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The sustainability analysis process : the case of physical rehabilitation

BLANCHET, Karl
BOGGS, Dorothy
December 2012

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"This guide describes the Sustainability Analysis Process (SAP), a coordinated planning approach that aims to facilitate the development of a common vision of sustainability among various actors in a system. Specifically, it is a participatory process which outlines how to achieve consensus on a common vision, and how to define sustainability indicators that can be used to monitor progress towards this vision within the context of the national rehabilitation system. Ultimately, the SAP outlined in this guide is a practical tool that can help all actors in a system to understand the various components of sustainability and analyse the concept of sustainability in relation to their own system"

Gender inclusion for social resilience : a key factor in disaster risk reduction

POURNIK, Milad
CHUNG, Jaeeun
MILLER, Barbara
December 2012

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"This report offers a brief review of the concept of social resilience, especially in relation to natural disasters and with specific attention to women and girls as victims of disasters and active participants in disaster prevention and response. It next provides a summary of a conference that took place at the George Washington University's Elliott School of International Affairs on October 11, 2012, marking the United Nations International Day for Disaster Reduction and its 2012 theme, Women & Girls: The inVisible Source of Resilience. Last, it summarizes how social resilience can create more secure societies in a changing world"

Global Gender Program, Occasional Paper #2

Quantitative Exploratory Evaluation of the Frequency, Causes and Consequences of Rehabilitation Wheelchair Breakdowns delivered at a Paediatric Clinic in Mexico

TORO, M L
GARCIA, Y
OJEDA, A M
DAUSEY, D J
PEARLMAN, J
2012

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Purpose: The United Nations Convention on the Rights of Persons with Disabilities recognises assistive technology such as wheelchairs (WCs) as a tool for social inclusion for this population. In less resourced settings, organisations lack information about effective models of WC service provision. The goal of this study was to investigate the lifespan of WCs and whether they provided reliable mobility, at one clinic in Mexico.

 

Methods: Caregivers of children, who had requested replacements for their WCs from a clinic in Mexico, were interviewed in Spanish. Among others, the questions pertained to repairs/modifications, adverse events and WC usage characteristics. The owners exchanged their WCs for new ones at the clinic, and the maintenance status of each returned WC was evaluated using the WC Assessment Checklist (WAC).

 

Results: Twenty-three donated WCs, used by children aged 3 to 14 years for an average of 19 months, were evaluated. Brakes (n=18), seat and back-sling upholstery (n=11 and 7 respectively), and armrests (n=14) were the components that failed most frequently. A total of 26 adverse events due to WC failure were reported. Adverse events were significantly associated with poor WAC scores (rs=-0.544, p=0.007).

 

Conclusions: Poor WC reliability, associated with adverse events which could undermine social engagement, indicates the need for a stronger WC and for regular maintenance. For instance, brake failures which were most often associated with adjustment issues, could have been resolved with maintenance, while seat and back-sling upholstery and armrest failures suggest that the WC may not be appropriate for the environment. Future work should investigate the robustness of these WCs using standardised methods (ISO 7176), as well as the impact of maintenance interventions on WC reliability.

Zero project report 2013

FEMBEK, Michael
et al
November 2012

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This report provides details on the implementation of the UN Convention on the Rights of Persons with disabilities with the aim to improve lives of people with disabilities and their legal rights. Details of research, statistics from surveys done in 55 participating countries, social indicators, employment indicators, innovative practices and innovative policies are presented to measure improvement of access to transport, career development, education, equal opportunity and human rights for people with disabilities

Common European guidelines on the transition from institutional to community based care|Guidance on implementing and supporting a sustained transition from institutional care to family-based and community-based alternatives for children, persons with dis

THE EUROPEAN EXPERT GROUP ON THE TRANSITION FROM INSTITUTIONAL TO COMMUNITY BASED CARE (EEG)
November 2012

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These guidelines "provide practical advice about how to make a sustained transition from institutional care to family-based and community based alternatives for individuals currently living in institutions and those living in the community, often without adequate support. The Guidelines are aimed primarily at policy and decision makers in the European Union and the neighbouring countries with responsibility for the provision of care and support services for children, people with disabilities and their families, people with mental health problems and older people"

Toolkit on the use of European Union funds for the transition from institutional to community based care

THE EUROPEAN EXPERT GROUP ON THE TRANSITION FROM INSTITUTIONAL TO COMMUNITY BASED CARE (EEG)
November 2012

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This toolkit "aims to explain how European Union funds can support national, regional and local authorities in designing and implementing structural reforms aimed at facilitating the development of quality family-based and community-based alternatives to institutional care. It addresses primarily the desk officers of the European Commission, managing authorities, intermediate bodies, monitoring committees and project promoters in the EU Member States and in acceding, candidate and potential candidate countries; and any other donors investing in services for children, people with disabilities, people with mental health problems or older people"

Good practices in the inclusion of persons with disabilities in the Tibet Autonomous Region, China : how to ensure the rights of persons with disabilities are promoted and respected?

HANDICAP INTERNATIONAL
November 2012

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The report is a collection of good practices of inclusion of people with disabilities in the Tibet Autonomous Region of China, compiled through the ‘Support to DPOs’ project. Making It Work methodology was used to collect good practice of social integration and participation by people with disabilities; good practice in terms of working methods to ensure partner ownership and long term sustainability; and good practice in terms of process, such as participative working methods to ensure the long-term ‘real’ inclusion of persons with disabilities. The target of the report is the Disability Working Committee, the key Government body in decision making on disability issues. The report considers 13 case studies on such topics as DPO activity, inclusive education, community participation, rehabilitation and livelihoods. For each case study, influencing factors (positive and negative) are identified, and possible improvements and recommendations for replication suggested. This collection of good practices gives a diverse range of possible actions for the enhanced inclusion of persons with disabilities; combining access to services (early education, mainstream education, and rehabilitation), arts and culture, awareness-raising, and active participation in political and social life

The barefoot guide 3 : mobilizing religious health assets for transformation

COCHRANE, James R
GUNDERSON, Gary R
November 2012

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This Barefoot Guide 3 presents the connection between religion and public health. It focuses on understanding and working with that reality highlighting that “religious assets for health are everywhere, they matter to a lot of people, and they can be mobilized for the health of all.” The guide contains the following chapters on: thinking differently about the health of the public; revisiting the history of the link between religion and public health; working with and mobilizing religious health assets; supporting the ‘leading causes of life’; understanding ‘healthworlds’ and the strengths of ‘people who come together’; boundary leadership; thinking about systems; and ‘deep accountability

A feeling of belonging : an example of a community mental health project in Rwanda

FINEL, Elodie
PEGON, Guillaume
Eds
November 2012

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This video documentary and accompanying booklet present Handicap International’s approaches taken since January 2007 to restore the Rwandan population’s psychological well-being and its social cohesion after the genocide. Knowledge about setting up and implementing a community mental health project is shared for the information of Handicap International team members, partners and the public. General guidelines are offered to share expertise and technical perspectives in the field of mental health and psychological support

Inclusive communities = stronger communities : global report on article 19 : the right to live and be included in the community

EIDERMAN, Steven
et al
October 2012

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This report presents the perspective of people with intellectual disabilities and their families on living and being included in the community. The study shares experiences of inclusion in the community, of exclusion and isolation from the community and the impact that these experiences have had on the lives of people with intellectual disabilities and their families. It details findings on the experience of exclusion and isolation, the progress made since the implementation of the CRPD, and what the new and emerging challenges are that threaten inclusion.  The report also outlines a vision of inclusion and makes recommendations for directions for the future. This comprehensive report will be useful to those studying and working with disability issues, inclusion in particular

Family perceptions of intellectual disability: Understanding and support in Dar es Salaam

ALDERSEY, Heather M
2012

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When attempting to understand the construct of intellectual disability in different contexts, speaking to family members in addition to the individual with the disability may provide new insight about understandings of and responses to intellectual disability in society and may help to identify the forms of support that are available or needed to ensure the quality of life of people with disabilities. This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam. Understanding family experiences will help researchers, policy makers, non-governmental organisations, and others to identify family strengths and family support needs which can ultimately improve family quality of life and the quality of life of the member with a disability.

Accessing community health services: challenges faced by poor people with disabilities in a rural community in South Africa

GRUT, Lisbet
MJI, Gubela
BRAATHEN, Stine H
INGSTAD, Benedicte
2012

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Poor people with disabilities who live in poor rural societies experience unique problems in accessing health services. Their situation is influenced by multiple factors which unfold and interplay throughout the person’s life course. The difficulties do not only affect the person with a disability and his or her family, but also impact on the relevant care unit. The barriers are rooted in a life in poverty, upheld and maintained by poverty-reinforcing social forces of the past and the present, and reinforced by the lack of the person’s perspective of the health services. This article explores how difficulties may interact and influence access to and utilisation of health services, and how this may render health services out of reach even when they are available. The study reveals that non-compliance is not necessarily about neglect but could as well be a matter of lived poverty. The study was based on in-depth interviews with people with disabilities and family members, and semi-structured interviews with health personnel. The data analysis is contextual and interpretive. When offering health services to people with disabilities living in resource-poor settings, services should take into consideration the person’s history, the needs, and the resources and abilities of the family group. Rethinking access to health services should transcend a narrow medical institutionalization of health professional’s training, and include a patient’s perspective and a social vision in understanding and practice. Such rethinking requires health service models that integrate the skills of health professionals with the skills of disabled people and their family members. Such skills lie dormant at community level, and need to be recognized and utilized.

Inclusive education

CORPS, Hannah
September 2012

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This policy brief provides an overview of Handicap International’s 2012 policy paper on inclusive education which explains Handicap International’s current work on inclusive education and offers perspectives for the period 2011-2015
PP Brief No 8

Disability inclusive community based disaster risk management : a toolkit for practice in South Asia

O’MEARA, Claire
2012

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This toolkit, developed as part of Handicap International’s project ‘Make community-based disaster risk management inclusive in South Asia,’ addresses issues faced by persons with disability and attempts to ensure that services and systems are adapted to meet the diverse needs of the community in reducing risk. It has been designed for use by disaster risk management practitioners and policy makers who wish to understand more about how to make community based disaster risk management (CBDRM) inclusive of persons with disabilities.

 

The first part establishes the rationale for taking an inclusive approach, firmly establishing the links between disability and disasters and the need for action on inclusion. Part Two provides practical guidance on how to make core CBDRM activities inclusive. Separated into eight individual booklets, it takes each activity in turn and highlights what needs to be taken into account both in planning and in implementation. The Toolbox contains a number of tools to complement the advice given in Part Two and support good practices in implementation. These tools can be taken and used as provided or adapted for use as necessary

 

SD/PG 01

 

Contingency planning guide

INTERNATIONAL FEDERATION OF RED CROSS AND RED CRESCENT SOCIETIES
2012

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This document provides an overview of the key elements of contingency planning. This guide is aimed at assisting National Society and IFRC staff responsible for developing contingency plans at the local, national, regional or global levels. It is essential to develop contingency plans in consultation and cooperation with those who will have to implement or approve them. This document provides guidelines, not strict rules; planning priorities will differ according to the context and scope of any given situation. This guide breaks contingency planning down into five main steps: prepare, analyse, develop, implement and review. Each step is covered by a separate chapter in this document

Choice, support and inclusion : implementing Article 19 of the convention on the rights of persons with disabilities in Kenya

KAMUNDIA, Elizabeth
August 2012

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This study seeks to examine what the right to live independently and to be included in the community, Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (CRPD), looks like from an African perspective, specifically in Kenya.  This resource is useful to anyone interested in the implementation of Article 19 if the CRPD in  Kenya

This dissertation was submitted as part-fulfilment of the requirements for the Degree of Master of Laws (LLM) in International and Comparative Disability Law and Policy of the National University of Ireland, Galway

A Comparative Analysis of Institutional Capacities for Implementing Disability Policies in East African Countries: Functions of National Councils for Disability

YOKOYAMA, A
2012

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During the “African Decade of Persons with Disabilities (2000-2009)”, East African countries witnessed significant achievements, especially in the development of law, collection of statistics and in funding. However, many persons with disability are still marginalised from opportunities in education, healthcare and employment.

 

Purpose: With the pre-supposition that the lack of institutional capacities for implementing disability policies is the one major stumbling-block which hinders widespread delivery of social services to persons with disabilities in low-income countries, this study makes a comparative analysis of institutional capacities in the disability sectors of Uganda, Kenya and Tanzania.

 

Method: The research methods adopted were a literature survey and a field survey. The framework for analysis consists of: 1) capacities and functions of disability units in central governments, 2) relationships between central and local governments in the disability sector, and 3) relationships between governments and organisations of persons with disability (DPOs). Special attention is paid to the status, roles and functions of national councils for disability (NCDs), the independent statutory bodies recently established in each of the three countries, with clear authority and duties for the implementation of disability policies. The NCDs enable multi-sectoral stakeholders to be involved in the implementation of disability policies; therefore, positive relationships between the governments and DPOs are essential for the smooth functioning of the NCDs.

 

Results: While the result of the field survey in Tanzania reveals several effective approaches for the smooth operation of the NCD, further study is needed to verify whether these approaches would be applicable to other East African countries such as Kenya and Uganda.

Parental Stress in Raising a Child with Disabilities in India

GUPTA, V B
MEHROTRA, P
MEHROTRA, N
2012

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Purpose: To determine parenting stress and its determinants among parents of children with disabling conditions in India.

 

Methods: The Parenting Stress Index – short form and a few open ended questions were administered to a convenience sample of sixty-six patient families in July, 2009 in the cities of New Delhi and Faridabad regions of Northern India through six non- governmental organizations (NGOs) that serve children with disabling conditions.

 

Results: Female sex of the child was associated with higher stress related to failure of the child to meet parent’s expectations and to satisfy the parents in their parenting role. Parents engaged in more lucrative and prestigious occupations had more stress than parents engaged in less prestigious and lucrative occupations irrespective of their income. Many parents reported receiving little support from their extended families in taking care of their child. Religion was found to be a common coping resource used by the parents.

 

Conclusion and Implications: Higher parenting stress in parents of girls raises the possibility of abuse and neglect. Little support from informal family resources underscores the need for developing formal resources for supporting the parents. The specific resources of parenting stress among parents of different socioeconomic status should be explored in future studies so that appropriate interventions can be planned.

From exclusion to part of the solution : lessons learned along the way : making HIV/AIDS strategies inclusive of people with disabilities in Tanzania

CHRISTOFFEL BLINDENMISSION (CBM)
COMPREHENSIVE COMMUNITY BASED REHABILITATION IN TANZANIA (CCBRT)
July 2012

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“The Making HIV/AIDS Strategies Inclusive of People with Disabilities in Tanzania was a three-year project (February 2009-January 2012), implemented by CBM US and local partner Comprehensive Community Based Rehabilitation in Tanzania (CCBRT). The goal of the project was to increase access for people with disabilities and their caregivers to HIV and AIDS prevention, care, treatment and support services in Tanzania. Based on a review of project documents, interviews and success stories, the following three interlinked lessons learned categories and eleven lessons learned emerged as critical to the successful achievement of project objectives, and the lessons learned described in this report will provide a foundation for improving on future programming of similar projects”

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