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Disability-inclusive healthcare in humanitarian camps: Pushing the boundaries of disability studies and global health

MIRZA, Mansha
2015

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A significant proportion of forced migrants live in humanitarian camps located in remote regions of the global South. Disabled persons have been historically neglected within camp programs across all service sectors, especially healthcare. This paper describes an exploratory research study on healthcare access for forced migrants with disabilities in the context of humanitarian camps. Based on the methodological framework of rapid ethnography, the research involved guided tours, community mapping exercises, ethnographic observations, and semi-structured interviews in a refugee camp in southern Africa. Additional key informants from other sites were interviewed remotely using a convenience sampling strategy. Several important insights emerged from the research including: misperceptions about the health-related needs of disabled persons, their specialized health needs falling outside the ‘social minimum’ of humanitarian healthcare, and concerns about distributional ethics in relation to disability-inclusive healthcare. The research also highlighted barriers and strategies for addressing disability-specific health needs given significant resource constraints in humanitarian camps. These findings are discussed in light of practical and theoretical challenges in the fields of disability studies and global health.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 1

Partnerships for disability research in Africa: Lessons learned in Kinshasa, Democratic Republic of the Congo

ALDERSEY, Heather
WENDA, Delphine Assumani
2015

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Issues concerning individuals with disabilities are under-researched in Africa, and persons with disabilities remain some of the most highly disadvantaged groups. In an increasing era of globalization, partnerships across borders and boundaries to conduct disability research is inevitable. Yet, such partnerships might be complicated by issues such as unequal power dynamics, poverty, and cultural misunderstandings, among others. In this article, the authors reflect upon their experience partnering for disability research across cultures, with one author being a Congolese person with a disability and the other being a Canadian ally. They discuss the nature of their research relationship, challenges they faced while conducting a seven-month study of personhood and support for people with intellectual disabilities in Kinshasa, and how they addressed these challenges. They also outline lessons learned from this partnership and how their past experience collaborating for disability research will shape their future endeavours.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 3

Disability & the Global South (DGS), 2015, Vol. 2 No. 3

2015

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Articles include:

  • Typhoon Haiyan One Year On: Disability, Poverty and Participation in the Philippines
  • Beneath the rhetoric: Policy to reduce the mental health treatment gap in Africa
  • Working within the tensions of disability and education in post-colonial Kenya: Toward a praxis of critical disability studies
  • How disability studies and ecofeminist approaches shape research: exploring small-scale farmer perceptions of banana cultivation in the Lake Victoria region, Uganda
  • Partnerships for Disability Research in Africa: Lessons Learned in Kinshasa, Democratic Republic of the Congo
  • Representation, Access and Contestation: Facebook and Vision Impairment in Jordan, India, and Peru

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