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Guidelines on best practice for persons living with deafblindness

ZWANENBURG, Aline
TESNI, Sian
June 2019

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These guidelines were developed to advance understanding of the needs and challenges of persons living with deafblindness and to promote their inclusion in society. The target audience are members of the CBM Federation with particular interest to, among others staff at Regional and Country Offices, Member Associations, co-workers, partners (including governments, education agencies, public and private service providers, and professionals), as well as persons living with deafblindness and their families.

 

Part One gives an overview of the impact deafblindness can have on an individual’s development and learning. It emphasises the need for a continuum of services and programmes, including early detection, referral, educational input, and family support.

 

Part Two outlines components of education and rehabilitation programmes. It provides guidelines on communication, holistic assessment procedures, assistive devices, advocacy and self-determination, transition planning, and discusses the importance of on-going regular access to health and therapeutic services.

 

Part Three considers how to improve and expand existing services through the provision of on-going personnel capacity building, and through networking with key stakeholders, to consider intersecting issues and service expansion. Each section includes an overview of the topic explored, some case studies and considerations for service implementation.

Interpreting the physical environment for deafblind people

KIRK, Tony

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This article focuses on adaptations to the environment that can enable a deafblind person to function more effectively. The aim is to offer guidelines which will enable the person to be more self sufficient. The author also describes how to make the environment supportive of disabilities rather than providing barriers

The European Deafblind Union (EDBU)

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The European Deafblind Union (EDBU) is an association that joins together deafblind people's organisations based in Europe. This website provides information about the EDBU's work and has links to its newsletters, conference notes and general assembly notes

The Finnish Deafblind Association

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This website highlights the work of the Finnish Deafblind Association including details of their services provided, organisational activities, international activities and publications

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