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Understanding paid support relationships: possibilities for mutual recognition between young people with disability and their support workers

ROBINSON, Sally
GRAHAM, Anne
FISHER, Karen R
NEALE, Kate
DAVY, Laura
JOHNSON, Kelley
HALL, Ed
2020

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The quality of paid relationships is key for effective support, yet little is known about how people receiving and providing sup- port understand and experience the relationship. This paper reports on recent research that explored the role of relationships with paid support workers in strengthening the rights and well- being of young people with cognitive disability in Australia. The research used photo-rich participatory methods with 42 pairs of young people and their support workers and drew on Honneth’s recognition theory to specifically explore experiences of being valued, respected and cared about in their work together. The findings point to the importance of these con- nected aspects of recognition in paid support relationships, highlighting both the presence and absence of these, as well as experiences of misrecognition. The implications of recognition for strengthening support need close consideration in an inter- national context characterised by personalisation of support, resource constraints and inquiries into poor practice.

Gender, sexuality and relationships for young Australian women with intellectual disability

O’SHEA, A
FRAWLEY, P
2019

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Gender has often been overlooked in the lives of people with intellectual disability, resulting in a limited understanding and service response. This is in part due to a lack of knowledge about the way people with intellectual disability negotiate and build a gendered identity. In this article we present research undertaken with six young women with an intellectual disability who worked with the first researcher to co-develop some stories from their lives. We show how, facilitated by an innovative method which focused on meaningful engagement, the women told stories of richly gendered lives and subjectivities. Their stories showed how gender can be a desired and productive subjectivity, and how consideration of gender can help to identify resistance and agency in their lives. Their stories illustrate how gender is necessary in forming a comprehensive understanding of the lives of women with intellectual disability.

Disability, family and identity

SCHNEIDER, Cort
October 2016

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Many people with disabilities struggle with issues that relate to identity development.  Many people with disabilities find it difficult to develop a positive sense of self. There is also no question that familial relationships play a significant part in the process of identity construction for people with disabilities. Thus, it is important to examine how family relationships influence the process of identitydevelopment for people with disabilities. Conversely, it relevant to explore how a person’s identity development can impact his or her relationship with family members. This article employs an autoethnographic approach to research in order to examine issues that relate to disability, identity and family. It elucidates the complex nature of family scripts and identity. In addition this paper contends that the process that an individual goes through in order to “come to terms” with a disabled identity, can transform the relationships that an individual has with various family members.

 

Considering Disability, Vol.1, Issue 3&4

DOI: 10.17774/CDJ1.32016.2.20575874

Oscar Pistorius and the melancholy of intersectionality

SWARTZ, Leslie
2013

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The alleged shooting by Paralympian and Olympian athlete Oscar Pistorius of his girlfriend Reeva Steenkamp has led to strong reactions worldwide. Scholars in the field of disability studies have expressed shock and disappointment in response both to the death itself and to its implications for the representation of disability. In South Africa in the wake of the death of Ms Steenkamp, much has been made both by critics of Pistorius and by his defenders about his status as a white South African man, but little has been said about disability issues. This silence in South Africa about disability as a possible identity factor in this case draws attention to the extent to which disability questions remain profoundly raced and gendered, and influenced by the colonial and apartheid past. The tragic alleged shooting by Oscar Pistorius draws attention back to how important intersectionality is to understanding disability in South Africa and other unequal societies.

Violence and abuse towards persons with disabilities : international workshop report

DEEPAK, Sunil
et al
2013

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This second part of a community-based rehabilitation workshop report focuses on issues of violence, abuse and sexual abuse towards persons with disabilities. This report presents the information exchanged through formal presentations, personal testimonies, film clips, sharing of experiences and discussions around the workshop theme. The report highlights the main findings and presents five key recommendations
"Going beyond the taboo areas in CBR" workshop, part 2
Agra, India
30 November 2012

Fact sheet : youth with disabilities

UNITED NATIONS PROGRAMME ON YOUTH
2010

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This fact sheet presents general information about youth with disabilities worldwide. It highlights the following specific topics: prevalence, poverty, family situation, education, transition into working life and financial independence, employment, sex and relationship, acceptance and the Convention on the Rights of Persons with Disability (CRPD). This factsheet is useful for people interested in youth with disabilities

Talking about sex and relationships : the views of young people with learning disabilities

CHANGE
2009

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"This report talks about the Sex and Relationships project. This was a 3-year project that took place at CHANGE, a leading national organisation led by disabled people that is based in Leeds, in England, that fights for the rights of people with learning disabilities...The project found out about the views and experiences of young people with learning disabilities about sex and relationships"

The reproductive rights of adolescents : a tool for health and empowerment

CENTER FOR REPRODUCTIVE RIGHTS
September 2008

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This briefing paper outlines the general framework of adolescents’ reproductive and sexual rights. It addresses core concerns for adolescents rights and discusses governments’ legal duties to address those concerns. The areas of focus are sexuality education; access to confidential health care; child marriage and lack of educational opportunity; sexual violence; and female genital mutilation. The promotion of adolescent health and autonomy are considered primary goals for advocates and lawmakers

Understanding and challenging HIV stigma : toolkit for action Module J : young people and stigma

CLAY, Sue
CHIIYA, Chipo
CHONTA, Mutale
June 2007

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This is the seventh booklet in this revised toolkit to raise awareness and promote practical action to challenge HIV stigma and discrimination. The module focuses on young people and stigma. Stigma towards young people is similar to that faced by adults, but it is often exacerbated because of vulnerability and judgements about age, morality, education and experience. The impact of stigma on young people has many consequences, including exclusion, isolation, dropping out of school, delaying starting ARV treatment, and suicide or thinking about suicide. The toolkit was written by and for HIV trainers in Africa and changes and additions were made with the help of a regional trainers network workshop in Zambia in August 2005

Susan's sex support site

February 2005

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This website offers a number of online resources about disability and sexuality. Topics include gay and lesbian sexuality, aging and sexuality, sexuality and disabled adolescents, and more. The site also contains references to other resources and an online forum

Sexuality and relationships education for people with down syndrome

WOOD, Mandy
2004

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"This article describes why Sexuality and Relationships Education (SRE) as part of the school curriculum is especially important for individuals with Down syndrome and how parents and professionals can work together to ensure that it is delivered effectively"
Down Syndrome News and Update 4(2)

Believe in yourself : GET SEXY

BURKITT
1996

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This article discusses a range of issues facing disabled people and sexuality. Disabled people are not seen as 'sexy' in society and are not allowed to develop a sense of sexuality - for example through the media. Young disabled people may also lack adequate sex education and may be sheltered from developing their sexuality by over-protective parents

The sexual politics of disability : untold desires

SHAKESPEARE, Tom
GILLESPIE-SELLS, K
DAVIES, Dominic
1996

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This book attempts to explore the emotional and sexual experiences of disabled people in a variety of key areas, relying predominantly on the verbatim accounts of disabled people themselves

The mating game

AMATH, Eowyn
1996

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This article is a brief discussion of the problems that disabled people in the UK have in meeting and forming relationships with potential partners

Sexuality and spinal cord injury : heterosexual women

HOOPER, Mandy
1993

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The booklet explores aspects of intimacy, love and sex in women with spinal cord injuries. The emphasis in this booklet is on issues of sexual identity, self-awareness, fears and anxieties, contraception and the prevention of sexually transmitted diseases

Sexuality and disability

POINT OF VIEW
CREA

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This website is focuses upon questions a woman with a disability might have - about her body, about the mechanics and dynamics of having sex, about the complexities of being in an intimate relationship or having children, about unvoiced fears or experiences of encountering abuse in some form. It discusses a wide range of topics related to sexuality and presents verious perspectives. this website is useful to anyone interested in sexuality and disability

Violence and abuse towards persons with disabilities

AMICI DI RAOUL FOLLEREAU (AIFO)

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This website presents the workshop reports and presentations from the second part of an international workshop on "Going beyond the taboos in community-based rehabilitation (CBR)." The workshop focused on violence and abuse towards persons with disabilities and role of CBR in preventing them and supporting the victims. Links are provided to the workshop report and presentations in pdf format
"Going beyond the taboo areas in CBR" workshop, part 2
Agra, India
30 November 2012

CBR, social relationships, sexuality and reproductive rights

AMICI DI RAOUL FOLLEREAU (AIFO)

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This website presents the workshop reports and presentations of the first part of an international workshop titled: "Going beyond the taboos in community-based rehabilitation (CBR)." The workshop focused on social relationships, sexuality and reproductive rights. Links are provided to the workshop report and presentations in pdf format “"Going beyond the taboo areas in CBR" workshop, part 1
Agra, India
29 November 2012

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