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Lived Experience of Psychosocial Disability and Social Inclusion: A Participatory Photovoice Study in Rural India and Nepal

FERNANDES, Helen Lea
CANTRILL, Stephanie
SHRESTHA, Ram, Lal
RAJ, Rachel, Belda
ALLCHIN, Becca
KAMAL, Raj
BUTCHER, Nicole
GRILLS, Nathan
2018

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Purpose: This study aimed to investigate the experiences of people living with a psychosocial disability in rural India and Nepal, and to highlight key barriers and enablers for inclusion.

 

Method: Participatory action research approaches and Photovoice methodology were employed to investigate the lived experience of 32 participants in rural India and Nepal. There were 12 participants and 4 caregivers of people with psychosocial disability from each of the two countries. Semi-structured interviews with study participants were transcribed and analysed thematically to answer the study question.

 

Results: The findings revealed themes related to various supports, meaningful engagement in activity, and community awareness. Among these categories were both enabling and impeding factors to inclusion, the presence or absence of which was typically associated with improvements or worsening of symptoms respectively.

 

Conclusions and Implications: This study underscores the need for integrated community-based approaches that are multisectoral, inclusive of family, and strengthen community responses. Photovoice was also shown to be a feasible research methodology for providing insights into the lived experience of people with psychosocial disability and for fostering their empowerment

Sustainability and equity aspects of total sanitation programmes : a study of recent WaterAid supported programmes in three countries global synthesis report

EVANS, Barbara
et al
2009

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This report is a synthesis of three individual country studies on Community-led Total Sanitation (CLTS) activities in WaterAid programmes in Bangladesh, Nepal and Nigeria. The studies examined whether CLTS had led to sustainable and equitable sanitation behaviour change. The study explored whether achieving open-defecation-free (ODF) status is a necessary but not sufficient condition for the entire community to use and maintain hygienic latrines in the long-term. Also, where possible, the study explored the additional factors that enhance the probability that ODF status will translate into entrenched behaviour change, as well as the capacity of communities to move onwards up the ‘sanitation ladder’

Responding to reproductive health needs: a participatory approach for analysis and action

WORLD NEIGHBORS
2001

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A report and training guide documenting two workshops in Nepal in the late 1990s, designed to help NGO trainers gain skills to assist communities in identifying and addressing reproductive health needs. Specific objectives include helping participants develop a gender-sensitive approach, analyze their current activities with regard to gender issues, and gain skills in the use of participatory methods and tools. Describes the methodology, objectives and stages of the workshops, and includes participatory exercises and tips

Putting child rights and participatory monitoring and evaluation with children into practice : some examples in Indonesia, Nepal, South Africa and the UK

NURICK, Robert
JOHNSON, Vicky
2001

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This paper focuses on children's rights and includes examples of participatory monitoring and evaluation with children. In particular, it looks at organisational mapping and case studies of child-sensitive monitoring and evaluation activities in South Africa and Nepal and reports on young people's participation in the evaluation of the Saying Power Scheme. Examples of evaluation techniques such as 'confidence lines' and the 'H method' are given

Participatory monitoring and evaluation

February 1988

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One of the PLA Notes special editions, includes articles on: tracking change together; monitoring and evaluating in the Nepal-UK Community Forest Project; particpatory self-evaluation of World Neighbors, Burkino Faso; institutional issues for monitoring local development in Ecuador; growing from the grassroots: building participatory planning, monitoring and evaluation methods in PARC; ELF - 3 year impact evaluation: experiences and insights; Participatory monitoring and evaluation in flood proofing pilot project, CARE-Bangladesh

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