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COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State

LANDES, Scott D.
TURK, Margaret A.
FORMICA, Margaret K.
McDONALD, Katherine E.
STEVENS, J. Dalton
June 2020

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In order to investigate whether people with intellectual and developmental disabilities (IDD) are at higher risk of severe outcomes from COVID-19, the COVID-19 outcomes among people with IDD living in residential groups homes in the state of New York and the general population of New York State were compared. Data for people with IDD are from a coalition of organizations providing over half of the residential services for the state of New York, and from the New York State Department of Health. Analysis describes COVID-19 case rates, case-fatality, and mortality among people with IDD living inresidential group homes and New York State through May 28, 2020

 

Disability and Health Journal, https://doi.org/10.1016/j.dhjo.2020.100969

 

Extra costs of living with a disability: A review and agenda for research

MITRA, Sophie
PALMER, Michael
KIM, Hoolda
MONT, Daniel
GROCE, Nora
April 2017

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Background
There has been a growing interest in disability and poverty on the international research and policy stages. Poverty assessments for persons with disabilities may be affected by the experience of extra costs associated with a disability.

Objective
This article provides a systematized review of the global literature on the direct costs associated with living with a disability at the individual or household level.

Methods
We searched three databases for peer-reviewed journal articles that estimated extra costs associated with disability: Econlit, SocIndex and PubMed.

Results
We found 20 such studies conducted in 10 countries. These studies were predominantly from high-income countries. Although studies were heterogeneous (e.g., in terms of disability measures and cost methodologies), estimated costs were sizeable and some patterns were consistent across studies. Costs varied according to the severity of disability, life cycle and household composition. Highest costs were observed among persons with severe disabilities, and among persons with disabilities living alone or in small sized households.

Disability and Health Journal
Volume 10, Issue 4, October 2017, Pages 475-484
https://doi.org/10.1016/j.dhjo.2017.04.007

Association between Zika virus infection and microcephaly in Brazil, January to May, 2016: preliminary report of a case-control study

DE ARAUJO, Thalia Velho Barreto
et al
December 2016

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The microcephaly epidemic, which started in Brazil in 2015, was declared a Public Health Emergency of International Concern by WHO in 2016. Preliminary results of a case-control study investigating the association between microcephaly and Zika virus infection during pregnancy are reported. A case-control study was carried out in eight public hospitals in Recife, Brazil. Cases were neonates with microcephaly. Two controls (neonates without microcephaly), matched by expected date of delivery and area of residence, were selected for each case.

The Lancet Infectious Diseases,  Vol. 16, No. 12, pp. 1356–1363, Dec 2016

DOI: http://dx.doi.org/10.1016/S1473-3099(16)30318-8

Changing attitudes to child disability in Africa

THE LANCET
December 2014

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This brief editorial published in the Lancet highlights the situation of disabled children in Africa with reference to the 2014 publication of The African Report on Children with Disabilities by The African Child Policy Forum

 

The Lancet, Vol 384, No. 9959

Assessment of neurodisability and malnutrition in children in Africa

GLADSTONE, Melissa
MALLEWA, Mac
ALUSINE JALLOH, Alhaji
VOSJUIKL, Wieger
POSTELS, Douglas
GROCE, Nora
KERAC, Marco
MOLYNEUX, Elizabeth
March 2014

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Neurodevelopmental delay, neurodisability, and malnutrition interact to contribute a significant burden of disease in global settings. Assessments which are well integrated with plans of management or advice are most likely to improve outcomes. Assessment tools used in clinical research and programming to evaluate outcomes include developmental and cognitive tools that vary in complexity, sensitivity, and validity as well as the target age of assessment. Few tools have been used to measure socioemotional outcomes and fewer to assess the disabled child with malnutrition. There is a paucity of tools used clinically which actually provide families and professionals with advice to improve outcomes. Brain imaging, electroencephalography, audiology, and visual assessment can also be used to assess the effect of malnutrition on brain structure and function. The interaction of neurodisability and malnutrition is powerful, and both need to be considered when assessing children.

Seminars in Pediatric Neurology, Child Neurology in Africa, Volume 21, Issue 1, March 2014, Pages 50–57

A data revolution for disability-inclusive development

MITRA, Sophie
August 2013

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This article examines data collection and monitoring for disability-inclusive development. It discusses the need for a data revolution and the UN's Washington City Group on Disability Statistics’ questions as a measurement example
The Lancet Global Health, Early Online Publication

Access to health care, reproductive health and disability: A large scale survey in Sierra Leone

GROCE, Nora
TRANI, Jean-Francois
BROWN, Joyce Brown
KETT, Maria
BAH, Osman
MORLAI, Teddy
BAILEY, Nicki
2011

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This is the first study to compare health status and access to health care services between disabled and non-disabled men and women in urban and peri-urban areas of Sierra Leone. It pays particular attention to access to reproductive health care services and maternal health care for disabled women. A cross-sectional study was conducted in 2009 in 5 districts of Sierra Leone, randomly selecting 17 clusters for a total sample of 425 households. All adults who were identified as being disabled, as well as a control group of randomly selected non-disabled adults, were interviewed about health and reproductive health. As expected, we showed that people with severe disabilities had less access to public health care services than non-disabled people after adjustment for other socioeconomic characteristics (bivariate modelling). However, there were no significant differences in reporting use of contraception between disabled and non-disabled people; contrary to expectations, women with disabilities were as likely to report access to maternal health care services as did non-disabled women. Rather than disability, it is socioeconomic inequality that governs access to such services. We also found that disabled women were as likely as non-disabled women to report having children and to desiring another child: they are not only sexually active, but also need access to reproductive health services.

Sexual violence victimization against men with disabilities

MITRA, Monika
MOURADIAN, Vera E
DIAMOND, Marci
October 2011

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This article presents information supporting that men with disabilities are at a heightened risk for lifetime and current sexual violence. The article documents the prevalence of lifetime and past-year sexual violence victimization among a representative sample of men with disabilities in Massachusetts and compares its prevalence among men with disabilities to that of men without disabilities and women with and without disabilities
American Journal of Preventive Medicine, Vol 41, No 5

Approaching the measurement of disability prevalence : the case of Zambia

LOEB, Mitchell E
EIDE, Arne H
MONT, Daniel
January 2008

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"Results from a national, representative survey of living conditions among people with disabilities in Zambia based, in part, on the work of the Washington Group on Disability Statistics (WG) that operationalises a functional approach to disability are presented and contrasted with historical census data to illustrate how a flexible approach to the measurement of disability is better suited to the multiple purposes of collecting disability statistics and to the diversity of disability in a population"
Alter, European Journal of Disability Research, Vol 2, No 1

Immunization rates among disabled children in Ecuador: Unanticipated findings

GROCE, Nora
AYORA, Paolo
KAPLAN, Lawrence
August 2007

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Researchers hypothesize that impoverished parents in developing countries may forego provision of healthcare for disabled children, instead allocating scarce resources to nondisabled children or other household needs. We compared the immunization rates of 32 children with complex special heathcare needs with those of 95 nondisabled siblings in coastal Ecuador. Almost 100% (31 of 32) of the disabled children studied were immunized at a rate comparable with their nondisabled siblings. We propose that this finding is attributable to an effective national immunization program and to positive local sociocultural attitudes toward disability. These findings underscore the need for more research on disability across cultures.

Physical medicine and rehabilitation clinics of North America : new advances in prosthetics and orthotics

KRAFT, George H
BOSWELL, Mark H
Eds
February 2006

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"This issue reviews the biomechanical assessment of the lower limb as well as discussing new dynamic lower limb orthoses used to compensate for weakness. Although lower limb amputations are less common than in the past, they still occur, and new developments are discussed. These include new developments in postoperative management, new socket designs and suspensions, new prostheses, and microprocessors for knee units. One of the newest concepts discussed is the use of the Lokomat robotic gait orthosis for gait retraining. The most striking of the new developments in upper limb prosthetics is the work done on myoelectric designs with myoelectric implants as a means of control. These are discussed in detail by a physician and prosthetist familiar with these topics. Other important topics are also covered. These include scoliosis treatment using spinal orthoses, orthotic management of the limb suffering from neuropathic pain, and the use of prosthetics in pediatric amputations"
Physical medicine and rehabilitation clinics of North America, Vol 17, No 1

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