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Disability inclusion helpdesk; evidence digest issue 2, December 2019

SDDirect
November 2019

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Produced by the Disability Inclusion Helpdesk. A summary of the latest evidence on disability inclusion in international development from programmes and researchers around the world are highlighted:

·         Access to health: the missing billion

·         Sexuality and disability for children and youth in China

·         Analysing INGO practice 

·         Disability and technology

·         Disability and inequality in Liberia 

·         Pregnancy, childbirth and motherhood in Nepal 

·         Violence against women and girls with disability in Nepal

 

Brief overviews are provided of policy and news from the UK, various UN organisations, Asia Pacific Social Protection Week and South Africa.

 

Brief updates of DFID's (UK Departments for International Development) funded programmes are given including: Disability Inclusive Development (DID) Programme; Inclusion Works; The Disability Catalyst Programme; Programme for Evidence to Inform Disability Action (PENDA), Innovating Pathways for Employment Inclusion (IPEI)

Disability, CBR and inclusive development (DCID)

2016

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"Disability, CBR and Inclusive Development aim to enhance knowledge in the field of disability, addressing the needs of practitioners in the field (particularly those from developing countries), policy makers, disabled persons’ organizations and the scientific community. The journal encourages publication of information that is evidence-based, to improve current knowledge and programmes implementation, and will be openly and freely accessible to all readers" ”Published four times a year, previously published two times per year
Free

OPERA framework

July 2016

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"A guiding lens for CESR's national enforcement work, the OPERA framework allows an assessment that triangulates outcomes, policies and resources to provide a much fuller picture of what a state is doing to promote the realization of specific rights. Importantly, it traces economic and social deprivations and disparities back to the actions or omissions of the state, to make the case that they constitute an injustice and a violation of human rights."

Evidence-based decision-making for funding allocations

DE GEOFFREY, Veronique
LEON, Valerie
BUERET,Alan
September 2015

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This is a study analyses a number of donors to explore how evidence-based information impacts decision making. The study aims to: (i) describe the current practices of a selection of donors in making decisions about resource allocation; (ii) identify the key factors that determine whether or not evidence is used; (iii) identify areas for further discussion among Good Humanitarian Donorship donors that could help strengthen evidence-based decision making. After analysing these three things, the study makes 11 recommendations for further discussion amongst donors 

The key informant child disability project in Bangladesh and Pakistan

MACTAGGART, Islay
MURTHY, GVS
2013

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The Key Informant Method (KIM) has previously been tested by CBM, LSHTM and others, and found to be a valid method for the identification of children with severe visual impairment and blindness in Bangladesh, using community volunteers in the place of a door-to-door survey. This report outlines a study that set out to expand this and test whether voluntary, community-level Key Informants (KIs) could be trained to effectively identify children with moderate or severe physical impairments, sensory impairments (visual and hearing) or epilepsy in Bangadesh and Pakistan, and if so whether this process could be used to assess prevalence and plan appropriate referral services for children meeting these criteria

Making it work guideline

GUY, Michael
September 2011

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Making it Work is a methodology for researching and documenting good practices on key disability issues, and then using this evidence to carry out effective advocacy in line with the principles of the Convention for the Rights of Persons with Disabilities .The methodology is straight-forward: it can be used to develop projects on any disability issue, in any country, at any level, by all types of organizations. Indeed many organizations throughout the world are now using this approach and sharing their good practice research and recommendations online. This guideline sets out a step-by-step approach for implementing such projects

The knowledge of transition toolkit|Bridging the know-do gap : a resource for researchers

BENNETT, Gavin
JESSSANI, Nasreen
Eds
2011

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"This toolkit provides a thorough overview of what knowledge translation (KT) is and how to use it most effectively to bridge the ‘know-do’ gap between research, policy, practice, and people. It presents the theories, tools, and strategies required to encourage and enable evidence-informed decision-making. This toolkit builds upon extensive research into the principles and skills of KT: its theory and literature, its evolution, strategies, and challenges. The book covers an array of crucial KTenablers, from context mapping to evaluative thinking, supported by practical examples, implementation guides, and references. Drawing from the experience of specialists in relevant disciplines around the world, The Knowledge Translation Toolkit aims to enhance the capacity and motivation of researchers to use KT and to use it well"

SUPPORT tools for evidence-informed health policymaking (STP)

OXMAN, Andy
HANNEY, Stephen
Eds
December 2009

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This is a set of 18 tools that can be used by those involved in finding and using research evidence to support evidence-informed health policy making. The series addresses four broad areas: supporting evidence-informed policymaking; identifying needs for research evidence; finding and assessing research evidence; and, going from research evidence to decisions

Meeting report of the international policy dialogue on HIV/AIDS and disability

PEAKE, Sharon
November 2009

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The International Policy Dialogue on HIV/AIDS and Disability ..."provided a forum for stakeholders from governments, academia, and non-governmental and multilateral organizations to explore the issues and evidence related to HIV/AIDS and disability, and to chart a way forward in terms of policy and programme development." The objectives..."were: to explore the place of disability in the changing nature of the global HIV/AIDS epidemic and the required response; to share and learn from participants' experiences; and to build and reinforce the partnerships needed to sustain a comprehensive global response to HIV/AIDS, which includes issues related to disability"

Community-based rehabilitation : opportunity and challenge

HARTLEY, Sally
et al
November 2009

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This article presents information about community based rehabilitation (CBR) and highlights the present opportunities and challenges. The article details the critiques of CBR and the recent emphasis to redress the balance and improve the evidence base. The article states that "CBR is now ready to be examined more rigorously, applied more consistently, and integrated more effectively into national and international policy making"
The Lancet, Vol 274

Systems thinking for health systems strengthening

Eds
2009

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This third report knits together earlier work by accelerating a more realistic understanding of what works in strengthening health systems, for whom and under what circumstances. Its primary goal is to catalyse new conceptual thinking on health systems, system-level interventions, and health system strengthening

Evidence-based planning for sustainability of government reproductive health services

NEALE, Palena
HUE, Le Ngoc
KUDRATI, Mustafa
June 2008

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This training manual is to help prepare local government health teams to use evidence-based methods to develop long-term plans to strengthen their Reproductive Health programmes and to actively involve participants in the learning process. There is an insistence on the systematic use of local and national data, statistics, and policies to develop an appropriate response; and a recognition that because local governments in most countries develop plans in the context of competing priorities for a limited budget, plans are only as good as the local government health department’s ability to defend them

Reflections on poverty and disability : a review of literature

KAMPEN, Marlies V
ZIJVERDEN, Ingrid M
EMMETT, Tony
2008

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This study carried out a review of literature describing the relationship between poverty and disability, in order to establish the evidence base for this relationship. Several authors seem to accept the existence of this link, even without a sound research basis. Articles and books were scrutinized to find out what sources were used in these publications to conclude that there was evidence for a strong relationship between disability and poverty. Peer-reviewed articles were used as much as possible.

It was found that cultural determinants play the greatest role in the process of disability leading to poverty. Monetary factors are also essential determinants when it comes to poverty as a result of disability. The relationship between disability and poverty seems to be a vicious circle. Most of the literature concerning poverty and disability is based on non- rigorous (literature) studies.

Relating disability to poverty and vice versa is a complex matter that needs to consider several interdependent factors that influence this process.

 

 

Asia Pacific Disability Rehabilitation Journal, Vol 19, No 1

Ripple effects or deliberate intentions?|Assessing linkages between women's empowerment and childhood poverty

JONES, Nicola
MUKHERJEE, Madhuri
GALAB, S
May 2007

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This paper looks at the impact of women's empowerment on child poverty and well-being. It includes an overview of theoretical literature on women's empowerment and inter-generational poverty transmissions; outlines the research methodology used; presents the findings from research in four districts of Andhra Pradesh; and sets out the conclusions and policy recommendations

Global Fourm update on research for health volume 4|Equitable access : research challenges for health in developing countries

MATLIN, Stephen
Ed
2007

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This volume reflects the current state of health research in ensuring equitable access. The topics covered range from access to health, innovation and research resources to decision-making and governance. To achieve better health, particularly among the poor and marginalised in low- and high-income countries alike, there is a need to improve health systems and services, to ensure equitable and affordable access to these and to good quality medicines, and to address social inequities that produce and exacerbate poor health. Beyond the treatment of ill-health, much more attention is needed to create the conditions that enable individuals, communities and countries to promote better health

Five myths about the HIV epidemic in Asia

GODWIN, Peter
et al
October 2006

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This article raises concerns about a number of misinformed beliefs, or myths, about the HIV epidemic that are widely circulating in Asia, and suggests that if these myths, are allowed to underpin and influence policy and programming and guide immediate action, they have the potential to jeopardise exactly the kind of focused, coherent, evidence-based programme being called for in Asia and the Pacific

Policy engagement for poverty reduction : how civil society can be more effective

COURT, Julius
June 2006

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This briefing paper draws on a report by Julius Court and others entitled 'Policy engagement: how can civil society be more effective', also published by ODI. It examines the role of civil society organisations in poverty reduction strategies and looks at ways to enhance their influence on the policy making process. Inadequate knowledge about the policy making process, lack of resources, insufficient capacity and policy makers' mistrust of CSOs are the main obstacles to their full engagement in policy making. Effective approaches should entail: campaigning and implementation of pilot projects aimed at improving adverse political contexts; rigorous mapping and assessment of political contexts; identify critical policy stages; provide relevant and objective evidence; use effective communication methods and strategies; apply network approaches; engage in systematic capacity building

Human subject regulations decision charts

OFFICE FOR HUMAN RESEARCH PROTECTIONS (OHRP)
September 2004

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These graphic aids are a guide to help decide if a research activity involving human subjects needs to be reviewed by an institutional review board (IRB) under the requirements of the US Department of Health and Human Services. The charts specify the following: whether an activity is research that must be reviewed by an IRB, whether the review may be performed by expedited procedures, and whether informed consent or its documentation may be waived. This document is useful for institutional review boards (IRBs), investigators, and others who are conducting research with human subjects

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