through folk theatre (Kalajatha) in rural India

GHOSH, Susanta K
et al
December 2006

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Kalajatha is a popular, traditional art form of folk theatre depicting various life processes of a local socio-cultural setting. It is an effective medium of mass communication in the Indian sub-continent especially in rural areas. Using this medium, an operational feasibility health education programme was carried out for malaria control. This study was carried out under the primary health care system involving the local community and various potential partners

Village phone replication manual : creating sustainable access to affordable telecommunications for the rural poor

KEOGH, David
WOOD, Tim
2005

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This manual draws from the Grameen Village Phone programme in Bangladesh and Uganda, and contains how-to guidelines for replicating the experience in other countries. The programme helped poor women purchase mobile phones and sell the use of them on a per call basis. It allows for sustainable and affordable access to telecommunications, particularly useful in rural and remote areas. The manual provides a comprehensive discussion of all the steps that need to be taken. Topics covered include: business planning, stakeholders and partnerships, microfinance, company structure, training, human resources, monitoring and evaluation

Sharing knowledge for community development and transformation : a handbook

MCHOMBU, Kingo J
August 2004

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This handbook addresses the information needs of rural communities in Africa and explores the relationship between knowledge and development, and how community information resource centres can contribute to and can spark community development. It provides guidance for establishing community information centres and for ensuring their sustainability. The second edition includes several case studies from Ethiopia, draws out lessons learned, and includes a special section on HIV and AIDS resource centres. Each chapter concludes with suggested discussion questions for community groups

The Internet in developing nations : grand challenges

PRESS, L
2004

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The author outlines the 'grand challenge' or $15 billion project for achieving truly global connectivity. It is based on the methodology for the development of the US National Science Foundation Network. The plan emphasizes the use of wireless technology and input on local means of delivery based on stakeholders' decisions. The author does discuss the intellectual property rights problem and the need to subsidize access in lesser developed regions

Effects of the HIV/AIDS pandemic on rural communities in ACP countries : a reader

BOTO, Isolina
WESSELER, Gesa
BERKHOF, Irene Prins
Eds
2004

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This reader synthesises information from a number of sources on the impact of HIV on rural communities. It focuses the effects in the agricultural sector, and the implications of 'crusscutting issues' of gender and youth. It explores possible mitigation strategies, and information and communication strategies; and identifies 'urgent actions' which include improving the use of and access to ICT

Wireless communication

VONK, Tjalling
MULDER, Rolof
March 2003

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The use of wireless networks in developing areas is promising. Since ground cables are only economic in high-density environments, a wireless network is much cheaper when long distances need to be crossed to rural areas

The one to watch : radio, new ICTs and interactivity

GIRARD, Bruce
Ed
2003

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This book presents examples of converging radio and new ICTs for development. The radio/telecommunications combination is helping keep communities together despite the distances imposed by migration. The book argues that radio will have even greater significance and value in years to come. It is split into five sections; concepts and context, gateways, networks, communication with migrants and rural radio. It features case studies where methods have been tried and proven

Providing low-cost ICT access to low-income communities in developing countries : what works? what pays?

CASPREY, G
O'CONNOR, D
2003

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This Organization for Economic Cooperation and Development report discusses the potential of and need for telecommunications development in rural areas of low-income countries. It outlines the main challenges, and describes sustainable options. The report also reviews low-cost options and summarizes policies that would support the more rapid diffusion especially telecommunications reform

Ancient roots, new shoots : endogenous development in practice

HAVERKORT, Bertus
VAN T' HOOFT, Katrien
HIEMSTRA, Wim
Eds
2003

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This book describes the approach of COMPAS, a network of partners that supports 'development from within', based on local knowledge and practices. The body of the book consists of case studies which illustrate how development can be based on locally available resources, knowledge, values and leadership institutions; how there can be genuinely local determination of development options; and how the benefits of development within local areas and communities can be fostered

Agricultural knowledge and information systems in Kenya : implications for technology dissemination and development

REES, David
et al
July 2000

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This paper reports on a study of agricultural knowledge and information systems (AKIS) undertaken by the Kenya Agricultural Research Institute and the Ministry of Agriculture. Field research was conducted in four districts of Kenya, including high-potential and pastoral areas, to document and assess the significance of different actors and organisations as potential uptake/dissemination pathways for agricultural technologies, and to consider ways to improve the performance of the knowledge and information systems in the districts. Databases of the organisations, institutions and actors involved in agriculture in the four districts were compiled, and a series of participatory and rapid appraisal exercises were carried out with people concerned with agriculture in selected sub-locations and divisions within each district

Grameen Telecom's village phone programme : a multi-media case study

RICHARDSON, Don
RAMIREZ, Ricardo
HAQ, Moinul
March 2000

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GrameenPhone is a commercial operation providing cellular services in both urban and rural areas of Bangladesh, with approximately 40,000 customers. This article describes the company's village phone programme, which is enabling women members of the Grameen Bank's revolving credit system to retail cellular phone services in rural areas. This pilot project currently involves 950 village phones providing telephone access to more than 65,000 people. Village women access micro-credit to acquire digital GSM cellular phones and subsequently re-sell phone calls and phone services within their villages

Locally generated printed materials in agriculture : an experience from Uganda and Ghana

CARTER, Isabel
1999

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This report examines the usefulness of locally generated information material to (near-) subsistence level farmers in Uganda and Ghana. It questions the assumption that non-literate farmers do not benefit from information material and shows the variety of vectors and strategies that communities use to disseminate new knowledge. It examines the conventional theoretical and practical bases for the provision of information and contrasts these with practice at community level. The starting point for the report is a survey of Footsteps readership by Tearfund. Footsteps is a widely disseminated newsletter on community development, aimed at near-subsistence level farmers. It seeks to provide farmers with printed agricultural information in their own language and appropriate for their situation

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