Resources search

Exploring Critical Issues in the Ethical Involvement of Children with Disabilities in Evidence Generation and Use

THOMPSON, Stephen
CANNON, Mariah
WICKENDEN, Mary
2020

Expand view

This research brief details the main ethical challenges and corresponding mitigation strategies identified in the literature with regard to the ethical involvement of children with disabilities in evidence generation activities. Evidence generation activities are defined as per the UNICEF Procedure for Ethical Standards in Research, Evaluation, Data Collection and Analysis (2015), as research, evaluation, data collection and analysis. The United Nations Convention on the Rights of the Child (art. 12) states that children have the right to form and express views freely in all matters affecting them and that the views of the child must be given due weight in accordance with her/his age and maturity.

 

The United Nations Convention on the Rights of Persons with Disabilities (art. 7) states that children with disabilities must enjoy human rights and freedoms on an equal basis with other children, and that they have a right to express their views freely and should be provided with assistance where necessary to realize that right. The two conventions in general, and these two articles specifically, frame this research brief, which aims to encourage practitioners to explicitly consider ethical ways to involve children with disabilities in evidence generation.

 

The findings detailed in this summary brief are based on a rapid review of 57 relevant papers identified through an online search using a systematic approach and consultation with experts. There was a paucity of evidence focusing specifically on the ethical challenges of involving children with disabilities in evidence generation activities. The evidence that did exist in this area was found to focus disproportionately on high-income countries, with low- and middle-income countries markedly under-represented.

Voices of the marginalised

2016

Expand view

The aim of 'Voices of the Marginalised' is to bring the perspectives of those who live in poverty or who are highly marginalised, including those with disabilities, older people and people living with mental health problems, into post-2015 policymaking. Focusing on Bangladesh and Tanzania, people with disabilities and older people were asked to become researchers themselves, and were trained to collect and analyse stories from peers in rural and urban areas.

Making Kenya ODF

MUSYOKI, Samuel
March 2012

Expand view

This community-led total sanitation (CLTS) blog outlines progress on CLTS in Kenya, noting the difference in approach in Ghana and Ethiopia, and highlights the new approaches taken by some disabled people, working towards the goal of making Kenya open defecation free (ODF)

Going to scale with community-led total sanitation : reflections on experience, issues and ways forward

CHAMBERS, Robert
2009

Expand view

Community-Led Total Sanitation (CLTS) is a revolutionary approach in which communities are facilitated to conduct their own appraisal and analysis of open defecation and take their own action to become open defecation-free. This report presents CLTS approaches in six countries which differ organisationally with contrasting combinations of NGOs, projects and governments. Practical elements in strategies for going to scale have included: training and facilitating; starting in favourable conditions; conducting campaigns and encouraging competition; recruiting and committing teams and full-time facilitators and trainers; organising workshops and cross-visits; supporting and sponsoring Natural Leaders and community consultants and inspiring and empowering children

 

Practice Paper, Vol 2009, No 1

A participatory approach in practice : understanding fieldworkers' use of participation rural appraisal in ActionAid The Gambia

HOLMES, Tim
June 2001

Expand view

This paper uses a case study to argue that participatory approaches emerge from a complex process of negotiation where fieldworkers are subject to unique combinations of competing influences from the organisations they work for, the communities they work with, and their own personal characteristics. It suggests that fieldworkers can actively pursue personal agendas and can also be involved in changing the structures that condition their actions. However, the paper concludes that elements of the organisational structure can leave little room for fieldworkers to use their agency positively, and that managers need to address this in order to reduce the gap between the policy and practice of participatory approaches

Participatory monitoring and evaluation : learning from change

GUIJT, Irene
GAVENTA, John
November 1998

Expand view

A concise summary outlining the basic case for participatory methods and summarising the key principles underlying participatory approaches. The briefing includes details of some commonly used techniques and methods, and discusses the selection of appropriate indicators. Also highlighted some common assumptions and mistakes relating to participatory approaches

Who counts reality? Participatory monitoring and evaluation : a literature review

ESTRELLA, M
GAVENTA, J
1998

Expand view

This paper presents a literature review of experiences in participatory monitoring and evaluation (PM&E) from around the world, used in different contexts and involving all kinds of stakeholders - NGOs, donors, research institutions, government, people's organisations, and communities. It introduces the key principles of PM&E, its applications for different purposes, and a number of tools and methods used, including participatory learning methodologies as well as more conventional approaches. Finally, it raises key issues and broad challenges emerging from the literature, and outlines potential areas for future research.

E-bulletin