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Assistive technology enables inclusion in higher education: The role of Higher and Further Education Disability Services Association

LYNER-CLEOPHAS, Marcia
August 2019

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Background: Using assistive technology is one way to foster inclusion of students in the post-school education and training (PSET) sector.

 

Objectives: Higher and Further Education Disability Services Association (HEDSA) enables the sharing of new knowledge about assistive technologies through its symposia, and making information available on its website. Additionally, it facilitates dialogue and collaboration amongst institutions in the PSET network using a listserv and newsletters, given that PSET institutions are spread countrywide.

 

Method: This is an article based on a presentation at the 5th African Network of Evidence-to-Action in Disability (AfriNEAD) conference in Ghana in 2017 that focused on the value of assistive technology for students pursuing studies in the PSET sector and the role played by HEDSA in South Africa.

 

Results: The positive gains and existing gaps in disability inclusion in the higher education sector in South Africa are highlighted, with reference to access to technology. All higher education institutions have internet access and can thereby make use of listservs to communicate information. MapAbility is a way that prospective students can gain a snapshot view of available resources at institutions of learning, using the internet.

 

Conclusion: An association such as HEDSA plays a critical role in the PSET sector to enhance disability inclusion using online tools to disseminate information.

 

 

African Journal of Disability, Vol 8, 2019

Disability inclusion helpdesk; evidence digest issue 1, June 2019

SDDirect
June 2019

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The Evidence Digest aims to capture knowledge emerging from Helpdesk activities in a systematic manner and disseminate findings. This short summary will:

Share information on and learnings from the Disability Inclusion Helpdesk over the last quarter, highlighting headline messages and implications for programmers and policymakers;
Share relevant information and learning from other DID outputs;
Provide relevant information on recent evidence, policy changes and events in the field of disability inclusion, and;
Raise awareness on how to access the Helpdesk and demonstrate its offer.

Lived experiences of caregivers of children with autism spectrum disorder in Kenya

CLOETE, Lizahn G
OBAIGWA, Evans O.
2019

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Background: Autism spectrum disorder (ASD) is a global public health concern. In African countries such as Kenya, there is a greater need for establishing support services for developmental disorders such as ASD. The emotional, social and economic burden of ASD on caregivers is unknown because of a number of challenges. Citizens of Kenya have a unique view of disability and inclusion.

 

Objectives: To explore the perspectives of caregivers who are responsible for caring for both family and children living with ASD and to highlight the needs of children with ASD as well as the needs of their caregivers.

 

Method: A qualitative, descriptive phenomenological study utilising focus group discussions (FGDs) was conducted. Verbatim transcription was used. QSR N ’Vivo 10 was used to organise and analyse the data. Content analysis was used to identify important ideas and concepts.

 

Results: One theme, namely ‘the burden of caring for children with ASD’, was identified. Children with ASD and their caregivers experience isolation and stigmatisation.

 

Conclusion: Occupational therapists in Kenya should collaborate with the relevant national and global stakeholders for the promotion of the inclusion of children with ASD and their families. Responsive and context-appropriate occupational therapy interventions may begin to address service barriers.

 

 

African Journal of Disability, Vol 8, 2019

Online collective identities for autism: The perspective of Brazilian parents

ANTUNES, Debora
DHOEST, Alexander
2018

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The importance of online communities for parents of people with disabilities has been discussed by many scholars in the fields of Digital and Disability Studies, showing, for instance, the importance of social support and the formation of social ties. In order to contribute to this scholarship, this paper explores how collective identity models are built and circulated by parents of autistic people in one of the biggest Brazilian online communities about the subject, ‘Sou autista… conheça o meu mundo’ (I am autistic…get to know my world). The results were obtained through a digital ethnography, based on participant observation and an exchange of information with the members of the community studied. Based on the data collected, the study concludes that the collective identity models that circulate in this community can be grouped into legitimising, resistant, and project identities, as postulated by Castells (2010). The different views reflect how parents see autism and represent the ways it is treated in Brazilian society.

 

Disability and the Global South, 2018 Vol.5, No. 1

Transnationalizing disability policy in embedded cultural-cognitive worldviews: the case of Sub-Saharan Africa

HAANG’ANDU, Privilege
2018

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In 2013, the European Union (EU) mission in Zambia made a public statement about its financial support to the LGBTI community. In panic and fear, LGBTI leaders urged the EU office to withdraw the statement and encouraged other foreign missions to instead offer discrete support to the LGBTI community. This anecdote is illustrative of the experiential gap between geopolitical groups confronting a similar policy issue. For the EU, the rights of LGBTI persons are universally important; for the LGBTI community in the Zambian context, safety and discretion are more important. This paradox illustrates the challenges facing the transnationalizing of disability policy. How could we explain the fact that transnational disability actors have for the last two decades been trying to disseminate disability ‘knowledge’ and norms in Sub-Saharan Africa (SSA) without corresponding social policy and ideational success? This article examines this policy and ontological discrepancy. Advancing a constructivist argument, the article contends that transnational policy diffusion, largely built on colonial legacies of universalizing Western knowledge paradigms, has preoccupied itself with political institutional engagements at the expense of engaging contextspecific sociological and ideological factors, resulting in sterile legislative exercises. To develop a truly SSA-relevant disability policy infrastructure, the article proposes ideational bricolaging and translation, a constructivist process of carefully adhering to and negotiating with context-specific ideational factors that inform the disability experience in SSA countries.

 

Disability & the Global South (DGS), 2018, Vol. 5 No. 1

Community Action Research in Disability (CARD): An inclusive research programme in Uganda

HARTLEY, Sally D
YOUSAFZAI, AK
KAAHWA, MG
FINKENFLÜGEL, H
WADE, A
BAZIRAKE, G
DRACHLER, ML
SEELEY, J
ALAVI, Y
MATAZE, W
MUCURNGUZI, E
2017

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The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later.

 

The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disability People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups.

 

CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research.

AuthorAid

AUTHORAID
December 2015

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AuthorAid is a tool to help researchers in developing countries to network and further disseminate their work to a wider audience. The website contains links to find mentors/collaborators, a range of E-learning opportunities, funding opportunities for people working in developing countries, and a plethora of resources on topics ranging from how to write a grant proposal though to the publication process itself

A world that counts : mobilising the data revolution for sustainable development

UNITED NATIONS (UN) INDEPENDENT EXPERT ADVISORY GROUP ON A DATA REVOLUTION FOR SUSTAINABLE DEVELOPMENT (IEAG)
November 2014

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This report highlights two big global challenges for the current state of data: whole groups of people are not being counted and important aspects of people’s lives and environmental conditions are still not measured; and there are huge and growing inequalities in access to data and information, and in the ability to use it. The report makes specific recommendations on how to address these challenges, calling for a UN-led effort to mobilise the data revolution for sustainable development: fostering and promoting innovation to fill data gaps; mobilising resources to overcome inequalities between developed and developing countries and between data-poor and data-rich people; leadership and coordination to enable the data revolution to play its full role in the realisation of sustainable development

Mapping dialogue : a research project profiling dialogue tools and processes for social change

BOJER, Marianne Mille
MCKAY, Elaine
ROEHL, Heiko
April 2006

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This report profiles ten methods for facilitating dialogue. The approaches are diverse: some are designed for small groups, others for large numbers of people; some explore conflict while others are based on what is agreed. Part 1 looks at the foundations for, and approaches to, dialogue and offers some background on dialogue in traditional African culture. Part 2 maps out ten dialogue methods in depth and a number of others more briefly. Part 3 offers some ideas for how to assess what method to use in a given context

A strategy to enhance the global research effort in maternal and child health : the Mother-Child International Research Network

HAMILTON, Richard
March 2006

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This article presents the mission and objectives of the Mother-Child International Research Network. The network aims to support and bring together researchers and research institutions working in the field of mother and child health in low-income countries, facilitating access to scientific debate and opportunities for collaboration. The network's website www.mother-child.org holds scientific updates, distance-learning activities and weblog facilities and is designed to support health communication and exchange and increase exposure to a wide international audience

Inside voices : CBR workers stories

OKUNE, Joan
Ed
2006

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This book is an output from three CBR writing workshops held in Kenya, Tanzania and Malawi with the aim to facilitate the capacity of CBR workers to communicate their experiences thus increasing documentation of CBR practices in Africa. The book contains articles based on participants’ experience of CBR and is useful to anyone interested in CBR experiences in Kenya, Tanzania and Malawi

Communities of practice and networks : reviewing two perspectives on social learning

CUMMINGS, Sarah
VAN ZEE, Arin
May 2005

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This article examines the similarities between the concepts of 'community of practice' and 'networking for learning'. This article examines the common elements, and discusses the approaches, the characteristics, theoretical background and importance for development of each model. Next, similarities based on conceptions of social learning are explored. Finally, it is argued that communities of practice and networks for learning are part of the same continuum with varying degrees of formality, ranging from informal communities of practice to highly formal networks for learning. This article provides a valuable, relatively accessible introduction to the ideas of "networking" and "community of practice", discusses how they have evolved and explores how they can be useful to the development sector

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

Sharing knowledge for community development and transformation : a handbook

MCHOMBU, Kingo J
August 2004

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This handbook addresses the information needs of rural communities in Africa and explores the relationship between knowledge and development, and how community information resource centres can contribute to and can spark community development. It provides guidance for establishing community information centres and for ensuring their sustainability. The second edition includes several case studies from Ethiopia, draws out lessons learned, and includes a special section on HIV and AIDS resource centres. Each chapter concludes with suggested discussion questions for community groups

Use of information to address TB/HIV in Cambodia: workshop proceedings from Banteay Meanchey, Battambang, Phnom Penh, and Sihanoukville

BONNET, Jayaseeli
PHAT, So
SEAK, Kunrath
June 2004

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Cambodia is one of the countries most severely affected by TB and HIV. Partners in Health Reformplus (PHRplus) is providing technical support to government pilot interventions, developing an information component to support HIV/TB activities. It is standardizing the information being collected across all sites and facilitating its use by implementing partners in order to increase case detection and strengthen case management of TB/HIV co-morbidity. In January - March 2004, PHRplus conducted workshops with the four sites to review information and data it had collected, to identify current pilot accomplishments and to recommend how work could be improved. This report presents the workshop findings

Revisiting the "magic box" : case studies in local appropriation of information and communication technologies (ICTs)

BATCHELOR, Simon
O’FARRELL, Clare
2003

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This book looks at the way communities and groups in developing countries are appropriating information and communication technologies (ICTs) to address their needs. It finds that ICTs are being integrated into wider community-based activities and adapted to fit different contexts. It follows on from the paper "Discovering the Magic Box". It finds that there are still few examples of community-driven and locally appropriated ICT initiatives and an absence of standards or guidelines to evaluate ICT-based projects. The book includes some analytical frameworks and indicators to identify good practice and evidence of impact A significant development has been in the growth of telecommunications, in particular mobile phones, that are relatively cheap and powerful tools for poor communities, even in remote areas. The book concludes that the power of oral communication through telephones and radio cannot be underestimated. The book proposes that the main challenge is to adapt the new, usually computer-based ICTs to the needs of poor, predominantly oral-based communities so that they can be appropriated effectively and quickly

Understanding the indigenous knowledge and information systems of pastoralists in Eritrea

DINUCCI, Alessandro
FRE, Zeremariam
2003

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This case study explores pastoralists' traditional natural resources mangement practices and their sources and channels of information. It aims to contribute to the development of demand-led extension and advisory services for nomadic herders in Eritrea, on the premise that sustainable development programming builds on indigenous systems of communication and information diffusion

The significance of information and communication technologies for reducing poverty

MARKER, Phil
MCNAMARA, Kerry
WALLACE, Lindsay
January 2002

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A study for DFID staff, and for policy consideration, about the role of ICT in development. Identifies and assess the links between information and poverty, and concludes that although spreading ICT ('bridging the digital divide') should not be an end in itself, there is enormous potential for ICTs to increase information flow and empower poor people. The study then discusses the potential role of the international community, and sets out specific recommendations for DFID. Includes several appendices containing: a bibliography; brief case studies of Chile, Costa Rica and India; and list of related DFID funded projects. The study concludes that ICT should not be viewed as an end itself but has the potential as a tool to increase information flows and empower people. It can play a part in achieving International Development Goals

Agricultural information sources

CARTER, Isabel
September 1999

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The research explored information sources used and preferred by grassroots farmers. Agriculture was selected because there is even less printed material available for farmers than, for example, for health workers. There was a particular interest in discovering the views of farmers about their access to and use of printed information. This is a summary of DFID Education Research paper no 31 (see related record)

Measuring the immeasurable : planning, monitoring, and evaluation of networks

KARL, Marilee
Ed
1998

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Aimed at people interested in civil society and change through the experiences of networks and networking. The book aims to share experiences of networks and networking organisations in planning, monitoring, and evaluation; examine problems, challenges, practices and successes; provide lessons and guidelines to strengthen the participatory monitoring and evaluation in networks and networking organisations; and promote greater understanding and cooperation between funding agencies, networks and the networking organisations that they support

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