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“Aid out of reach”: untold stories from people with disabilities

Light for the world
July 2020

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Humanitarian organisations can learn a lot from what happened during the Cyclone Idai aid response. The cyclone and its impact made global headlines. The NGO community reacted fast. More than 400 organisations and 1,000 aid workers were rapidly deployed to the affected areas of Mozambique. But what happened next remains untold.

Their stories, which form the basis of our recommendations, can help key actors improve their responses to other crises, including COVID-19.

Aid out of reach: A review of the access to humanitarian aid for women and men, girls and boys with disabilities affected by Cyclone Idai, Mozambique

BAART, Judith
WESTER, Mirian
2019

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The objective of this study is to generate empirical evidence on the barriers to accessing aid for women and men, girls and boys with disabilities in a post-Cyclone Idai context. By doing so, it also seeks to contribute to policy development for an inclusive humanitarian response in Mozambique

The research followed a qualitative design, using interviews and focus group discussions followed by inductive analysis to reveal dominant themes and stories. Data was collected in 30 in-depth interviews with women and men, girls and boys with disabilities and/or caregivers in communities (Beira), as well as in resettlement sites (Dondo).

Estimating the intracluster correlation coefficient for trachomatous inflammation-follicular in population-based trachoma prevalence surveys: results from a meta-regression of 261 standardised pre-intervention surveys in Ethiopia, Mozambique, and Nigeria.

MACLEOD, Colin
et al
September 2019

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This study used a parametric bootstrap model to estimate intracluster correlation coefficient (ICC) for trachomatous inflammation-follicular (TF) in 1-9 year-olds, from 261 population-based trachoma prevalence surveys completed using standardised GTMP methodologies in Ethiopia, Mozambique, and Nigeria from 2012-2016.

Results from this study were used to draw up the most recent WHO 2018 recommendations on design effect (DE) estimates for sample size calculations for survey

 

American Journal of Epidemiology, 2019 Sep 11. pii: kwz196

doi: 10.1093/aje/kwz196

 

 

Rapid assessment of avoidable blindness (RAAB) and disability and equity survey. Nampula, Mozambique

SIGHTSAVERS
July 2019

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This report describes the findings of a rapid assessment of avoidable blindness (RAAB) conducted in Muchinga Province, Zambia in 2017.

The prevalence of blindness was just over 4% and the major cause was cataract, followed by glaucoma. Only 37% of people who require cataract surgery have received it, meaning there is an urgent need to scale up access to cataract surgical services in the province.

In addition to the standard RAAB questionnaire, an additional two sets of questions were administered to the participants to understand their disability and socioeconomic status: the Washington Group Short Set of Questions on Disability (WGSS) and the Equity Tool (ET)

Sightsavers' approach to making health services inclusive for everyone

Sightsavers
April 2019

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Sightsavers has produced a new film that sets out our work to make health care services accessible and inclusive for everyone. It focuses on our programmes in Bhopal, India and Nampula, Mozambique. This highlights how we work and share learnings globally, but also shows how programmes can be made locally relevant by working with partners with direct experience.

The film showcases some of the people who work hard to make our inclusive health programmes a success, from Sightsavers experts and government health workers to leaders of disabled people’s organisations.

To find out more our inclusive health work and how we are developing best practice in terms of inclusive health programmes, visit our website: https://www.sightsavers.org/disability/health/

Including children with disabilities in preschool education. Experiences of Plan International Mozambique

PLAN INTERNATIONAL
August 2018

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Between 2015 and 2017, Plan International Mozambique worked together with communities supporting 106 preschools in rural Mozambique. In late 2016, an approach was piloted in 18 community-based preschools to support them to be disability-inclusive. The overall goal was to increase the number of children with disabilities enrolled in Early Childhood Care and Education (ECCE) centres delivering quality early learning opportunities. The pilot took place over a 12 month period. Summarised findings about the current status of inclusion in preschool programmes run by Plan International Mozambique, case studies and lessons learned about the inclusion of children with disabilities in these programmes are provided.  

 

They describe five aspects that need to be considered to remove barriers and ensure that children with disabilities can access and benefit from early childhood education:

1. Work directly with the parents of children with disabilities

2. Address individual physical and medical needs of children with disabilities

3. Build the skills and confidence of caretakers

4. Equip and build a strong implementing team

5. Build evidence on what is happening and what (doesn’t) work

Fair’n square : a fair and equal world for all children

UNICEF
HANDICAP INTERNATIONAL
2015

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This website presents information about a joint UNICEF-Handicap International programme on child disability in two cities of Mozambique, Maputo and Matola. The focus of the project was to first identify children with disabilities and then ensure that these children could access services. The website features a useful video and practical case studies

Equal basis 2014 : access and rights in 33 countries

BURKE, Megan
PERSI VICENTIC, Loren
December 2014

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This report presents research about efforts to meet the needs and uphold the rights of persons with disabilities in four thematic areas: health care, rehabilitation, work and employment, and accessibility and enabling environments. Research findings are drawn from the experiences of landmine and cluster munition survivors and other persons with similar needs in 33 countries experiencing armed conflict or emerging from armed conflict or political or economic transition. Findings are placed within the context of relevant articles of the Convention on the Rights of Persons with Disabilities and the World Report on Disability

Applied research on disability in Africa : general mapping

INTERNATIONAL FOUNDATION OF APPLIED DISABILITY RESEARCH (FIRAH)
2014

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“The goal of this literary review is to report on existing knowledge about applied research on the African continent, regarding the living conditions of people with disabilities, poverty, violence and sexual abuse especially regarding children and women with disabilities, community-based rehabilitation and employment”

Equal right, equal opportunity – Inclusive education for children with disabilities

WALKER, Jo
2013

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This report synthesises current evidence on the policy responses which can help bring down the common barriers faced by disabled children in gaining a quality education, across seven inter-dependent strategies – from the family, local communities and national government, through to the international community. 

 

The strategies are: create appropriate legislative frameworks, and set out ambitious national plans for inclusion; provide the capacity, resources and leadership to implement ambitious national plans on inclusion; improve data on disability and education, and build accountability for action; make schools and classrooms accessible and relevant for all; ensure there are enough appropriately trained teachers for all; challenge attitudes which reinforce and sustain discrimination; create an enabling environment to support inclusive education, including through cross-sectoral policies and strategies that reduce exclusion.

 

Actions to be taken by national governments to achieve these strategies are presented.

 

Case studies in India, Italy, Ethopia, Bolivia, Bangladesh, Mozambique, Gambia, Burkino Faso and Palestine are provided.

 

 

Inclusion through community based rehabilitation : lessons learned in Burkina Faso, Ethiopia & Mozambique 2009 - 2011

LIGHT FOR THE WORLD
2012

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"The LIGHT FOR THE WORLD Community Based Rehabilitation (CBR) Framework brought together 14 CBR projects in Ethiopia, Burkina Faso and Mozambique between 2009 and 2011 to share experiences and learning. This report reflects the experiences of the projects during this period and the lessons learned that can provide invaluable learning for other CBR projects. It also provides a useful record of the projects’ activities and outcomes, and enables future planning"

Developing intervention strategies to improve community health worker motivation and performance

FRANK, Tine
KALLANDER, Karin
2012

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"This 28-page learning paper describes Malaria Consortium’s experience with Integrated Community Case Management (ICCM) in malaria prevention and treatment in Mozambique and Uganda. ICCM is an approach where community-based health workers are trained to identify, treat, and refer complex cases malaria (and other diseases) in children"
The Learning Series Papers

Processes and approaches to enable sustainable access to quality rehabilitation services : comparative study of Handicap International programmes in Albania, Kosovo and Mozambique

HAZARD, Damien
AXELSSON ETEO, Charlotte
2012

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This comparative study of Handicap International programmes in Albania, Kosovo and Mozam-bique analyses processes and approaches that have been used by Handicap International to enable access to quality rehabilitation services for people with disabilities, and specifically to look at their impact in terms of Sustainability
SD/RS 07

Out from the shadows : sexual violence against children with disabilities

ELLERY, Francis
LANSDOWNE, Gerison
CSÁKY, Corinna
2011

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This document is an advocacy report on sexual violence against children with disabilities. It is based on evidence generated from a literature review and primary research in four African countries. Adults with disabilities who had been abused as children were interviewed, as well as carers, lawyers, judges, police, social workers, teachers and members of disabled people's organisations. The report concludes with a set of recommendations, developed in consultation with children, young people and professionals working globally on this issue

Documenting good practices at partner level

MUTUVI, Kavutha
MAINA, Gacheru
LACKEY, Douglas
2011

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This report documents the good practices of HelpAge and its partners while implementing a regional advocacy programme to mitigate the impact of HIV and AIDS among older people in six sub-Saharan African countries. It presents information about what is working and not working in different situations and contexts by highlighting and documenting the lessons learned and the process of what works, how and why. This resource is useful for anyone interested in the impact of HIV and AIDS among older people in Africa

National response to disability and HIV in Eastern and Southern Africa

HANASS-HANCOCK, Jill
GRANT, Kitty
February 2010

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Although people with disabilities are often at increased risk of exposure to HIV, this policy brief outlines that less than half of the national strategic plans in Eastern and Southern Africa recognise disability as an issue of concern. Recommendations are provided to governments and civil society on how to address the issue effectively. This policy brief would be useful to people interested in HIV policies in Africa

Disability in national strategic plans on HIV and AIDS : a review on the national response to the interrelations of disability and HIV in eastern and southern Africa|Final report

GRANT, Kitty
STRODE, Ann
HANNASS-HANCOCK, Jill
December 2009

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This report examines national AIDS and HIV strategic plans (NSPs) in eastern and southern Africa and includes findings, discussions and best practice examples on the integration of disability throughout the countries. "Generally, the findings of the report show that less than 50% of the countries in Eastern and Southern Africa recognise disability as an issue of concern, or specifically recognise the vulnerability of people with disabilities to HIV and AIDS within their NSPs. Furthermore, it found that even where countries have recognised disability as an issue, there is limited specific guidance within the NSP on HIV-related service provision to meet the needs of people with disabilities. Only one country, South Africa, showed extensive integration of disability into the various focus areas of its NSP." The report concludes with recommendations and provides detailed appendices of national reports for each country surveyed

Capacity building in network organisations : experiences from and practical guidelines for HIV and other networks

SLUIJS-DOYLE, José
November 2009

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This report assesses seven capacities of organisations of people living with HIV and other HIV network organisations to see what makes a well-functioning network. These capacities are: involvement and accountability; partnership alliances; leadership; knowledge and skills; internal communication; impact, outputs and external communication; and management and finance. The report looks at four network organisations in Eastern and Southern Africa, with secondary research drawn from networks in Bangladesh, Nepal and India. The findings and recommendations cannot be applied universally to capacity strengthening in all network organisations, but need to be adapted to the context of each particular group

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