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Medication management for people with disabilities

SINGLECARE
September 2019

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This guide provides tips for people with disabilities and their caregivers to properly handle prescriptions and manage medications. Practical advice is given on:

  • How to read medication labels
  • Managing medications at home
  • Medication strategies for people with visual impairments
  • Medication management for people with a physical disability and/or mobility limitations
  • Medication management for people with intellectual disabilities
  • Tips for effective medication management as the caregiver of a person with a disability

AbilityNet Factsheets

ABILITYNET
2019

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AbilityNet’s Factsheets are free to download and provide advice and information about how computers and other digital technologies can help people with a range of conditions and impairments. 

Written by the AbilityNet specialist team of assessors and accessibility consultants they give detailed information on a wide range of assistive technology, services and related organisations. Many give a step by step guide to help you set up your computer and software (assistive technology) to meet your individual requirements.

 

Factsheets include

Creating Accessible Documents

Autism and Computers

Telephones and Mobile Phones

Communication Aids

Disability and Employment

Stroke and Computing

Multiple Sclerosis and Computing

Osteoarthritis and Computing

Vision impairment and Computing

Voice Recognition - An Overview

Hearing Loss and Computing

An introduction to screen readers

Parkinson's and Technology

Dementia and Computing

Dyslexia and Technology

Learning Difficulties and Computing

 

The contacts provided are UK based.

A new way to measure child functioning

UNICEF
WASHINGTON GROUP
May 2017

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"In recognizing the need for a set of questions that would produce internationally comparable data on children, the Washington Group formed a subgroup in 2009 that is chaired by the National Statistical Office of Italy (ISTAT). UNICEF joined the subgroup in 2011.

The first main activity of the subgroup was the development of a short set of questions to reflect current thinking on child functioning for inclusion in censuses and surveys. The new module uses the ICF-CY as the conceptual framework and relies on a functional approach to measuring disability.

The Washington Group/UNICEF Module on Child Functioning, finalized in 2016, covers children between 2 and 17 years of age and assesses functional difficulties in different domains including hearing, vision, communication/comprehension, learning, mobility and emotions. To better reflect the degree of functional difficulty, each area is assessed against a rating scale. The purpose is to identify the subpopulation of children who are at greater risk than other children of the same age or who are experiencing limited participation in an unaccommodating environment. The set of questions is intended for use in national household surveys and censuses"

The module is being translated into multiple languages. Supporting documentation, including a concept note, tabulation plan, templates for reporting, guidelines for interviewers and training materials are also available.

Able to include

INCLUSION EUROPE
February 2017

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"The ABLE TO INCLUDE solution improves the quality of life of people with intellectual or developmental disabilities (IDD) and similar conditions such as people affected by dementia or any kind of cognitive impairment. To achieve this, the project integrates a set of already-developed technologies to create a context-aware accessibility layer that, by being integrated with existing and future ICT tools, can improve the day-to-day life of people with IDD by understanding their surroundings and helping them to interact with the information society. The project focuses on the most important areas that a person needs to live independently and find fulfilment as an individual: to socialize in the context of the web 2.0, to travel independently and be able to work.

Three key technologies are used as a framework to develop everyday tasks:

Text and content simplifier
A pictogram-to-text, text-to-pictogram and pictogram-pictogram translation tool
Text-to-speech functionalities

These technologies are utilised to create an accessibility layer for people with IDD in everyday tasks within the framework of the information society. The accessibility layer is accessed through an open and free API that foster the introduction of an assistive technologies layer for people with IDD in any software development."

QualityRights materials for training, guidance and transformation

WHO
2017

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"As part of the QualityRights Initiative, WHO has developed a comprehensive package of training and guidance modules. The modules can be used to build capacity among mental health practitioners, people with psychosocial, intellectual and cognitive disabilities, people using mental health services, families, care partners and other supporters, NGOs, DPOs and others on how to implement a human rights and recovery approach in the area of mental health in line with the UN Convention on the Rights of Persons with Disabilities and other international human rights standards".

Inclusive democracies require voting rights for people with disabilities

NEIER, Aryeh
November 2011

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This blog post presents the story of a woman with Down Syndrome who initially was prevented from voting in Peruvian elections because of her intellectual disability but successfully won her right to vote. The article concludes by encouraging inclusive policies that support the participation of people with disabilities in political life
Note: This post is part of a blog series that reflects on The Open Society Foundations work to advance the rights of persons with disabilities around the world

Sexuality and relationships education for people with down syndrome

WOOD, Mandy
2004

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"This article describes why Sexuality and Relationships Education (SRE) as part of the school curriculum is especially important for individuals with Down syndrome and how parents and professionals can work together to ensure that it is delivered effectively"
Down Syndrome News and Update 4(2)

Enabling education network (EENET)

EENET

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This extensive website focusing on inclusive education is regularly updated, primarily with publications written by people working and living in the South. The website’s resources database covers a wide range of themes including: action research and image-based methodologies, early childhood, emergencies, deafness, gender, parents, policy, teacher education, among others. The website also contains EENET’s newsletters, plus event and job vacancy announcements.
The website is also available from EENET as a CD-ROM

Autism resources

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This website gives guidance about autism and includes online publications. It has a section on frequently asked questions and a booklist that points to resources that are related to autism and learning disabilities

Inclusion International

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This website promotes inclusion concerning all disability groups. It is translated into English, Spanish, French and German. It provides links to the organisation's regional programmes, as well as a list of publications on advocacy and human rights, self-advocacy, education, employment, social environment, family issues and services

The International Dyslexia Association website

THE INTERNATIONAL DYSLEXIA ASSOCIATION (IDA)

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This website promotes inclusion concerning all disability groups. It is translated into English and Spanish. The website has sections on research, assistive technology and public policy. It also has a frequently asked questions section

ADAPT - Knowledge Management Centre

ADAPT (formally SPASTICS SOCIETY OF INDIA)

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The Knowledge Management Centre, an ADAPT Oracle Project, was conceptualized by Dr. Mithu Alur with Mr. K. Harish. Its purpose was to use the knowledge gleaned over forty years and the experiences gained through the up scaling of the first model she set up, to create digitalization of content which is easy to understand, accessible and interactive

Diabetes : to the point

QUEENSLAND CENTRE FOR INTELLECTUAL AND DEVELOPMENTAL DISABILITY

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This website was created to communicate accessible health information for people with intellectual impairements. It features a management plan and a glossary of useful terms. This resource would be useful for anyone with an interest in diabetes and accessible health communication

Autism key

AUTISM KEY

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This website was created by and for parents of children with autism. It offers support, encouragement and access to new resources and information on autism and related issues

Downsed : discovering potential, transforming lives|Down syndrome online

THE DOWN SYNDROME EDUCATIONAL TRUST

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This website offers a broad range of information specific to down syndrome and assesses and evaluates programmes and processes that can facilitate the inclusive education of people with down syndrome. It features specific information on: employment, society and politics, motor skills, family, and numbers and mathematics

International workshop in CBR and persons with intellectual disabilities

ITALIAN ASSOCIATION AMICI DI RAOUL FOLLEREAU (AIFO)

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This website presents resources, images and related information from the International workshop on community-based rehabilitation (CBR) and persons with intellectual or learning disabilities on the occasion of the the First World CBR Congress. The workshop report and presentations are available in pdf format
"CBR and Persons with Intellectual Disabilities"
Agra, India
24-25 November 2012

Alternative formats

OFFICE FOR DISABILITY ISSUES

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This resource provides guidelines to producing alternative communication formats for making information more accessible. Specific information is provided for what is expected of government departments

History of learning disability

GOODEY, Chris
et al

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History of Learning Disability is a group of academics researching the history of learning disability, the history of intellectual disability, and the history of developmental disability. The website notes that it follows UK practice by using “learning disability” to cover all of them. This website and blog invites academic discussion about the changing ideas that have gone into the history of learning disability, as well as providing a bibliography and links to related history and intellectual disability resources

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