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Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

KRAMER-ROY, Debbie
2015

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Participatory and creative research methods are a powerful tool for enabling active engagement in the research process of marginalised people. It can be par- ticularly hard for people living with multiple disadvantage, such as disabled peo- ple from ethnic minority backgrounds, to access research projects that are relevant to their lived experience. This article argues that creative and participa- tory methods facilitate the co-researchers’ engagement in the research process, which thus becomes more empowering. Exploring the congruence of these meth- ods with their professional ethos, health and care professionals can use their skills to develop them further. Both theory and practice examples are presented.

Being black in a white skin: Beliefs and stereotypes around albinism at a South African university

PHATOLI, Relebohile
BILA, Nontembeko
ROSS, Eleanor
2015

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Background: Partly because of the legacy of apartheid, and despite being a constitutional democracy, South Africa continues to be a deeply divided society, particularly along racial lines. In this context many people with albinism do not fit neatly into black and white categories and are likely to experience social discrimination and marginalisation.

 

Objectives: The study endeavoured to explore the beliefs and practices regarding albinism within a South African university, and the availability of support services.

 

Method: The research was located within an interpretive qualitative paradigm and was framed within the theories of stigma, discrimination and ‘othering’. Interviews were conducted with five students with albinism and 10 students without albinism.

 

Results: Findings confirmed the existence of myths and stereotypes regarding albinism. Students with albinism tended to exclude themselves from the rest of the student community to avoid discrimination and stereotypes around their condition.

 

Conclusion: People with albinism can teach us about social constructions of race, colour and relations between minority groups and the majority culture. Results have implications for schools, disability units at universities, and albinism societies in terms of opening up channels of communication between people with albinism and the general public and fostering knowledge and awareness thereof.

Cultural beliefs and practices that influence the type and nature of data collected on individuals with disability through national census

GROCE, Nora
March 2015

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Collection of data about disability in a census or survey context is influenced by the cultural context, particularly the beliefs and practices within the communities where the data are collected. Attitudes toward individuals with disability will influence what questions are asked, how such questions are framed, and how individuals in the community will respond to these questions. This article examines how culturally defined concepts of disability influence the development of questions on the topic, as well as helps determine who asks the questions and who answers the questions. These issues in turn influence how much data are collected and how accurate the data are. It also examines how ethnic diversity and poverty contribute to these questions. Recommendations for attention to these issues are made by census and survey.

Young people with intellectual disability—The role of self-advocacy in a transformed Swedish welfare system

TIDEMAN, Magnus
SVENSSON, Ove
2015

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A growing number of young people in Sweden with intellectual disability have organized themselves during the last 15 years in self-advocacy groups for socializing, empowerment, and expressing opposition to the norms and attitudes in a society that labels them as disabled. At the same time, the Swedish welfare system has transformed dramatically with processes of far-reaching individualization, closure of the major institutions, decentralization of responsibility from the state to local governments, and an emerging welfare market where service users are turned into customers. The aim of this article is to analyse and discuss the significance of self-advocacy in the new welfare context. Data were collected over a period of more than 10 years using repeated interviews with members of two self-advocacy groups and participation observations. Findings suggest that participation in self-advocacy groups opens up members for increasing health and well-being through new roles and identities, and it strengthens their control over everyday life. Support is still needed, however, but in new ways; otherwise, the restrictions of the institutions will simply be reconstructed in the new welfare system.

‘Disabled asylum seekers?… They don’t really exist’: The marginalisation of disabled asylum seekers in the UK and why it matters

YEO, Rebecca
2015

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This paper is based on a study conducted with disabled people seeking asylum in the UK, using art as a means to bring out and promote people’s key messages in public spaces. The findings suggest that people with these intersecting identities lack sufficient numbers, resources or allies to assert their needs and rights in statutory, nonstatutory or even peer support organisations in the UK. This results in such deprivation and isolation, that their very existence is often obscured. The paper argues that not only does such marginalisation cause unnecessary suffering among those directly affected, but also negatively impacts on the whole population. A hierarchy of entitlement may impede recognition of the causes and commonalities of oppression and therefore also hinder solidarity. Where reduced standards become acceptable for certain people, the imposition of similar standards on others is facilitated, particularly in the context of neo-liberal austerity. Many of the recent restrictions imposed on disabled citizens and other benefit recipients have been used on disabled asylum seekers for more than a decade. If, as Barbara Young Welke suggests (2010:156) the problem is systemic, then inclusion cannot be the solution. This paper concludes that systemic change is needed to end the differential ranking of people’s worth and to build greater solidarity.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 1

Childhood Sexual Abuse and Disability: A critical study of an invisibilized constituency in India

VAIDYA, Shruti
2015

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This paper explores childhood sexual abuse as understood by disabled individuals from their particular locations. The paper reports on qualitative research with disabled adults identifying themselves as survivors/victims of childhood sexual abuse. In the Indian context, Childhood sexual abuse has been understood in a monolithic way, erasing all differences that exist among children from different social locations. The paper attempts to provide an alternative perspective by focusing on the specificities of the experiences of disabled persons. The textual sources examined in the paper investigate the concept of childhood, disability and sexuality and their interconnections, both in the Western and the Indian context. Discourses that construct children as passive and ignorant make it important to provide narratives which capture strategies of resistance within power structures which constrain choices. This paper makes an attempt to document and analyze the experiences of disabled individuals who have undergone childhood sexual abuse within the larger context of Indian laws, non-governmental organisations (NGOs) which engage with the concept and reportage and which represent dominant views on Childhood sexual abuse and disabilities.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 2

How disability studies and ecofeminist approaches shape research: exploring small-scale farmer perceptions of banana cultivation in the Lake Victoria region, Uganda

LEADBEATER, Bridget
2015

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This paper explores the complex intersections of race, gender and disability, whilst offering a critical reflection on how disability studies discourse and ecofeminist approaches together elucidate a subjectivity that is unique, distinct and influential in generating participatory action research knowledge. Reflection and insights are based on empirical work with small-scale farmers (mainly women) in the central region of Uganda carried out for a PhD study. The study aimed to illuminate the broad and complex livelihood experiences of domestic banana (staple crop) cultivators and their perceptions of bio-technological intervention in the form of banana tissue culture (TC) and the associated processes. Subjectivity between the researcher and respondents is a two-way process. As a researcher who is disabled woman using a wheelchair, working in the field required much adaptation physically and mentally. Equally, my disability shaped respondents’ perceptions of me as a person, a researcher as well as their responses. In fact, arguably, my disability facilitated unusual circumstances and opened up doors to sensitive questions, personal accounts and a mutual rapport between the farmers and myself. The influence of the disabled research subject fostered exceptional conditions to propagate inclusive investigative methods to represent ‘the lived experience’ of the farmer in a procedure not often applied in agricultural research.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 3

Disability and the Global South (DGS), 2015, Vol. 2, No. 1 - Special issue: Disability and Forced Migration

2015

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Articles include:

  • EDITORIAL Towards a Critical Understanding of the Disability/Forced Migration nexus
  • Disability and Forced Migration: Critical Intersectionalities
  • Disability and displacement in times of conflict: Rethinking migration, flows and boundaries
  • ‘Ask us what we need’: Operationalizing Guidance on Disability Inclusion in Refugee and Displaced Persons Programs
  • Disability-inclusive healthcare in humanitarian camps: Pushing the boundaries of disability studies and global health
  • ‘Nowhere to be found’: disabled refugees and asylum seekers within the Australian resettlement landscape
  • ‘Disabled asylum seekers?… They don’t really exist’: The marginalisation of disabled asylum seekers in the UK and why it matters

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