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What fails: and what's not needed, Disability Dongles

HOLLOWAY, Catherine
LANDRE, Anna
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A discussion concerning disability dongles (expensive technical solutions to disability problems without sufficient design input from disabled people - examples include a stair climbing wheelchair and an exoskeleton). Setting up networks of disabled people to input requirements, contextualisation of issues (for example the lack of repair facilities for wheelchairs especially in the global south), telemedicine, and the difficulties in appropriate funding for appropriate projects are discussed.

  

What works

AUSTIN, Vicki
McKINNON, Anne
BELL, Diane
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Outcomes of the first 5 years of the AT2030 project are summarised including: 15 AT country capacity surveys; 11 new assistive technologies; 31 AT ventures brought to sustainability and 70 journal papers. Funding thus far and for the future is also discussed.

Work to supply hearing aids to those with hearing loss in the global south, particularly in South Africa is outlined. Areas highlighted include: work with suppliers; work to ignite innovation and provide products at scale; work with UNICEF and the procurement catalogue; work with HEARX to provide screening and aid fine tuning via a phone app to enable community health AT service.

Questions from the audience highlight issues surrounding acquiring AT in the emergency/humanitarian setting  

Inclusive innovation [at Google]

PATNOE, Christopher
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A short talk highlighting Inclusive Innovation at Google.

 

Topics highlighted in the approach taken are: AI; "nothing about us without us"; get started on one thing; this is a process.

Products briefly outlined are: automated captions; real time captions (Google Meet) in 14 languages; interlanguage translation (14 languages); on the phone, live transcribe (80 languages); the ability of the phone to inform deaf people of sounds e.g. laughter, appliances going off; and phone live captioning. 

How disabled people are leading innovation and systems change in the UK

KANODIA, Kush
September 2023

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The most important part of innovation in systems change is the lived experience.

The successful campaign to eliminate car park charges for people with disabilities at NHS hospitals in the UK is outlined. (Charges from over 200 hospitals are now dismissed).

The ongoing campaign to exempt all people with disabilities who are "Blue badge" holders from charges associated with ULEZ (ultra low emission zones) or the equivalent in cities in the UK is also described. The importance of integrating climate action and disability rights is highlighted.  

Beyond Barriers: Journeying from Exclusion to Inclusion with R2D2 and NCAHT-IITM

SRINIVASAN, Sujatha
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Challenges in the development and bringing to market of functional, affordable, high quality AT devices are outlined. The development of the manual standing wheelchair and the lessons learnt in taking it from prototype to market (using the GRID model) are introduced. The challenges of affordability and of awareness of AT including by professionals is highlighted. The work of the National Centre for Assistive Health Technologies (NCAHT at AIIMS, New Delhi) including experience zones of architectural barriers where people can try wheelchars on different surfaces and realise that disability is imposed by the environment is briefly described. Wheelchair skills training and community outings are part of the centre. Other topics mentioned include: the need to normalise disability; the need for collaborations; funders; scalability; fragmented markets and the need to access global markets 

Can para-sport drive community-level change in Sub Saharan Africa

WONG, Jennifer
MAGALASI, Mufunanji
NKHOMA, Samuel Nakhozwe
MOGALO, Sheila
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Short presentations and a discussion are reported concerning the transformational change associated with para-sport in Sub Saharan Africa, highlighting Sport for Development, Para Sport against Stigma and I'mPOSSIBLE. 

Commentary of the highlights of the Tokyo Paralympic games were translated into the Malawian local language and were shown in mobile cinemas. Theatre for development produced provocative performances with communities re sports and stigma. The importance of a Paralympic sportsman visiting schools as a role model is highlighted. The journey of Malawi from having no paralympic athletes in London to today is outlined, highlighting the transformational growth in the ecosystem of educators, supporters, trainers, coaches and national technical officials. The importance of para-sport in reducing stigma is emphasised.  

Resisting cooptation of disability justice revolutionary dreams

BROWN, Lydia, X. Z.
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

A short talk concerning the disability justice framework. The framework was co-created by a coalition of disabled people, mainly of colour and from the LGBT community in 2005-2006.

Topics discussed include: disability rights, institutions, ableism and the wider meaning of disability justice.  

Accessibility and inclusion for deafblind people living in the Global South

KAMENOPOULOU, Leda
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.
 

A short presentation concerning the challenges surrounding inclusion of and accessibility for deafblind children and adults, particularly in the Global South.

Deafblindness is a spectrum and so a spectrum of approaches and of assistive aids is required. The most common cause of deaf blindness is aging. Most research has been carried out in the Global North. Very little has been carried out in the Global South or into the intersectionality with poverty, race and gender. 

Systems and action to advance disability inclusive financial services in the UK

WARDROP, Pollyanna
TOWNSEND, Kathryn
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

The importance of access to financial services and the challenges and work towards solutions are briefly overviewed with particular reference to innovation in the Nationwide Building Society in the UK.

Priorities identified for long term decision making concerned with services for people with disabilities were people with learning disabilities/neurodivergence/dementia, deaf people and the customer experience. The Nationwide introduced British Sgn Language (BSL) virtual interpretation for deaf people using a third party interpreter to enable independent banking. Difficulties encountered concerning risk and governance are highlighted.  Lessons learned and other progress e.g. provision of letters in BSL are briefly mentioned.

Disability inclusive financial services

DECKER, Daniella
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A short presentation concerning the work of the International Finance Corporation and financial services in general towards inclusion and empowerment of people with disabilities. 

Topics covered include: disability commitments; expansion of the disability economy; the European Accessibility Act; generating awareness in financial services providers; links with partnership companies; Cephable - a company introducing use of ATMs with facial expressions; work of large banks and also of small ones in Columbia and India; and momentum towards change and the challenges associated with it. 

Future tech: revolutionary solutions and AI – the new face of disability inclusion?

HOLLOWAY, Catherine
CHO, Youngjun
CAVE, Richard
MWENDA, Brian
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Three short talks on future technologies and the use of Artificial Intelligence (AI). All three emphasise the importance of co-creation with people with disabilities. 

 

Topics in the first talk include: contributions of the use of AI to SDGs; problems with regulation; improved holistic understanding of non-communicable diseases; street route optimisation for peope with visual impairment; speach to text apps; storytelling for people with dementia; self care biosensors; improvements in the information seeking journey (example motor neurone disease)

 

The second relates to experiences in Ghana with people with cerebral palsy/speach and language issues and a speach recognition technology project carried out with Google. Issues with measurement of success are raised.

 

The third introduces work being carried out on mobility solutions for people with visual difficulties in Kenya and Hope Tech.

 

Breaking communication barrier in Ghana using Google’s Project Relate App

AYOKA, Gifty
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A short presentation highlighting the difficulties of people with communication difficulties and the role and importance of speach and language therapists and of Google's Project Relate app. The app leverages machine learning to aid individuals with non standard speach in real time. The importance of local language and cultural diversity is stressed.  

Disability inclusive Universal Healthcare

CENTRE FOR INCLUSIVE POLICY
March 2021

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The inclusion of direct medical costs, indirect medical costs and indirect costs incurred by people with disabilities into Universal Healthcare is discussed. The importance of including assistive devices, rehabilitation and extra transportation costs in the system is highlighted. Social protection measures are also highlighted.

Look to Speak helps people communicate with their eyes

CAVE, Richard
EZEKIEL, Sarah
GOOGLE CREATIVE LAB
December 2020

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A speach and language therapist talks about "Look to Speak", an Android app which enables people to use their eyes to select pre-written phrases on mobile devices and have them spoken aloud. A text and video guide are available.

International Summit on Legal Professionals with Disabilities

INDIAN LAW SOCIETY
OXFORD HUMAN RIGHTS HUB
HARVARD LAW SCHOOL PROJECT ON DISABILITY
CENTRE FOR DISABILITY STUDIES, UNIVERSITY OF LEEDS
December 2020

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3-day Summit with three panel discussions by disabled legal professionals to foster a well-considered dialogue on how we can break down the structural and attitudinal barriers that prevent disabled legal professionals from leading lives of equal productivity and dignity as their able-bodied counterparts.

The themes for the days were: Day 1 - Academicians; Day 2 - Lawyers; Day 3 - Judges 

Intersectionality between disability and Black Lives Matter

INTERNATIONAL LABOUR ORGANISATION (ILO)
November 2020

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The ILO Global Business and Disability Network in partnership with Ruh Global IMPACT organized a webinar on the Intersectionality between Disability and Black Lives Matter which was hold on November 12th, 2020.

We are witnessing unprecedented changes in society and these changes are impacting businesses and employers. Understanding the complexities of movements like #BlackLivesMatter and the intersectionalities of other inclusion efforts such as disability inclusion is critical. Inequalities and exclusion not only negatively impact on business, they can negatively impact your brand, your employees, your customers, and have other unexpected socioeconomic consequences.

This recording features Firehiwot Siyum Tadese, LaMondre Pough, Heather Dowdy and Kimberlee Archibald on a discussion on their professional experience as a person of colour in relation with disability.

Living in Chains - Shackling of people with psychosocial disabilities worldwide

HUMAN RIGHTS WATCH
October 2020

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In order to show the scale and scope of shackling of people with real or perceived psychosocial disabilities worldwide, Human Rights Watch conducted a study of mental health legislation, relevant policies, and practices across 60 countries around the world.

This report includes research and testimonies collected by 16 Human Rights Watch researchers in their own countries. We worked closely with partner organizations to visit private homes and institutions in Afghanistan, Burkina Faso, Cambodia, Ghana, Indonesia, Kenya, Liberia, Mexico, Mozambique, Nigeria, Sierra Leone, Palestine, Russia, the selfdeclared independent state of Somaliland, South Sudan, and Yemen. Human Rights Watch researchers interviewed more than 350 people with psychosocial disabilities, including those who were shackled at the time of research or had been shackled at least once in their lives, and more than 430 family members, caregivers or staff working in institutions, psychiatrists, psychologists, nurses and other mental health professionals, faith healers, lawyers, government officials, representatives of local nongovernmental organizations (NGOs), including organizations of persons with disabilities, and disability rights advocates. The testimonies were collected between August 2018 and September 2020 through in-person and phone interviews.

Desk research and consultation with international disability experts was also undertaken

Message to Covid-19 Disability Rights Monitor

TESORIERO, Paula
October 2020

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A message by the chair of the Disability Working Group at GANHRI (Global Alliance of National Human Rights Institutions), on the occasion of the launch of the COVID-19 Disability Rights Monitor Global Report.

Addressing disability-related costs through social protection systems

COTE, Alexandre
CARRARO, Ludovico
SIJAPATI BASSNET, Bimbika
NASIIR, Mercoledi
SRISOM, Sawang
WAKANIYASI, Josh
O'BRIEN, Felicity
October 2020

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Understanding disability-related costs is critical to building social protection systems that truly support inclusion, participation, and sustainable escape from poverty of persons with disabilities across the life cycle. It challenges some usual approaches with regards to targeting, mutually exclusive benefits, and focus on incapacity to work rather than support to inclusion. 

Supporting the dissemination of a background paper, the webinar presented the diversity of disability-related costs and the role of different methods used to assess them. It also presented some practices of accounting for disability costs in the design of mainstream social protection schemes as well as how low and middle-income countries can progressively build the combination of cash transfers, concessions, and services needed to address them.

 

Speakers topics were:

Understanding disability-related costs for better social protection systems.

Accounting for disablity related costs in design of mainstream family assistance schemes, the case of Moldova and Mongolia.

Supporting a survey to estimate the good and services required for basic participation in Indonesia.

How social protection systems can progressively address disability-related costs: the case of Thailand. 

Not either or Disability allowance and economic empowerment in Fiji.

Understanding disability extra costs

CENTRE FOR INCLUSIVE POLICY
September 2020

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Extra costs incurred by people with disabilitites are illustrated through case studies of children, adults and older people with disabilities. 

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