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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

The Malawi key informant child disability project

TATARYN, Myroslava
et al
August 2014

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“The aim of this study was to use the KIM to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. The Key Informant Method (KIM) is a novel method for generating these data. KIM focuses on training community volunteers to identify local children who may have disabilities, who are then screened by medical professionals and referred on for appropriate health and rehabilitation interventions. Consequently, the method offers an alternative to population-based surveys of disability in children, which can be costly and time consuming”

The Malawi key informant child disability project : summary report

TATARYN, Myroslava
et al
August 2014

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This report provides a summary of research project conducted by the International Centre for Evidence in Disability at the London School of Hygiene and Tropical Medicine and the University of Malawi. The study used the Key Informant Method (KIM) to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. This report presents summary of the study’s background information, aims and objectives, key findings, conclusions and recommendations

Community volunteers : an asset for detecting and following up children with disabilities

INTERNATIONAL CENTER FOR EVIDENCE ON DISABILITY (ICED)
December 2012

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This video presents a  recording of a seminar held at the London School of Hygiene and Tropical Medicine (LSHTM) in November 2012.  The seminar explores the findings and recommendations from a four year CBM-funded project in Bangladesh and Pakistan to identify children with disabilities and connect them with appropriate rehabilitative services

World Health Statistics 2012

WORLD HEALTH ORGANISATION (WHO)
2012

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"World Health Statistics 2012 contains WHO’s annual compilation of health-related data for its 194 Member States, and includes a summary of the progress made towards achieving the health-related Millennium Development Goals (MDGs) and associated targets. This year, it also includes highlight summaries on the topics of noncommunicable diseases, universal health coverage and civil registration coverage"
Note: The summary brochure, full report, report in English by section, the indicator compendium and printed copy order forms are available from the link above

CVD project evaluation : baseline diabetes study, Davao, Philippines 2010

PILLERON, Sophie
June 2011

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This study gathered baseline data for the CVD Project evaluation. "This study also concerned gathering information on the nature of diabetes and common practices in diabetes management and care, to improve project implementation strategy and data on promoting health care services in the community...This study was the first part of a quasi-experimental before-after here-there study conducted in 10 intervention barangays and 5 control barangays of Davao City. The study population consisted of people with diabetes aged 20 years and above who had visited the Barangay Health Centre and had proof of a doctor’s diagnosis for diabetes mellitus or proof of a relative-to-diabetes medicine prescription...Despite its limitations, this study provides a first insight on the people living with diabetes in Davao City. With 72% of diabetics having uncontrolled glycaemia, this study shows the relevance of the CVD project. As a baseline, this study provides comparison elements for the 2013 survey in order to test effectiveness of the CVD project with the percentage of diabetics with HbA1c<6.5% as effectiveness criterion"
DS/RD 01

Tele-neurosurgery facility inaugurated in Banglore hospital

September 2005

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A report on the inauguration of the tele-neurosurgery facility at Manipal Hospital in Bangalore. The facility will allow access to consultants working in the neurosurgical intensive care unit at the hospital and the unit will additionally provide continuous medical education in the form of talks, workshops and live surgical demonstrations

Women's stories, women's lives : experiences with cervical cancer screening and treatment

BOYD, Anne R
BURNS, Michele
Eds
2004

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This publication is a collection of stories based on interviews with women in developing countries who participated in ACCP programmes. These women's stories illustrate the unnecessary suffering cervical cancer can cause women and their families and how prevention programs can save women's lives. ACCP projects have focused on regions in which cervical cancer incidence and mortality are highest: sub-Saharan Africa, Latin America and South Asia, and have also focused on reaching women in their 30s and 40s

The 10/90 report on health research 2001-2002

GLOBAL FORUM FOR HEALTH RESEARCH
2002

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Describes the relationships between health & health research, development, poverty alleviation and global security. Explores the idea of health research governance, and recent initiatives in this area. Reviews progress made in the field of priority-setting methodologies, including the 'combined approach matrix'. Gives overview of research priority areas, summarizes public and private investment in health research. Reviews efforts to build networks and partnerships in some priority areas

Speaking of health : assessing health communication strategies for diverse populations

INSTITUTE OF MEDICINE
2002

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This book looks at the challenges of delivering important health messages to different audiences. Using case studies in the areas of diabetes, mammography, and mass communication campaigns, it examines the ways in which messages must be adapted to the unique informational needs of their audiences if they are to have any real impact. It also looks at basic theories of communication and behaviour change and focuses on where they apply and where they don't. Although written for the context of the USA, the principles of adapting health messages to the needs of minority populations may have relevance in developing countries

Exploring the divide : illness and disability

BARNES, Colin
MERCER, Geof
Eds
1996

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Largely based on themes from a conference on illness and disability, this resource is divided into three inter-connected themes: definitions, identity and environment. The aim of the work is to examine the relationship and distinctions between medical sociology and disability theory. The chapters cover a range of key issues, including but not limited to: defining and researching disability: negative attributes of self: radical surgery and the inner and outer lifeworld; and, identity crisis: mental health user groups and the "problem" of identity. This work would be useful for anyone with an interest in approaches to disability and disability research

Global health observatory (GHO) : non-communicable diseases (NCD)

WORLD HEALTH ORGANIZATION (WHO)

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This area of the global health observatory (GHO) provides access to WHO's global non-communicable disease (NCD) statistics. It presents general NCD information, mortality and morbidity statistics, risk factors, and the health system’s response and capacity to address and respond to NCDs. Links are also provided to related NCD data products. This database is useful to anyone interested in NCD related statistics and data

The WHO global infobase

WORLD HEALTH ORGANIZATION (WHO)

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"The WHO Global InfoBase is a data warehouse that collects, stores and displays information on chronic diseases and their risk factors for all WHO member states...The Infobase assembles, for the first time in one place, non-communicable disease (NCD) risk factor data collected from WHO Member States. NCD risk factor data are crucial for predicting the future burden of chronic diseases in populations and also for identifying potential interventions to reduce the future burden. The Infobase online dissemination tool provides not only data but also health information to help users understand health enquiries worldwide and improve the health of nations." NCD indicators, mortalities and country profiles are provided, displaying the information with user-friendly tools including graphs, maps and data tables. This database is useful to anyone interested in NCD related statistics and data

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