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Online collective identities for autism: The perspective of Brazilian parents

ANTUNES, Debora
DHOEST, Alexander
2018

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The importance of online communities for parents of people with disabilities has been discussed by many scholars in the fields of Digital and Disability Studies, showing, for instance, the importance of social support and the formation of social ties. In order to contribute to this scholarship, this paper explores how collective identity models are built and circulated by parents of autistic people in one of the biggest Brazilian online communities about the subject, ‘Sou autista… conheça o meu mundo’ (I am autistic…get to know my world). The results were obtained through a digital ethnography, based on participant observation and an exchange of information with the members of the community studied. Based on the data collected, the study concludes that the collective identity models that circulate in this community can be grouped into legitimising, resistant, and project identities, as postulated by Castells (2010). The different views reflect how parents see autism and represent the ways it is treated in Brazilian society.

 

Disability and the Global South, 2018 Vol.5, No. 1

Communities of practice and networks : reviewing two perspectives on social learning

CUMMINGS, Sarah
VAN ZEE, Arin
May 2005

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This article examines the similarities between the concepts of 'community of practice' and 'networking for learning'. This article examines the common elements, and discusses the approaches, the characteristics, theoretical background and importance for development of each model. Next, similarities based on conceptions of social learning are explored. Finally, it is argued that communities of practice and networks for learning are part of the same continuum with varying degrees of formality, ranging from informal communities of practice to highly formal networks for learning. This article provides a valuable, relatively accessible introduction to the ideas of "networking" and "community of practice", discusses how they have evolved and explores how they can be useful to the development sector

Measuring the immeasurable : planning, monitoring, and evaluation of networks

KARL, Marilee
Ed
1998

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Aimed at people interested in civil society and change through the experiences of networks and networking. The book aims to share experiences of networks and networking organisations in planning, monitoring, and evaluation; examine problems, challenges, practices and successes; provide lessons and guidelines to strengthen the participatory monitoring and evaluation in networks and networking organisations; and promote greater understanding and cooperation between funding agencies, networks and the networking organisations that they support

Cochrane : the reliable source of evidence in healthcare

COCHRANE COLLABORATION

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The Cochrane Collaboration is an organisation dedicated to making up-to-date accurate information about the effects of healthcare readily available worldwide. It produces and disseminates systematic reviews of healthcare interventions and promotes the search for evidence in the form of clinical trials and other studies of interventions. Its main output is the Cochrane Library, which includes a database of systematic reviews, a database of abstracts or reviews of effects, the central register of controlled trials (bibliographic information on controlled trials including reports published in conference proceedings), a database of methodology reviews, and a bibliography of articles and books on reviewing research

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