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‘Teachers Did Not Let Me Do It.’: Disabled Children’s Experiences of Marginalisation in Regular Primary Schools in China

WANG, Yuchen
2021

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The large-scale mainstreaming of disabled children in education in China was initiated with the launching of a national policy called ‘Learning in Regular Classrooms’ in the late 1980s. More than thirty years on, and little is known about disabled children’s daily experiences in regular schools due to a lack of research that foregrounds their voices. This paper reports the main findings from an ethnographic study conducted in 4 state- funded primary schools in Shanghai involving 11 children labelled as having ‘intellectual disabilities’, 10 class teachers and 3 resource teachers. Data were collected through participant observation, semi-structured interviews, and child-friendly participatory activities, and thematically analysed to identify patterns in practices and beliefs that underpin the processes of inclusion and exclusion. The research found that the child participants were facing marginalisation in many aspects of school life with rather limited participation in decision-making. The exclusionary processes were reinforced by a prevailing special educational thinking and practice, a charitable approach to the disadvantaged in a Confucian society, and an extremely competitive and performative schooling culture. The findings address the need to hear disabled children’s voices to initiate a paradigm shift in understanding and practice to counterbalance deep-rooted barriers. The paper concludes with suggestions for future research.

The community-based actions that removed barriers to inclusive education in Kenya

ELDER, Brent C
PAYNE, Mbuh
OSWAGO, Benson
2021

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This article represents a culmination of inclusive education projects implemented in western Kenya since 2010. In this article, we discuss the 2018 iteration of this on-going community-based participatory research (CBPR)-informed project in which we utilised multiple theoretical frameworks to inform our methods in this project, including decolonising methodologies and Critical Disability Studies (CDS). We conducted qualitative interviews as a way to learn about the ways in which inclusion committees facilitated the partial removal of barriers to the development of an inclusive education system in the region over the last decade. In this article, we provide an overview of the barriers to inclusive education in the global South and sub-Saharan Africa, with a particular focus on western Kenya. We present findings that highlight the various inclusion committee actions that contributed to the partial removal of barriers which included: sensitising communities about inclusive education; promoting access to inclusive education; and implementing inclusive strategies like income generating activities (IGAs) and co-teaching. We conclude the article by suggesting potential ways forward for inclusive education in Kenya including: a multi-sector approach for family supports; providing government incentives to inclusive schools; and promoting IGAs and co-teaching practices in teacher education programs and in schools.

Decolonising inclusive education: an example from a research in Colombia

KAMENOPOULOU, Leda
2020

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Inclusive education is a concept born in the global North. Research has shown that its relatively recent but widespread adoption by countries in the global South is often done without consideration of the actual needs of these contexts, and by solely focusing on strategies for learners with disabilities. As a result, inclusive education has been criticised as a neo-colonial project in need of renovation. The aim of this article is to show how research can broaden the understanding of inclusive education and make it more relevant to southern contexts. Drawing on an ethnographic research on inclusive education in Colombia, I present some unique examples of vulnerability, but also experiences of belonging in the direst of circumstances. I conclude that in order to decolonise the concept of inclusive education and make its practice sustainable in southern contexts, we need more culturally sensitive research to inform our understanding of these under-researched spaces.

 

Disability & the Global South (DGS), 2020, Vol. 7 No. 1

Decolonizing inclusive education: A collection of practical inclusive CDS- and DisCrit-informed teaching practices implemented in the global South

ELDER, Brent C
MIGLIARINI, Valentina
2020

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In this paper, we present a collection of decolonizing inclusive practices for elementary education that we have found effective when implementing them in postcolonial countries. The choice and implementation of such practices was informed by the intersectional and interdisciplinary theoretical framework of Critical Disability Studies (CDS) and Disability Critical Race Theory in Education (DisCrit), and guided by decolonizing methodologies and community-based participatory research (CBPR). The main purpose of this paper is to show how critical theoretical frameworks can be made accessible to practitioners through strategies that can foster a critical perspective of inclusive education in postcolonial countries. By doing so, we attempt to push back against the uncritical transfer of inclusion models into Southern countries, which further puts pressure on practitioners to imitate the Northern values of access, acceptance, participation, and academic achievement (Werning et al., 2016). Finally, we hope to start an international dialogue with practitioners, families, researchers, and communities committed to inclusive education in postcolonial countries to critically analyze the application of the strategies illustrated here, and to continue decolonizing contemporary notions of inclusive education.

 

Disability & the Global South (DGS), 2020, Vol. 7 No. 1

Disability & the Global South (DGS), 2019, Vol. 6 No. 2

2019

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Articles included are:

  • A comparison of disability rights in employment: Exploring the potential of the UNCRPD in Uganda and the United States
  • Reimagining personal and collective experiences of disability in Africa
  • Social participation and inclusion of ex-combatants with disabilities in Colombia
  • ‘Inclusive education’ in India largely exclusive of children with a disability
  • Participation, agency and disability in Brazil: transforming psychological practices into public policy from a human rights perspective

‘Inclusive education’ in India largely exclusive of children with a disability

GRILLS, Nathan
DEVABHAKTULA, Jacob
BUTCHER, Nicole
AROKIARAJ, Sarojitha
DAS Prottoy Kumar
ANDERSON, Pam
2019

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Exclusion of children with a disability from education negatively affects national economic growth. Education is important for children with a disability to acquire skills that allow them to gain employment, and thus address a key driver of poverty. A cross-sectional study was conducted in 2015 to better understand the relationship between disability, education and health among children in India. Across 17 states in India, the study sample included 39,723 households with a child aged 0-59 months (163,400 individual cases in total), based on randomised cluster sampling methodology. Key outcomes of interest were school attendance, completion of early childhood education and highest level of education. The study found one percent prevalence of disability, nearly double among boys (1.38%) compared to girls (0.77%), and linked disability to lower level access to education and highest level of education. This study confirms the negative relationship between disability and educational exposure among children, and highlights that India’s efforts to make education a fundamental right of every child have not yet translated to benefits for children with a disability. There remains a pressing need for well-designed longitudinal studies that capture the barriers and protective factors of school attendance at every transition between stages of schooling in children with a disability.

 

Disability and the Global South, 2019, Vol.6, No. 2

Decolonizing schools: Women organizing, disability advocacy, and land in Sāmoa

ANESI, Julianne
2019

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In the 1970s and 1980s, Sāmoan women organizers established Aoga Fiamalamalama and Loto Taumafai, two educational institutions, in the independent state of Sāmoa. This article examines these schools’ support of students labelled as ma’i (sick), specifically those with intellectual and physical disabilities. Through oral histories and archival research, I show the vital role performed by the women organizers in changing the educational system by drawing attention to the exclusion of disabled students. I focus on the collective labor of Sāmoan women and their influence in decolonizing schools. In this regard, the women organizers used Sāmoan concepts of fa’a Sāmoa (culture), fanua (land), and tautua (service) as ways to redefine the commitment of the education system. This is a story about daring to reimagine indigenous disabled bodies and their futures through knowledge systems, theory, and literature.

 

Disability & the Global South (DGS), 2019, Vol. 6 No. 1

Disability & the Global South (DGS), 2018, Vol. 5 No. 1

2018

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Articles include:

  • Inclusive Education in the global South? A Colombian perspective: ‘When you look towards the past, you see children with disabilities, and if you look towards the future, what you see is diverse learners
  • Services for people with Communication Disabilities in Uganda: supporting a new Speech and Language Therapy profession
  • Frida Kahlo and Pendular Disability Identity: A Textual Examination of El Diario de Frida Kahlo
  • Health Information-Seeking Behaviour of Visually Impaired Persons in Ibadan Metropolis, Nigeria
  • Online Collective Identities for Autism: The Perspective of Brazilian Parents
  • Transnationalizing Disability Policy in Embedded Cultural-Cognitive Worldviews: the Case of Sub-Saharan Africa
  • Portrayal of Disabled People in the Kuwaiti Media

Inclusive education in the global South? A Colombian perspective: ‘When you look towards the past, you see children with disabilities, and if you look towards the future, what you see is diverse learners.’

KAMENOPOULOU, Leda
2018

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The findings of the research presented in this paper come in the aftermath of a momentous year for Colombia, a year that saw a historic peace deal signed between the government and the biggest left-wing guerrilla group (FARC) with the aim of bringing an over 50 year civil war to a long awaited conclusion. At a time when the Colombian people are being required to genuinely reflect on what inclusion means to them and how best they can achieve it within their deeply diverse society, I present findings from an ethnographic research that I conducted on inclusion in education focusing on the capital, Bogotá. The research foci were a) inclusive education in practice, b) teacher preparation for inclusive education, and c) local understanding of inclusive education. Findings include a local understanding of inclusive education as synonymous with disability, special teachers as synonymous with inclusive education in practice, and big gaps in teacher preparation for inclusive education. Based on these findings, I emphasise that inclusive education is a global North-created concept, which can acquire different meanings in global South contexts, and I argue that Colombia in particular needs time to make its own understanding of inclusive education a priority.

 

Disability and the Global South, 2018 Vol.5, No. 1

Disability & the Global South (DGS), 2017, Vol. 4 No. 1 - Special issue: Disability in the Sustainable Development Goals: Critical Reflections

2017

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Articles include:

  • Editorial: Disability and the SDGs: is the battle over?
  • Entering the SDG era: What do Fijians prioritise as indicators of disability-inclusive education?
  • SDGs, Inclusive Health and the path to Universal Health Coverage
  • No One Left Behind: A review of social protection and disability at the World Bank
  • The capacity of community-based participatory research in relation to disability and the SDGs
  • Measuring Disability and Inclusion in relation to the 2030 Agenda on Sustainable Development

Entering the SDG era: What do Fijians prioritise as indicators of disability-inclusive education?

SPRUNT, Beth
DEPPELER, Joanne
RAVULO, Kitione
TINAIVUNIVALU, Savaira
SHARMA, Umesh
2017

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Sustainable Development Goal (SDG) 4 is to ‘Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all’ and the targets and indicators for SDG 4 emphasise the importance of measuring outcomes for children with disabilities (United Nations, 2015b). This paper reports on findings from qualitative research investigating Fijian stakeholders’ priorities for measuring success of efforts within a contextually and culturally meaningful process of disabilityinclusive education; that is, achievement of SDG 4 for children with disabilities. The priorities are presented in light of the specific challenges in Fiji to fulfilling this goal. The research presented in this paper is one part of a much larger mixed method study funded by the Australian aid program that aimed to develop and test indicators for the education of children with disabilities in the Pacific (Sharma et al., 2016). Fijian researchers with lived experience of disability undertook key informant interviews and focus group discussions with 28 participants. The findings include the need for or role of: an implementation plan and resourcing to ensure the national inclusive education policy is activated; improved awareness and attitudes; competent, confident and compassionate teachers; disability-specific services and assistive technology; accessible buildings and transport; and the important role of special schools. Inclusive education reform requires that Fiji incorporates and builds on existing strengths in special and inclusive education to ensure that systems and people are prepared and resourced for inclusion. The paper concludes that targets within SDG 4 are compatible with priorities within Fiji, however additional indicators are required to measure locally-prioritized changes related to barriers which need to be addressed if Fiji is to make progress towards the higher-order targets of SDG 4.

 

Disability & the Global South (DGS), 2017, Vol. 4 No. 1

The capacity of community-based participatory research in relation to disability and the SDGs

GREENWOOD, Margo
2017

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The 2030 Agenda pledges to foster shared responsibility, recognizes all as crucial enablers of sustainable development, and calls for the mobilization of all available resources. It also commits to multi-stakeholder partnerships and pledges to be open, inclusive, participatory and transparent in its follow-up and review. Community-based participatory research (CBPR) equitably involves community members, organizational representatives and researchers, enabling them to share power and resources through drawing on the unique strengths that each partner brings. It aims to integrate any increased knowledge and understanding into action, policy and social change to improve the health and quality of life of community members. CBPR involves recruiting community or peer researchers, involving them in planning and offering them training to undertake interviews and observations in their context. They are also part of the analysis and dissemination process, and continue to work with local partners on advocacy plans and events after projects and research have finished. People with disabilities are actively part of the research process throughout. Drawing on relevant literature and current CBPR disability research in East and West Africa, this paper puts forward CBPR as a methodology that can enable community members to identify key barriers to achieving the SDGs, and inform how policy and programmes can be altered to best meet the needs of people with disabilities. It demonstrates CBPR in practice and discusses the successes and complexities of implementing this approach in relation to the SDGs. The paper also highlights findings such as the high level of support needed for community research teams as they collect data and formally disseminate it, the honest raw data from peer to peer interaction, a deep level of local ownership at advocacy level, emerging issues surrounding meaningfully involving community researchers in analysis, and power differentials. A key conclusion is that to join partners with diverse expertise requires much planning, diplomacy, and critical, reflexive thought, while emphasising the necessity of generating local ownership of findings and the translation of knowledge into a catalyst for disability-related policy change.

 

Disability & the Global South (DGS), 2017, Vol. 4 No. 1

Tangible First Steps: Inclusion Committees as a Strategy to Create Inclusive Schools in Western Kenya

DAMIANI, Michelle L
ELDER, Brent C
OKONGO, Theophilus O
2016

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This paper provides one example of forming an inclusion committee in Kenya toward the vision of creating inclusive primary school campuses. We suggest the development of inclusion committees as a potential innovative strategy and a critical element of community reform toward disability awareness, and to increase access to primary school education for students with disabilities. The formation of the inclusion committee followed a member-driven process for identifying barriers to educational access for students with disabilities, prioritizing the needs within their local context, determining a plan of action to address these needs within existing community resources, and gaining access to new resources. Recognizing access to equitable education as a universal human right supported by local and international legislation, this paper works within the tensions that exist between Western constructs of education and how they are applied in post-colonial countries in the global South. Our findings suggest that establishing diverse participation among stakeholders led to even more inclusive representation; that inclusion committee actions led to local and national level involvement with the initiative; and that community-driven progress toward inclusive education presented both strengths and challenges in terms of sustainability. Finally, we discuss implications for under-resourced schools, including those in the global North.

 

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

To what extent is Universal Design for Learning “universal”? A case study in township special needs schools in South Africa

SONG, Yosung
2016

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This paper reports on a study examining the current challenges of developinginclusive education as well as the potential applicability of implementing principles of Universal Design for Learning (UDL) in two township special needs schools in South Africa. The philosophy of UDL has been advocated by many educators as a means of developing inclusive classroom environments in the Western world. Despite the growing popularity of UDL, its universal application, especially in places with limited resources, has remained somewhat unquestioned. Using a theoretical framework that is critical of Western-centered understandings of inclusive education and pedagogy, this paper examines how understanding the educational circumstances and teacher knowledge of a local context can inform the applicability of UDL principles. The findings of this study reveal that despite teachers’ recognition of the benefits of implementing UDL principles in their practice, the unique socioeconomic conditions in South African township schools make teachers doubt the feasibility of implementing this Western concept in their classrooms. Yet, at the same time, the findings illustrate how teachers are already employing practices that are consistent with UDL principles in an attempt to cater for the needs of diverse learners. The paper concludes by asserting the need to consider the unique economic and political contexts of the global South when determining the applicability of inclusive education strategies beyond Western contexts.

 

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

Disabling streets or disabling education? Challenging a deficit model of street-connectedness

CORCORAN, Su Lyn
2015

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Current interventions aiming to assist street-connected children in making the transition from the street, prioritise a return to mainstream primary education. In so doing, implementing organisations equate their ideas of a normative childhood with school attendance. This article challenges the appropriateness of such priorities by exploring the experiences of teachers in four Central Kenya primary schools and examining Kenyan education policy related to street-connected children. The paper argues that teachers’ belief in their inability to support the learning of street-connected children alongside the linguistic loopholes within the wording of educational policy to allow for alternative education systems, formal education can further compound processes of marginalisation. Findings further indicate that current education policy and practice can fail to effectively incorporate street-connected children and to some extent be described as disabling.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 2

Working within the tensions of disability and education in post-colonial Kenya: Toward a praxis of critical disability studies

ELDER, Brent C
FOLEY, Alan
2015

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This paper explores emerging and evolving critical approaches to inclusive education development work in the postcolonial, global South context of Kenya. Taking an ontoformative (Connell, 2011) perspective of disability, we view disability as a dynamic process inherently tied to social contexts and their fluid effects on disabled bodies. Thus, not all impairments are a natural form of human diversity, and many are imposed on bodies in underdeveloped countries through oppressive imported Western practices. In this paper we present our work not as models of ‘what to do’ or ‘what not to do’ in development work. Rather we offer a reflection on the evolution of our understanding and approach to this work from being merely ‘progressive’ (while further exporting Northern theory), toward a more critical and self-reflexive approach. We hope this is a starting point in a dialogical process of mutual knowledge production between the global North and South that leads to better ways of conceptualizing and supporting people with disabilities in the global South.

 

Disability and the Global South (DGS), 2015, Vol. 2 No. 3

Disability, poverty and education: perceived barriers and (dis)connections in rural Guatemala

GRECH, Shaun
2014

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This paper engages with the impacts of disability on the formal education of disabled people in poor rural areas. Reporting on qualitative ethnographic work in Guatemala, adults with a physical impairment provided retrospective accounts of their educational trajectories. Findings highlight multidimensional and dynamic barriers to education confronted by all poor people, but which often intensified for disabled people. These met a host of disability-specific barriers cutting across social, physical, economic, political and personal spheres. Findings report how in the face of more persistent basic needs and costs, education had a high opportunity cost, and often could not be sustained. Disabled parents also came to prioritise the education of their children translating into limited or no school re-entry for these parents. The paper concludes that engagement with temporal and context specific (but fluid) spaces of poverty is necessary, because it is within these spaces that disability and education are constructed and lived, and within and through which barriers emerge. Cross-sectoral efforts are needed, addressing educational barriers for all poor people indiscriminately, while targeting families to remove obstacles to other basic needs competing with education. Critically, efforts are needed to ensure that educational outcomes are linked to immediate contributions to the family economy and welfare through work.

 

Disability and the Global South (DGS), 2014, Vol. 1 No. 1

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