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Leave no one behind : the real bottom billion

BHATKAL, Tanvi
SAMMAN, Emma
STUART, Elizabeth
September 2015

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"This paper sets out why the ‘leave no one behind’ agenda should be a key priority (i) in implementing the SDGs in all countries and (ii) in assessing whether or not governments have met them. It underlines how deeply entrenched marginalisation is, how vulnerabilities often overlap to amplify multiple disadvantages, and just how little we know about some groups that are likely to be deprived"

Report of the Special Rapporteur on the rights of persons with disabilities (theme: the right of persons with disabilities to social protection)

DEVANDAS-AGUILAR, Catalina
August 2015

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'In the present report, the Special Rapporteur, Catalina Devandas-Aguilar, provides a study focusing on disability-inclusive social protection as a prerequisite for the universalization of social protection. She stresses that social protection is fundamental for achieving the social inclusion and active participation of persons with disabilities, and promoting their active citizenship. She also argues that to achieve disability-inclusive social protection, States must move away from traditional disability-welfare approaches towards embracing the innovative rights based model'

A report about the rights of people with disabilities around the world

OFFICE OF THE HIGH COMMISSIONER FOR HUMAN RIGHTS (OHCHR)
August 2015

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This is an easy read version of the 'Report of the Special Rapporteur on the rights of persons with disabilities' about social protection. "Social protection helps governments make sure everyone can live well. Social protection is things that give everyone the same chances in life. For example: having enough food, basic healthcare, going to school, and money to help pay for the things you need if you cannot work or earn enough. The report says what this means for people with disabilities"

Note: the full report is available below as a related record

The economic lives of people with disabilities in Vietnam

PALMER, M
GROCE, N
MONT, D
NGUYEN, O H
MITRA, S
July 2015

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Through a series of focus group discussions conducted in northern and central Vietnam, this study gives voice to the lived economic experience of families with disabilities and how
they manage the economic challenges associated with disability. The dynamic of low and unstable income combined with on-going health care and other disability-related costs
gives rise to a range of coping mechanisms (borrowing, reducing and foregoing expenditures, drawing upon savings and substituting labour) that helps to maintain living standards
in the short-run yet threatens the longer-term welfare of both the individual with disability and their household. Current social protection programs were reported as not accessible to
all and while addressing some immediate economic costs of disability, do not successfully meet current needs nor accommodate wider barriers to availing benefits.

Financial Access to Healthcare among Persons with Disabilities in the Kumasi Metropolis, Ghana

Badu, Eric
Opoku, Maxwell Peprah
Appiah, Seth Christopher Yaw
Agyei-Okyere, Elvis
2015

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Purpose: According to the World Health Organisation, 10% to 15% of the population of every developing country lives with disability. This amounts to about 2.4 - 3.6 million Ghanaians with disability. Since their contribution is important for the development of the country, this study aimed to assess the financial access to healthcare among persons with disabilities in the Kumasi Metropolis of Ghana.

 

Methods: A cross-sectional study, involving administration of a semi- structured questionnaire, was conducted among persons with all kinds of disabilities (physically challenged, hearing and visually impaired) in the Kumasi Metropolis. Multi-stage sampling was used to randomly select 255 persons with disabilities from 5 clusters of communities - Oforikrom, Subin, Asewase, Tafo and Asokwa. Data analysis involved descriptive and analytical statistics at 95% CI using SPSS software version 20.

 

Results: There were more male than female participants, nearly one-third of them had no formal education and 28.6% were unemployed. The average monthly expenditure on healthcare was GHC 21.46 (USD 6.0) which constituted 9.8% of the respondents’ income. Factors such as age, gender, disability type, education, employment, and whether or not they stayed with family members had significant bearing on the average monthly expenses on healthcare (p<0.05).Transportation cost, the travel distance to facilities, and the regular sources of payment for healthcare, had significant relationship with access to healthcare (p<0.05). Although about 63.5% of the respondents used the National Health Insurance Scheme as the regular source of payment for healthcare, 94.1% reported that sources of payment did not cover all their expenses and equipment.

 

Conclusion: Financial access to healthcare remains a major challenge for persons with disabilities. Measures to finance all healthcare expenses of persons with disabilities are urgently needed to improve their access to healthcare.

The complexity of rural contexts experienced by community disability workers in three southern African countries

BOOYENS, Margaret
VAN PLETZEN, Ermien
LORENZO, Theresa
2015

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An understanding of rural communities is fundamental to effective community-based rehabilitation work with persons with disabilities. By removing barriers to community participation, persons with disabilities are enabled to satisfy their fundamental human needs. However, insufficient attention has been paid to the challenges that rural community disability workers (CDWs) face in trying to realise these objectives. This qualitative interpretive study, involving in-depth interviews with 16 community disability workers in Botswana, Malawi and South Africa, revealed the complex ways in which poverty, inappropriately used power and negative attitudes of service providers and communities combine to create formidable barriers to the inclusion of persons with disabilities in families and rural communities. The paper highlights the importance of understanding and working with the concept of ‘disability’ from a social justice and development perspective. It stresses that by targeting attitudes, actions and relationships, community disability workers can bring about social change in the lives of persons with disabilities and the communities in which they live.

Development for all 2015-2020 : strategy for strengthening disability-inclusive development in Australia’s aid program

AUSTRALIAN GOVERNMENT DEPARTMENT OF FOREIGN AFFAIRS AND TRADE (DFAT)
May 2015

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The objective of Australia’s work in disability-inclusive development is to improve the quality of life of people with disabilities in developing countries by enhancing participation and empowerment of people with disabilities, reducing poverty among people with disabilities and improving equality for people with disabilities in all areas of public life. This strategy document “provides guidance for DFAT’s strategic decision making by articulating key opportunities for strengthening disability-inclusive development where DFAT can make the most difference—addressing the key challenges of disability-inclusive development in the Indo-Pacific, using Australia’s expertise, and aligning our efforts with the priorities of Australia’s aid program. For external stakeholders, this strategy is a non-binding public articulation of the Australian Government’s continued commitment to disability-inclusive development and highlights our approach, principles and priorities”

 

Applied research concerning inclusion of persons with disabilities in systems of social protection - social protection policy analysis, Peru

VASQUEZ, Alberto
GOTELLI, Veronica
BLANCHET, Karl
WALSHAM, Matthew
May 2015

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The effect of mainstream social protection policies in Peru on the inclusion of persons with disabilities in Peruvian society are explored in the both economic and social context.  The policy analysis was conducted to understand past successes and failures and to plan for future policy implementation and the research took place alongside a similar analysis in Tanzania.  A policy research guideline was developed allowing cross-country comparison between the two studies. A literature review was carried out to identify social protection policies and programmes in Peru. In addition, 22 interviews were held with key stakeholders, including organisations of persons with disabilities, to explore more in-depth information on the impact of major policies. Social protection policies, health, education and employment issues for people with disabilities are covered. Associated qualitative and quantitative reports are available.

Disability and extreme poverty : recommendations from practitioners in Bangladesh

FREMLIN, Peter
April 2015

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This paper presents shared lessons from experts and organisations working on disability-inclusive poverty reduction in Bangladesh. It gives an overview of the situation of persons with disabilities in extreme poverty in Bangladesh, highlighting disability-specific challenges, and the gaps in institutional capacity to deal with these issues. Recommendations are provided on the need to identify persons with disabilities more clearly, introduce disability-focus to mainstream poverty reduction efforts, adopt measures to overcome disability specific challenges, and strengthen institutional capacity to work on disability issues

The economic costs of exclusion and gains of inclusion of people with disabilities : evidence from low and middle income countries

BANKS, Lena Morgon
POLACK, Sarah
2015

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This report, formed of two parts, provides robust empirical basis to support the theorized disability-poverty link. The first section presents a systematic review of the literature on the relationship between disability and economic poverty. The second section explores the economic consequences of the exclusion and inclusion of people with disabilities in the areas of education, employment and health. The key pathways through which these economic costs may arise are discussed and studies that have attempted to quantify the financial impacts are reviewed

Patterns of progress on the MDGs and implications for target setting post-2015

SAMMAN, Emma
TAKEUCHI, Laura Rodriguez
STEER, Liesbet
March 2015

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This paper presents the progress of the millennium development goals and the post-2015 agenda. It explores seven indicators, one representing each of the first seven MDGs and highlights the causes behind the different rates of country progress. The paper argues that there is a need to find a middle ground: to maintain the power of a unified set of goals while bringing in greater sensitivity to national realities. This focus would help bridge the gap between expectations and achievements in the sustainable development goals
Research report 01

Cultural beliefs and practices that influence the type and nature of data collected on individuals with disability through national census

GROCE, Nora
March 2015

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Collection of data about disability in a census or survey context is influenced by the cultural context, particularly the beliefs and practices within the communities where the data are collected. Attitudes toward individuals with disability will influence what questions are asked, how such questions are framed, and how individuals in the community will respond to these questions. This article examines how culturally defined concepts of disability influence the development of questions on the topic, as well as helps determine who asks the questions and who answers the questions. These issues in turn influence how much data are collected and how accurate the data are. It also examines how ethnic diversity and poverty contribute to these questions. Recommendations for attention to these issues are made by census and survey.

Decent work and poverty reduction strategies (PRS) : a reference manual for ILO staff and constituents

INTERNATIONAL LABOUR OFFICE (ILO)
2015

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This publication originated in 2003 as an ILO contribution to deliberations then taking place in preparation for the development of the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD). By examining the development over time of the ‘right to work’ of persons with disabilities,1 how this matter has been dealt with in international instruments and national legislation to date, and experience around the world in promoting employment and work opportunities, the working paper enabled those involved in the preparation of the proposed CRPD to build on earlier achievements.

First edition 2005. Third edition 2015

Global status report on disability and development prototype 2015

UNITED NATIONS DEPARTMENT OF ECONOMIC AND SOCIAL AFFAIRS (DESA)
2015

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This report situates disability and inclusion within the broader context of sustainable development, with a particular focus on the Sustainable Development Goals (SDGs). The paper provides background on the historical role of the UN in promoting inclusion and outlines the current trends and challenges facing people with disabilities globally. The following section presents these challenges within the context of the SDGs, showing that disability needs to be tackled if the SDGs are to be achieved. It concludes with a number of recommendations for a disability-inclusive 2030 agenda for sustainable development

Mental illness, poverty and stigma in India : a case-control study

TRANI, J F
BAKHSHI, P
KUHLBERG, J
NARAYANAN, S S
VENKATARAMAN, H
MISHRA, N N
GROCE, N
JADHAV, S
DESHPANDE, S
January 2015

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The effect of experienced stigma on depth of multidimensional poverty of persons with severe mental illness (PSMI) in Delhi, India, controlling for gender, age and caste was assessed. A case–control study was conducted from November 2011 to June 2012. 647 cases diagnosed with schizophrenia or affective disorders were recruited and 647 individuals of same age, sex and location of residence were matched as controls at a ratio of 1:2:1. Conclusions: Public stigma and multidimensional poverty linked to SMI are pervasive and intertwined. In particular for low caste and women, it is a strong predictor of poverty. Exclusion from employment linked to negative attitudes and lack of income are the highest contributors to multidimensional poverty, increasing the burden for the family.

The value of mainstreaming: why disability-inclusive programming is good for development

Lorraine Wapling
2015

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Disabled people are often among the poorest and most marginalised people in communities. Many development organisations state that their intention is to improve the lives of the most disadvantaged and yet don’t actively include disabled people in their work. Given the huge but largely unrecognised potential contribution of 1 billion disabled people towards economic and social progress, it makes good sense for development organisations to actively engage them. Disabled people have a right to participate in and benefit from development, and their inclusion will help reduce the inequalities that are slowing down progress on the elimination of extreme poverty.

Disability and displacement in times of conflict: Rethinking migration, flows and boundaries

BERGHS, Maria
2015

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In this paper, I try to understand the changed relationship of conflict to migration as seen through a lens of fluidity and what that entails for disabled people - particularly what boundaries and borders are at stake. Secondly, I investigate migration through the idea of ‘ontological insecurity’ and try and link this to ideas of (dis)/ableism. Then, I attend to what happens when boundaries are enforced in the humanitarianism of a refugee camp, to explain how territoriality of such a setting unmakes people into ‘strangers’. I show how the structural violence of poverty leads to a necessary fluidity and illustrate how people use this to combat the ‘unmaking’ of the self and reinsert themselves back into social life and relationships. Lastly, I examine the place of biolegal politics in medical humanitarianism and explore the relationship to ‘necropolitics’ and its consequences.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 1

Using Postcolonial Perspectives to Consider Rehabilitation with Children with Disabilities: The Bamenda-Toronto Dialogue

NIXON, Stephanie A
COCKBURN, Lynn
ACHEINEGEH, Ruth
BRADLEY, Kim
CAMERON, Debra
MUE, Peter N
SAMUEL, Nyingcho
GIBSON, Barbara E
2015

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This article discusses tensions in children’s rehabilitation that came to light through a series of ‘postcolonial dialogues’ amongst Canadian and Cameroonian participants. We defined ‘tensions’ as conflicts, contrasting ways of seeing things, and/or taken-forgranted ideas that shape issues related to rehabilitation for children with disabilities. These tensions were identified, articulated, and deconstructed through an iterative, multi-phase dialogue among eight individuals who identify as people with disabilities, rehabilitation providers, and/or rehabilitation researchers in Cameroon and Canada. The tensions discussed in this article problematize conceptualizations of disability and of client-centred care, the role of pain as a reinforcement tool in rehabilitation, and assumptions about poverty and religion in the context of rehabilitation practice. We present this synthesis to achieve several aims: (1) to provide multiple ways for rehabilitation providers and others to better understand these particular substantive issues; (2) to model the use of a critical lens as an approach for thinking about rehabilitation that promotes reflective and deliberate practice and that can be applied across contexts; and, (3) to promote dialogue about postcolonial and other critical perspectives on rehabilitation with children and with other groups.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 2

Revolutionary entanglements: Transversal mappings of disability in the favela

NASCIMENTO, Ashley Do
SKOTT-MYHRE, Hans A
SKOTT-MYHRE, Kathleen S G
2015

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This paper examines, complicates and contests the implicit discourse of children living in poverty as inherently disabled. Challenging the media portrayal of young people living in the favelas in Rio de Janeiro within the neo-liberal discourse of development, the article will draw on the experience of one of the author’s (Ashley Do Nascimento) experience as a child and youth care worker and ethnographer in a favela in Rio. An argument will be made for re-thinking dis-ability in relation to poverty and childhood in the global south.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 2

Typhoon Haiyan one year on: Disability, poverty and participation in the Philippines

COBLEY, David
2015

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This article explores the relationship between disability, poverty and participation in the aftermath of Super Typhoon Haiyan, which struck the Philippines on 8th November 2013, based on field research conducted at the time of Haiyan’s first anniversary. Fieldwork included interviews exploring disabled people’s experiences, their priorities and the challenges facing them in the year since Haiyan. The analysis, which draws on a three-level typology of participation and Sen’s (1999) capability perspective, concludes that disabled people have the potential to participate as active agents in disaster planning and recovery processes, both individually and collectively, at various levels. Furthermore, supporting disabled people to participate effectively, through flexible approaches, capacity building and the forging of pro-poor alliances, can reduce poverty in capability terms, as well as raising awareness of the largely untapped potential of disabled people to contribute to the shaping of more inclusive societies.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 3

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